Patient Information

In Patient Information you will find a range of information about the patient, such as demographic data (age, sex) and consent.

PII = Personally identifiable information.

Overview

Filter name in app	Priority	FHIR field (PFS)	Brief description	Example data
Pseudo ID	Must have	Generated by Patient Finder	Unique identifier for the patient. Hash of the patient ID used in the hospital's EHR.	9CA0E6253B202FE3FD227921E6519744C9E00BEB
Patient ID	Must have	Patient.identifier.value	EHR patient ID, assigned by the hospital when patient record is created.
Sex	Must have	Patient.gender	Sex of the patient assigned at birth, not to be confused with gender identity.	M, F / Woman; Man; Unknown
Age	Must have	Derived from Patient.birthDate	Current age of the patient.
Birth year	Must have	Patient.birthDate	Derived from birth date.
Living or deceased	Must have	Patient.deceased[x].deceasedBoolean	Indicates whether the patient is currently alive or deceased according to the hospital records.
Year of death	Must have	Patient.deceased[x].deceasedDateTime	Part of Date at time of death.
Specialism codes	Must have	Derived from other categories	A list of specialism codes that have or have had a treatment relationship with the patient. In the Netherlands this is based on recorded DBC codes. Outside of the Netherlands we use the specialisms attached to admissions, admission periods and/or diagnoses.	Gastroenterology, endocrinology, oncology
Pseudonym	Nice to have	Not yet mapped	Randomly generated pseudonym for patient.
Main care provider	Could have	Derived from Admissions or Orders	The hospital healthcare provider involved in either the most recent admission or the most recent order for the patient. Data filled here depends on what is mapped to Admissions.CareProviderName or Orders.RequestingCareProviderName.
Research consent	Should have	Not yet mapped	Does the patient consent to the secondary use of their data for research purposes or not.	Yes; No; - (= unknown)
Contact consent	Should have	Not yet mapped	Does the patient consent to be contacted regarding participation in research or not.	Yes; No; - (= unknown)
Zip code	Should have	Patient.address.postalCode
Place of birth	Should have	Patient.placeOfBirth (Extension)
Country of birth	Should have	Patient.placeOfBirth (Extension)
Birth date	Must have	Patient.birthDate
Date at time of death	Must have	Patient.deceased[x].deceasedDateTime
Family relationships	Could have	Not yet mapped	If family relations of patients treated at the same hospital are registered in a structured way in the EHR, this information can be mapped to this category. Please note! Currently only mother - child relationships are supported in the app.

Personally Identifiable Information

The PII fields listed below are needed to perform pseudonymisation of free texts. These fields are extracted from the EHR during every ETL. Patient Finder can work with changing data for pseudonymisation, such as a change of address when the patient moves, as long as both the old and new address of the patient stay stored in the EHR db.

The information in these fields are not accessible or available in any way in the application. The information is solely stored in the SQL datawarehouse and is used by the free text pseudonymisation pipeline (NLP).

PII field	Priority	FHIR field (PFS)
Name	Must have	Patient.name.text
Initials	Must have	Not yet mapped
First name	Must have	Patient.name.given
Last name	Must have	Patient.name.family
Address: street name & house number	Must have	Patient.address.line
Address: place of residence (city)	Must have	Patient.address.city
Phone number	Must have	Patient.telecom
Email address	Must have	Not yet mapped
Social security number	Must have	Patient.identifier.value
Insurance number	Must have	Patient.identifier.value
Insurance provider	Must have	Not yet mapped
Name(s) of a family member	Should have	Not yet mapped