Notice
- Important: This guidance is under active development by NHS England and content may be added or updated on a regular basis.
- This Implementation Guide is currently in Draft and SHOULD NOT be used for development or active implementation without express direction from the NHS England Genomics Unit.
QuestionnaireResponse
QuestionnaireResponse-Genomic Testing
Example of a filled RoD Form.
QuestionnaireResponse |
id : NHSDigital-QuestionnaireResponse-Genomics-Example |
questionnaire : https://fhir.nhs.uk/Questionnaire/NHSDigital-Questionnaire-Genomics-Example |
status : completed |
basedOn |
reference : urn:uuid:a40c7ddc-2897-4e3c-bae6-88500e080229 |
subject |
identifier |
system : https://fhir.nhs.uk/Id/nhs-number |
value : 9999999999 |
display : A Patient |
authored : 2022-12-20 |
author |
type : PractitionerRole |
identifier |
system : https://fhir.nhs.uk/Id/sds-role-profile-id |
value : 921600556514 |
source |
type : Patient |
identifier |
system : https://fhir.nhs.uk/Id/nhs-number |
value : 9999999999 |
item |
linkId : patientDetails |
text : Patient Details |
item |
linkId : givenName |
text : First Name |
answer |
value : James |
item |
linkId : familyName |
text : Last Name |
answer |
value : Goldsmith |
item |
linkId : nhs_Number |
text : NHS number (or postcode if not not known) |
answer |
value : 9999999999 |
item |
linkId : birthDate |
text : Date of Birth |
answer |
value : 1980-12-01 |
item |
linkId : declaration4 |
text : Confirmation of Your Genomic Test and Research Choices |
item |
linkId : confirmation |
text : I confirm that I have had the opportunity to discuss information about genomic testing, I agree to the genomic test, and my research choice is indicated below. |
item |
linkId : researchConfirmation1 |
text : I have discussed taking part in the National Genomic Research Library. If your answer to A is NO then please ignore B and sign directly below |
answer |
value : True |
item |
linkId : researchConfirmation2 |
text : I agree that my data and remainder sample may contribute to the National Genomic Research Library |
answer |
value : False |
item |
linkId : isRespondentAttorney |
text : Are you completing this form on behalf of someone? |
answer |
value : False |
item |
linkId : patientValidation |
text : Patient Validation |
item |
linkId : patientNamecombined |
text : Patient Name |
answer |
value : James Goldsmith |
item |
linkId : patientSignature |
text : Signature |
answer |
value : JamesG |
item |
linkId : datePatientCompletedForm |
text : Date |
answer |
value : 2022-12-08 |
item |
linkId : declaration5 |
text : Healthcare professional use only |
item |
linkId : healthcareProfessional |
text : To be completed by the healthcare professional recording the patient’s choices. |
item |
linkId : patientCategory |
text : Patient category |
answer |
value |
system : https://fhir.nhs.uk/CodeSystem/patient-choice-category-genomics |
code : adult-own-choice |
display : Adult(made their own choice) |
item |
linkId : testType |
text : Test type |
answer |
value |
system : https://fhir.nhs.uk/CodeSystem/test-type-genomics |
code : C-WGS |
display : Cancer (paired tumour normal) -WGS |
item |
linkId : remoteConsent |
text : Remote consent, recorded remotely by clinician, no patient signature |
answer |
value : True |
item |
linkId : responsibleClinician |
text : Responsible clinician |
answer |
value : Mathew Arnold |
item |
linkId : patientMRN |
text : Hospital number |
answer |
value : 999999999 |
item |
linkId : healthcareProfessionalName |
text : Healthcare professional name |
answer |
value : Mathew Arnold |
item |
linkId : healthcareProfessionalSignature |
text : Signature |
answer |
value : MathewA |
item |
linkId : datehealthcareProfessionalCompletedForm |
text : Date |
answer |
value : 2022-12-09 |
