FHIR Genomics Implementation Guide

Notice

Important: This guidance is under active development by NHS England and content may be added or updated on a regular basis.
This Implementation Guide is currently in Draft and SHOULD NOT be used for development or active implementation without express direction from the NHS England Genomics Unit.

Genomic-Patient-Research-Choice

A set of codes use to identify the sources of obtaining the patient consent in participating in the National Genomic Research.

HTML View

This code system https://fhir.nhs.uk/CodeSystem/patient-choice-researchparticipation defines the following codes:

Code	Display
LiketoDiscussLater	Patient would like to discuss at a later date
PatientLackCapacity	Patient lacks capacity and no consultee available
InappropriatetoDiscuss	Inappropriate to have discussion
Other	Other

Table View

CodeSystem.url[0]	https://fhir.nhs.uk/CodeSystem/patient-choice-researchparticipation
CodeSystem.identifier[0].system[0]	https://fhir.nhs.uk/identifier/CodeSystem
CodeSystem.identifier[0].value[0]	patient-choice-researchparticipation
CodeSystem.version[0]	0.1.0
CodeSystem.name[0]	PatientChoiceResearchParticipation
CodeSystem.title[0]	Patient Choice Research Participation
CodeSystem.status[0]	draft
CodeSystem.date[0]	2022-12-21T11:27:52.3231281+00:00
CodeSystem.publisher[0]	NHS Digital
CodeSystem.contact[0].name[0]	NHS Digital
CodeSystem.contact[0].telecom[0].system[0]	email
CodeSystem.contact[0].telecom[0].value[0]	interoperabilityteam@nhs.net
CodeSystem.contact[0].telecom[0].use[0]	work
CodeSystem.description[0]	A set of codes use to identify the sources of obtaining the patient consent in participating in the National Genomic Research.
CodeSystem.copyright[0]	Copyright © 2022 NHS Digital
CodeSystem.caseSensitive[0]	True
CodeSystem.content[0]	complete
CodeSystem.concept[0].code[0]	LiketoDiscussLater
CodeSystem.concept[0].display[0]	Patient would like to discuss at a later date
CodeSystem.concept[1].code[0]	PatientLackCapacity
CodeSystem.concept[1].display[0]	Patient lacks capacity and no consultee available
CodeSystem.concept[2].code[0]	InappropriatetoDiscuss
CodeSystem.concept[2].display[0]	Inappropriate to have discussion
CodeSystem.concept[3].code[0]	Other
CodeSystem.concept[3].display[0]	Other

XML View

<CodeSystem xmlns="http://hl7.org/fhir">
    <url value="https://fhir.nhs.uk/CodeSystem/patient-choice-researchparticipation" />
    <identifier>
        <system value="https://fhir.nhs.uk/identifier/CodeSystem" />
        <value value="patient-choice-researchparticipation" />
    </identifier>
    <version value="0.1.0" />
    <name value="PatientChoiceResearchParticipation" />
    <title value="Patient Choice Research Participation" />
    <status value="draft" />
    <date value="2022-12-21T11:27:52.3231281+00:00" />
    <publisher value="NHS Digital" />
    <contact>
        <name value="NHS Digital" />
        <telecom>
            <system value="email" />
            <value value="interoperabilityteam@nhs.net" />
            <use value="work" />
        </telecom>
    </contact>
    <description value="A set of codes use to identify the sources of obtaining the patient consent in participating in the National Genomic Research." />
    <copyright value="Copyright &#169; 2022 NHS Digital" />
    <caseSensitive value="true" />
    <content value="complete" />
    <concept>
        <code value="LiketoDiscussLater" />
        <display value="Patient would like to discuss at a later date" />
    </concept>
    <concept>
        <code value="PatientLackCapacity" />
        <display value="Patient lacks capacity and no consultee available" />
    </concept>
    <concept>
        <code value="InappropriatetoDiscuss" />
        <display value="Inappropriate to have discussion" />
    </concept>
    <concept>
        <code value="Other" />
        <display value="Other" />
    </concept>
</CodeSystem>

JSON View

{
    "resourceType": "CodeSystem",
    "url": "https://fhir.nhs.uk/CodeSystem/patient-choice-researchparticipation",
    "identifier":  [
        {
            "system": "https://fhir.nhs.uk/identifier/CodeSystem",
            "value": "patient-choice-researchparticipation"
        }
    ],
    "version": "0.1.0",
    "name": "PatientChoiceResearchParticipation",
    "title": "Patient Choice Research Participation",
    "status": "draft",
    "date": "2022-12-21T11:27:52.3231281+00:00",
    "publisher": "NHS Digital",
    "contact":  [
        {
            "name": "NHS Digital",
            "telecom":  [
                {
                    "system": "email",
                    "value": "interoperabilityteam@nhs.net",
                    "use": "work"
                }
            ]
        }
    ],
    "description": "A set of codes use to identify the sources of obtaining the patient consent in participating in the National Genomic Research.",
    "copyright": "Copyright © 2022 NHS Digital",
    "caseSensitive": true,
    "content": "complete",
    "concept":  [
        {
            "code": "LiketoDiscussLater",
            "display": "Patient would like to discuss at a later date"
        },
        {
            "code": "PatientLackCapacity",
            "display": "Patient lacks capacity and no consultee available"
        },
        {
            "code": "InappropriatetoDiscuss",
            "display": "Inappropriate to have discussion"
        },
        {
            "code": "Other",
            "display": "Other"
        }
    ]
}