Notice
- Important: This guidance is under active development by NHS England and content may be added or updated on a regular basis.
- This Implementation Guide is currently in Draft and SHOULD NOT be used for development or active implementation without express direction from the NHS England Genomics Unit.
Consent-UGRConsentForResearch-Example
Example of a Consent for the UGR covering overall opt-in for research, conformant to IHE PCF.
| Consent |
| id : Consent-UGRConsentForResearch-Example |
| meta |
| profile : https://profiles.ihe.net/ITI/PCF/StructureDefinition/IHE.PCF.consentBasic |
| status : active |
| scope |
| coding |
| system : http://terminology.hl7.org/CodeSystem/consentscope |
| code : patient-privacy |
| category |
| coding |
| system : http://loinc.org |
| code : 59284-0 |
| display : Consent |
| patient |
| reference : Patient/Patient-MeirLieberman-Example |
| dateTime : 2025-04-24 |
| performer |
| reference : Patient/Patient-MeirLieberman-Example |
| organization |
| identifier |
| system : https://fhir.hl7.org.uk/Id/ODS-code |
| value : X26 |
| source |
| reference : QuestionnaireResponse/QuestionnaireResponse-ConsentQuestionnaire-Example |
| policy |
| uri : https://www.england.nhs.uk/wp-content/uploads/2018/05/nhs-england-privacy-notice-v1.77.pdf |
| provision |
| type : permit |
| purpose |
| system : http://terminology.hl7.org/CodeSystem/v3-ActReason |
| code : HRESCH |
{
"resourceType": "Consent",
"id": "Consent-UGRConsentForResearch-Example",
"meta": {
"profile": [
"https://profiles.ihe.net/ITI/PCF/StructureDefinition/IHE.PCF.consentBasic"
]
},
"status": "active",
"scope": {
"coding": [
{
"system": "http://terminology.hl7.org/CodeSystem/consentscope",
"code": "patient-privacy"
}
]
},
"category": [
{
"coding": [
{
"system": "http://loinc.org",
"code": "59284-0",
"display": "Consent"
}
]
}
],
"patient": {
"reference": "Patient/Patient-MeirLieberman-Example"
},
"dateTime": "2025-04-24",
"performer": [
{
"reference": "Patient/Patient-MeirLieberman-Example"
}
],
"organization": [
{
"identifier": {
"system": "https://fhir.hl7.org.uk/Id/ODS-code",
"value": "X26"
}
}
],
"sourceReference": {
"reference": "QuestionnaireResponse/QuestionnaireResponse-ConsentQuestionnaire-Example"
},
"policy": [
{
"uri": "https://www.england.nhs.uk/wp-content/uploads/2018/05/nhs-england-privacy-notice-v1.77.pdf"
}
],
"provision": {
"type": "permit",
"purpose": [
{
"system": "http://terminology.hl7.org/CodeSystem/v3-ActReason",
"code": "HRESCH"
}
]
}
}
<Consent xmlns="http://hl7.org/fhir">
<id value="Consent-UGRConsentForResearch-Example" />
<meta>
<profile value="https://profiles.ihe.net/ITI/PCF/StructureDefinition/IHE.PCF.consentBasic" />
</meta>
<status value="active" />
<scope>
<coding>
<system value="http://terminology.hl7.org/CodeSystem/consentscope" />
<code value="patient-privacy" />
</coding>
</scope>
<category>
<coding>
<system value="http://loinc.org" />
<code value="59284-0" />
<display value="Consent" />
</coding>
</category>
<patient>
<reference value="Patient/Patient-MeirLieberman-Example" />
</patient>
<dateTime value="2025-04-24" />
<performer>
<reference value="Patient/Patient-MeirLieberman-Example" />
</performer>
<organization>
<identifier>
<system value="https://fhir.hl7.org.uk/Id/ODS-code" />
<value value="X26" />
</identifier>
</organization>
<sourceReference>
<reference value="QuestionnaireResponse/QuestionnaireResponse-ConsentQuestionnaire-Example" />
</sourceReference>
<policy>
<uri value="https://www.england.nhs.uk/wp-content/uploads/2018/05/nhs-england-privacy-notice-v1.77.pdf" />
</policy>
<provision>
<type value="permit" />
<purpose>
<system value="http://terminology.hl7.org/CodeSystem/v3-ActReason" />
<code value="HRESCH" />
</purpose>
</provision>
</Consent>