Licenses
Most psychiatric questionnaires are intellectual property owned by individuals, institutions, or companies. These entities hold the copyright, which grants them control over how the questionnaire can be used, reproduced, or distributed.
Since translations of psychiatric instruments are often subject to their own copyright policies, the implementation of GPDS metadata requires the consent of the respective copyright holders.
It was decided to at least provide the mapping options in the form of FHIR ValueSets for the questionnaires that have proprietary licenses, are not elsewhere online and cannot simply be redistributed. The remaining questionnaires are provided as instance examples in FHIR in this Implementation Guide for the GPDS.
The following license terms apply to the German versions of the selected questionnaires:
| License required for demonstration (shown as ValueSet) | Shown as FHIR instance |
|---|---|
| CASCAP-2 | KINDL |
| AMDP | HAMD-17 |
| MADRS | HAMD-7 |
| CDRS-R | PHQ-9(2) |
| Kidscreen-27 | |
| YMRS | |
| CTQ | |
| BDI-II |
Because of the licensing issues, we have also defined a FHIR profile for questionnaires which can be used for psychiatric instruments, as well as ValueSets with terminology concepts covering specific domains (such as Somatic Symptoms and Sleep).
The artifacts created in this project (FHIR profile, ValueSets, terminology mappings, example instances, analysis scripts and documentation) are licensed under the Creative Commons Attribution 4.0 International License (CC BY 4.0): https://creativecommons.org/licenses/by/4.0/
Suggested attribution: Haffer N et al., German Psychiatric Data Set (GPDS), Berlin Institute of Health at Charité.
Third-party content
This license does not cover third-party content, which remains subject to its own terms:
- SNOMED CT: SNOMED International (use requires an affiliate or national member licence)
- LOINC: Regenstrief Institute, Inc.
- ICD-10-GM: BfArM / WHO
- ICD-11 and ICF: World Health Organization
- NCI Thesaurus: U.S. National Cancer Institute
- Item wording, answer options and scoring rules of the psychiatric instruments: the respective rights holders. Instruments with licensing restrictions are provided as ValueSets only; using the instruments themselves requires permission from the rights holder.