{ "resourceType": "QuestionnaireResponse", "id": "NHSDigital-QuestionnaireResponse-Genomics-Example", "questionnaire": "https://fhir.nhs.uk/Questionnaire/NHSDigital-Questionnaire-Genomics-Example", "status": "completed", "basedOn": [ { "reference": "urn:uuid:a40c7ddc-2897-4e3c-bae6-88500e080229" } ], "subject": { "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9999999999" }, "display": "A Patient" }, "authored": "2022-12-20", "author": { "type": "PractitionerRole", "identifier": { "system": "https://fhir.nhs.uk/Id/sds-role-profile-id", "value": "921600556514" } }, "source": { "type": "Patient", "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9999999999" } }, "item": [ { "linkId": "patientDetails", "text": "Patient Details", "item": [ { "linkId": "givenName", "text": "First Name", "answer": [ { "valueString": "James" } ] }, { "linkId": "familyName", "text": "Last Name", "answer": [ { "valueString": "Goldsmith" } ] }, { "linkId": "nhs_Number", "text": "NHS number (or postcode if not not known)", "answer": [ { "valueString": "9999999999" } ] }, { "linkId": "birthDate", "text": "Date of Birth", "answer": [ { "valueDate": "1980-12-01" } ] } ] }, { "linkId": "declaration4", "text": "Confirmation of Your Genomic Test and Research Choices", "item": [ { "linkId": "confirmation", "text": "I confirm that I have had the opportunity to discuss information about genomic testing, I agree to the genomic test, and my research choice is indicated below.", "item": [ { "linkId": "researchConfirmation1", "text": "I have discussed taking part in the National Genomic Research Library. If your answer to A is NO then please ignore B and sign directly below", "answer": [ { "valueBoolean": true } ] }, { "linkId": "researchConfirmation2", "text": "I agree that my data and remainder sample may contribute to the National Genomic Research Library", "answer": [ { "valueBoolean": false } ] } ] } ] }, { "linkId": "isRespondentAttorney", "text": "Are you completing this form on behalf of someone?", "answer": [ { "valueBoolean": false } ] }, { "linkId": "patientValidation", "text": "Patient Validation", "item": [ { "linkId": "patientNamecombined", "text": "Patient Name", "answer": [ { "valueString": "James Goldsmith" } ] }, { "linkId": "patientSignature", "text": "Signature", "answer": [ { "valueString": "JamesG" } ] }, { "linkId": "datePatientCompletedForm", "text": "Date", "answer": [ { "valueDateTime": "2022-12-08" } ] } ] }, { "linkId": "declaration5", "text": "Healthcare professional use only", "item": [ { "linkId": "healthcareProfessional", "text": "To be completed by the healthcare professional recording the patient’s choices.", "item": [ { "linkId": "patientCategory", "text": "Patient category", "answer": [ { "valueCoding": { "system": "https://fhir.nhs.uk/CodeSystem/patient-choice-category-genomics", "code": "adult-own-choice", "display": "Adult(made their own choice)" } } ] }, { "linkId": "testType", "text": "Test type", "answer": [ { "valueCoding": { "system": "https://fhir.nhs.uk/CodeSystem/test-type-genomics", "code": "C-WGS", "display": "Cancer (paired tumour normal) -WGS" } } ] }, { "linkId": "remoteConsent", "text": "Remote consent, recorded remotely by clinician, no patient signature", "answer": [ { "valueBoolean": true } ] }, { "linkId": "responsibleClinician", "text": "Responsible clinician", "answer": [ { "valueString": "Mathew Arnold" } ] }, { "linkId": "patientMRN", "text": "Hospital number", "answer": [ { "valueString": "999999999" } ] }, { "linkId": "healthcareProfessionalName", "text": "Healthcare professional name", "answer": [ { "valueString": "Mathew Arnold" } ] }, { "linkId": "healthcareProfessionalSignature", "text": "Signature", "answer": [ { "valueString": "MathewA" } ] }, { "linkId": "datehealthcareProfessionalCompletedForm", "text": "Date", "answer": [ { "valueDateTime": "2022-12-09" } ] } ] } ] } ] }
