Notice
- Important: This guidance is under active development by NHS England and content may be added or updated on a regular basis.
- This Implementation Guide is currently in Draft and SHOULD NOT be used for development or active implementation without express direction from the NHS England Genomics Unit.
Consent-DataSharing-Example
Example of a Consent for the UGR covering data sharing to support care for a relative, conformant to IHE PCF.
| Consent |
| id : Consent-DataSharing-Example |
| status : proposed |
| scope |
| coding |
| system : http://terminology.hl7.org/CodeSystem/consentscope |
| code : patient-privacy |
| display : Privacy Consent |
| category |
| coding |
| system : http://terminology.hl7.org/CodeSystem/v3-ActCode |
| code : IDSCL |
| display : information disclosure |
| patient |
| reference : Patient/Patient-AnitaLamberts-Example |
| identifier |
| system : https://fhir.nhs.uk/Id/nhs-number |
| value : 8449303649 |
| dateTime : 2026-05-07T09:08:30Z |
| performer |
| reference : Patient/Patient-AnitaLamberts-Example |
| identifier |
| system : https://fhir.nhs.uk/Id/nhs-number |
| value : 8449303649 |
| organization |
| identifier |
| system : https://fhir.hl7.org.uk/Id/ods-organization-code |
| value : X26 |
| source |
| reference : QuestionnaireResponse/QuestionnaireResponse-ConsentQuestionnaire-Example |
| policy |
| uri : https://www.england.nhs.uk/wp-content/uploads/2018/05/nhs-england-privacy-notice-v1.77.pdf |
| provision |
| type : deny |
| provision |
| type : permit |
| actor |
| role |
| coding |
| system : http://terminology.hl7.org/CodeSystem/v3-RoleClass |
| code : PAT |
| reference |
| reference : RelatedPerson/RelatedPerson-AnitaLambertsDeceasedPatient-Example |
| identifier |
| system : https://fhir.nhs.uk/Id/nhs-number |
| value : 8449303650 |
| purpose |
| system : http://terminology.hl7.org/CodeSystem/v3-ActReason |
| code : FAMRQT |
{
{
}
]
},
{
{
}
]
}
],
}
},
{
}
}
],
],
},
{
}
],
{
{
},
}
}
}
],
]
}
]
}
}
</coding>
</scope>
</coding>
</category>
</identifier>
</patient>
</identifier>
</performer>
</identifier>
</organization>
</sourceReference>
<uri value="https://www.england.nhs.uk/wp-content/uploads/2018/05/nhs-england-privacy-notice-v1.77.pdf" />
</policy>
</coding>
</role>
</identifier>
</reference>
</actor>
</purpose>
</provision>
</provision>
</Consent>