Profiles Index

This section contains the 24 StructureDefinition profiles and 8 extensions in this IG.

Profiles constrain FHIR R4 base resources to match NPCR Anmälan requirements. Click any profile below to view its full definition, including differential tree, terminology bindings, and constraints.

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Profiles by Clinical Category

Patient & Diagnosis

• NPCRPatient — Patient with Swedish personnummer, auto-populated from Folkbokföring
• NPCRProstateCancerCondition — Prostate cancer diagnosis (ICD-10 C61)
• NPCRCauseOfDeathObservation — Cause of death from Dödsorsaksregistret

Staging (TNM, UICC TNM 8)

• NPCRTStageObservation — Clinical T-stage (T1a–TX)
• NPCRNStageObservation — Clinical N-stage (N0/N1/NX)
• NPCRMStageObservation — Clinical M-stage (M0/M1)

Laboratory & Measurement

• NPCRPSAObservation — PSA value (µg/L, NPU08669)

• NPCRProstateVolumeObservation — Prostate volume by TRUS (ml)

• NPCRWHOGradeObservation — WHO differentiation grade (G1–GX) for cytological diagnoses

Workflow (Referral & Encounter)

• NPCRReferralServiceRequest — Referral (remiss) to urologist
• NPCRSpecialistVisitEncounter — First specialist visit (dual-coded KVÅ + Kvalitetsregisterkod)

Diagnostic Procedures

• NPCRDiagnosisMethodProcedure — Diagnosis method (Histologi / Cytologi / Clinical)
• NPCRMRIProcedure — Prostate MRI examination
• NPCRBiopsyProcedure — Biopsy procedure (approach, technique)

MRI Findings

• NPCRMRIFindingsObservation — Aggregated MRI findings (PI-RADS, EPE, SVI, volume)

Gleason Score Family

Five related profiles for patient-level and source-specific Gleason reporting. Share a reusable 4-component structure (primary / secondary / sum / missingFlag).

• NPCRGleasonScoreObservation — Patient-level Gleason (derivedFrom source observations)
• NPCRGleasonScoreTargetedBiopsyObservation — Gleason from targeted biopsy
• NPCRGleasonScoreSystematicBiopsyObservation — Gleason from systematic biopsy
• NPCRGleasonScoreUnclearBiopsyObservation — Gleason when source not separable
• NPCRGleasonScoreTURPCystoObservation — Gleason from TUR-P or cystoprostatectomy

Biopsy Results

Three source-specific profiles for biopsy metrics. Targeted has 6 lesion-focused components; Systematic and Unclear share 8 aggregate-metric components.

• NPCRBiopsyResultsTargetedBiopsyObservation — Targeted biopsy: cores + longest cancer length + total biopsy length of longest core
• NPCRBiopsyResultsSystematicBiopsyObservation — Systematic biopsy: aggregate metrics
• NPCRBiopsyResultsUnclearBiopsyObservation — Unclear biopsy (same structure as Systematic)

Pathology Report

• NPCRPathologyDiagnosticReport — Aggregates 9 biopsy-derived Observation profiles

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Extensions

Extensions preserve NPCR-specific workflow semantics without breaking standard FHIR element contracts.

Referral

• NPCR_Referral_Receipt_Date — Date referral was received by specialist (D_remissankdatum)

Biopsy Type Flags (shared 0/1/98 pattern)

Three extensions share the NPCRBiopsyFlag ValueSet, representing the NPCR 0/1/98 (Nej / Ja / Uppgift saknas) Listvärden pattern.

• NPCR_Systematic_Biopsy — Systematic biopsies performed? (D_SystBiopsi)
• NPCR_Targeted_Biopsy — MRI-targeted biopsies performed? (D_RiktBiopsi)
• NPCR_Unclear_Biopsy — Both taken but PAD does not separate results (D_OklarBiopsi)

Biopsy Technique

• NPCR_Biopsy_Pathway — Transrectal vs transperineal (D_RektalPerineal)
• NPCR_Povidon_Jod_Used — Povidone-iodine rectal preparation flag (D_PovidonJod)
• NPCR_Targeted_Biopsy_Technique — Cognitive / MR-US fusion / In-bore MRI (D_RiktBioTeknik)

Gleason Reporting Convention

• NPCR_Gleason_Definition_Type — Gleason reporting convention for targeted biopsies (D_RiktGleasTyp)