<QuestionnaireResponse xmlns="http://hl7.org/fhir"> <id value="NHSDigital-QuestionnaireResponse-Genomics-Example" /> <basedOn> <reference value="urn:uuid:a40c7ddc-2897-4e3c-bae6-88500e080229" /> </basedOn> <questionnaire value="https://fhir.nhs.uk/Questionnaire/NHSDigital-Questionnaire-Genomics-Example" /> <status value="completed" /> <subject> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9999999999" /> </identifier> <display value="A Patient" /> </subject> <authored value="2022-12-20" /> <author> <type value="PractitionerRole" /> <identifier> <system value="https://fhir.nhs.uk/Id/sds-role-profile-id" /> <value value="921600556514" /> </identifier> </author> <source> <type value="Patient" /> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9999999999" /> </identifier> </source> <item> <linkId value="patientDetails" /> <text value="Patient Details" /> <item> <linkId value="givenName" /> <text value="First Name" /> <answer> <valueString value="James" /> </answer> </item> <item> <linkId value="familyName" /> <text value="Last Name" /> <answer> <valueString value="Goldsmith" /> </answer> </item> <item> <linkId value="nhs_Number" /> <text value="NHS number (or postcode if not not known)" /> <answer> <valueString value="9999999999" /> </answer> </item> <item> <linkId value="birthDate" /> <text value="Date of Birth" /> <answer> <valueDate value="1980-12-01" /> </answer> </item> </item> <item> <linkId value="declaration4" /> <text value="Confirmation of Your Genomic Test and Research Choices" /> <item> <linkId value="confirmation" /> <text value="I confirm that I have had the opportunity to discuss information about genomic testing, I agree to the genomic test, and my research choice is indicated below." /> <item> <linkId value="researchConfirmation1" /> <text value="I have discussed taking part in the National Genomic Research Library. If your answer to A is NO then please ignore B and sign directly below" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="researchConfirmation2" /> <text value="I agree that my data and remainder sample may contribute to the National Genomic Research Library" /> <answer> <valueBoolean value="false" /> </answer> </item> </item> </item> <item> <linkId value="isRespondentAttorney" /> <text value="Are you completing this form on behalf of someone?" /> <answer> <valueBoolean value="false" /> </answer> </item> <item> <linkId value="patientValidation" /> <text value="Patient Validation" /> <item> <linkId value="patientNamecombined" /> <text value="Patient Name" /> <answer> <valueString value="James Goldsmith" /> </answer> </item> <item> <linkId value="patientSignature" /> <text value="Signature" /> <answer> <valueString value="JamesG" /> </answer> </item> <item> <linkId value="datePatientCompletedForm" /> <text value="Date" /> <answer> <valueDateTime value="2022-12-08" /> </answer> </item> </item> <item> <linkId value="declaration5" /> <text value="Healthcare professional use only" /> <item> <linkId value="healthcareProfessional" /> <text value="To be completed by the healthcare professional recording the patient’s choices." /> <item> <linkId value="patientCategory" /> <text value="Patient category" /> <answer> <valueCoding> <system value="https://fhir.nhs.uk/CodeSystem/patient-choice-category-genomics" /> <code value="adult-own-choice" /> <display value="Adult(made their own choice)" /> </valueCoding> </answer> </item> <item> <linkId value="testType" /> <text value="Test type" /> <answer> <valueCoding> <system value="https://fhir.nhs.uk/CodeSystem/test-type-genomics" /> <code value="C-WGS" /> <display value="Cancer (paired tumour normal) -WGS" /> </valueCoding> </answer> </item> <item> <linkId value="remoteConsent" /> <text value="Remote consent, recorded remotely by clinician, no patient signature" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="responsibleClinician" /> <text value="Responsible clinician" /> <answer> <valueString value="Mathew Arnold" /> </answer> </item> <item> <linkId value="patientMRN" /> <text value="Hospital number" /> <answer> <valueString value="999999999" /> </answer> </item> <item> <linkId value="healthcareProfessionalName" /> <text value="Healthcare professional name" /> <answer> <valueString value="Mathew Arnold" /> </answer> </item> <item> <linkId value="healthcareProfessionalSignature" /> <text value="Signature" /> <answer> <valueString value="MathewA" /> </answer> </item> <item> <linkId value="datehealthcareProfessionalCompletedForm" /> <text value="Date" /> <answer> <valueDateTime value="2022-12-09" /> </answer> </item> </item> </item> </QuestionnaireResponse>
QuestionnaireResponse-RoD-ConsulteeDeclarationForm-Example
Example of a filled Consultee Declaration Form.
