Notice
- Important: This guidance is under active development by NHS England and content may be added or updated on a regular basis.
- This Implementation Guide is currently in Draft and SHOULD NOT be used for development or active implementation without express direction from the NHS England Genomics Unit.
Consent-DataAccess-Example
Example of a Consent for the UGR covering data sharing to support care for a relative, conformant to IHE PCF.
| Consent |
| id : Consent-DataAccess-Example |
| status : active |
| scope |
| coding |
| system : http://terminology.hl7.org/CodeSystem/consentscope |
| code : patient-privacy |
| display : Privacy Consent |
| category |
| coding |
| system : http://terminology.hl7.org/CodeSystem/v3-ActCode |
| code : INFA |
| display : information access |
| patient |
| reference : Patient/Patient-AnitaLamberts-Example |
| identifier |
| system : https://fhir.nhs.uk/Id/nhs-number |
| value : 8449303649 |
| dateTime : 2026-05-07T09:08:30Z |
| performer |
| reference : Patient/Patient-AnitaLamberts-Example |
| identifier |
| system : https://fhir.nhs.uk/Id/nhs-number |
| value : 8449303649 |
| organization |
| identifier |
| system : https://fhir.hl7.org.uk/Id/ode-organization-code |
| value : X26 |
| source |
| reference : QuestionnaireResponse/QuestionnaireResponse-ConsentQuestionnaire-Example |
| policy |
| uri : https://www.england.nhs.uk/wp-content/uploads/2018/05/nhs-england-privacy-notice-v1.77.pdf |
| provision |
| type : deny |
| provision |
| type : permit |
| actor |
| role |
| coding |
| system : http://terminology.hl7.org/CodeSystem/v3-ParticipationFunction |
| code : AUCG |
| display : caregiver information receiver |
| reference |
| identifier |
| system : https://fhir.nhs.uk/Id/nhs-number |
| value : 9999999999 |
| purpose |
| system : http://terminology.hl7.org/CodeSystem/v3-ActReason |
| code : TREAT |
| data |
| meaning : instance |
| reference |
| reference : Condition/Condition-MonogenicHearingLoss-Example |
| provision |
| type : permit |
| actor |
| role |
| coding |
| system : http://terminology.hl7.org/CodeSystem/v3-ParticipationType |
| code : IRCP |
| reference |
| reference : Group/Group-GenomicResearchers-Example |
| purpose |
| system : http://terminology.hl7.org/CodeSystem/v3-ActReason |
| code : HRESCH |
| data |
| meaning : related |
| reference |
| reference : DiagnosticReport/DiagnosticReport-AnitaLamberts-Example |
| provision |
| type : permit |
| actor |
| role |
| coding |
| system : http://terminology.hl7.org/CodeSystem/v3-RoleClass |
| code : PROV |
| reference |
| identifier |
| system : https://fhir.nhs.uk/Id/sds-user-id |
| value : 123456789012 |
| purpose |
| system : http://terminology.hl7.org/CodeSystem/v3-ActReason |
| code : TREAT |
| class |
| system : http://hl7.org/fhir/resource-types |
| code : DiagnosticReport |
{
{
}
]
},
{
{
}
]
}
],
}
},
{
}
}
],
],
},
{
}
],
{
{
{
}
]
},
}
}
],
],
{
}
}
]
},
{
{
]
},
}
}
],
],
{
}
}
]
},
{
{
},
}
}
],
],
]
}
]
}
}
</coding>
</scope>
</coding>
</category>
</identifier>
</patient>
</identifier>
</performer>
</identifier>
</organization>
</sourceReference>
<uri value="https://www.england.nhs.uk/wp-content/uploads/2018/05/nhs-england-privacy-notice-v1.77.pdf" />
</policy>
</coding>
</role>
</identifier>
</reference>
</actor>
</purpose>
</reference>
</data>
</provision>
</coding>
</role>
</reference>
</actor>
</purpose>
</reference>
</data>
</provision>
</coding>
</role>
</identifier>
</reference>
</actor>
</purpose>
</class>
</provision>
</provision>
</Consent>