QuestionnaireResponse |
id : QuestionnaireResponse-RoD-ConsulteeDeclarationForm-Example |
questionnaire : https://fhir.nhs.uk/Questionnaire/Questionnaire-RoD-ConsulteeDeclarationForm-Example |
status : completed |
basedOn |
reference : ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example |
subject |
identifier |
system : https://fhir.nhs.uk/Id/nhs-number |
value : 9449307539 |
display : A Patient |
authored : 2024-01-25 |
author |
type : PractitionerRole |
identifier |
system : https://fhir.nhs.uk/Id/sds-role-profile-id |
value : 999999999999 |
source |
type : PractitionerRole |
identifier |
system : https://fhir.nhs.uk/Id/sds-role-profile-id |
value : 999999999999 |
item |
linkId : patientDetails |
text : Patient Details |
item |
linkId : givenName |
text : First Name |
answer |
value : Phoebe |
item |
linkId : familyName |
text : Last Name |
answer |
value : Smitham |
item |
linkId : nhs_Number |
text : NHS number (or postcode if not not known) |
answer |
value : 9449307539 |
item |
linkId : birthDate |
text : Date of Birth |
answer |
value : 2013-09-27 |
item |
linkId : confirmationOfDecision |
text : Confirmation of decision |
item |
linkId : confirmation |
text : I confirm that I have read and had the opportunity to discuss information about acting as a consultee for the person lacking capacity. My research choices are indicated below. |
item |
linkId : choiceConfirmation1 |
text : I have been consulted about this person’s participation in the National Genomic Research Library |
answer |
value : True |
item |
linkId : choiceConfirmation2 |
text : I am willing to accept the role of consultee for this person |
answer |
value : True |
item |
linkId : isRemoteConsentTrue |
text : Consent obtained remotely, no consultee signature |
answer |
value : False |
item |
linkId : consulteeValidation |
text : Consultee Validation |
item |
linkId : consulteeNamecombined |
text : Your Name(i.e, the Consultee) |
answer |
value : James Goldsmith |
item |
linkId : dateConsulteeCompletedForm |
text : Date |
answer |
value : 2023-09-15 |
item |
linkId : consulteeSignature |
text : Signature |
answer |
value : JamesG |
item |
linkId : healthcareProfessionalValidation |
text : Healthcare professional use only |
item |
linkId : healthcareProfessional |
text : To be completed by the healthcare professional recording the consultee’s choices. |
item |
linkId : healthcareProfessionalName |
text : Healthcare professional name |
answer |
value : Mathew Arnold |
item |
linkId : healthcareProfessionalSignature |
text : Signature |
answer |
value : MathewA |
item |
linkId : datehealthcareProfessionalCompletedForm |
text : Date |
answer |
value : 2023-09-15 |
{ "resourceType": "QuestionnaireResponse", "id": "QuestionnaireResponse-RoD-ConsulteeDeclarationForm-Example", "questionnaire": "https://fhir.nhs.uk/Questionnaire/Questionnaire-RoD-ConsulteeDeclarationForm-Example", "status": "completed", "basedOn": [ { "reference": "ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example" } ], "subject": { "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9449307539" }, "display": "A Patient" }, "authored": "2024-01-25", "author": { "type": "PractitionerRole", "identifier": { "system": "https://fhir.nhs.uk/Id/sds-role-profile-id", "value": "999999999999" } }, "source": { "type": "PractitionerRole", "identifier": { "system": "https://fhir.nhs.uk/Id/sds-role-profile-id", "value": "999999999999" } }, "item": [ { "linkId": "patientDetails", "text": "Patient Details", "item": [ { "linkId": "givenName", "text": "First Name", "answer": [ { "valueString": "Phoebe" } ] }, { "linkId": "familyName", "text": "Last Name", "answer": [ { "valueString": "Smitham" } ] }, { "linkId": "nhs_Number", "text": "NHS number (or postcode if not not known)", "answer": [ { "valueString": "9449307539" } ] }, { "linkId": "birthDate", "text": "Date of Birth", "answer": [ { "valueDate": "2013-09-27" } ] } ] }, { "linkId": "confirmationOfDecision", "text": "Confirmation of decision", "item": [ { "linkId": "confirmation", "text": "I confirm that I have read and had the opportunity to discuss information about acting as a consultee for the person lacking capacity. My research choices are indicated below.", "item": [ { "linkId": "choiceConfirmation1", "text": "I have been consulted about this person’s participation in the National Genomic Research Library", "answer": [ { "valueBoolean": true } ] }, { "linkId": "choiceConfirmation2", "text": "I am willing to accept the role of consultee for this person", "answer": [ { "valueBoolean": true } ] } ] } ] }, { "linkId": "isRemoteConsentTrue", "text": "Consent obtained remotely, no consultee signature", "answer": [ { "valueBoolean": false } ] }, { "linkId": "consulteeValidation", "text": "Consultee Validation", "item": [ { "linkId": "consulteeNamecombined", "text": "Your Name(i.e, the Consultee)", "answer": [ { "valueString": "James Goldsmith" } ] }, { "linkId": "dateConsulteeCompletedForm", "text": "Date", "answer": [ { "valueDateTime": "2023-09-15" } ] }, { "linkId": "consulteeSignature", "text": "Signature", "answer": [ { "valueString": "JamesG" } ] } ] }, { "linkId": "healthcareProfessionalValidation", "text": "Healthcare professional use only", "item": [ { "linkId": "healthcareProfessional", "text": "To be completed by the healthcare professional recording the consultee’s choices.", "item": [ { "linkId": "healthcareProfessionalName", "text": "Healthcare professional name", "answer": [ { "valueString": "Mathew Arnold" } ] }, { "linkId": "healthcareProfessionalSignature", "text": "Signature", "answer": [ { "valueString": "MathewA" } ] }, { "linkId": "datehealthcareProfessionalCompletedForm", "text": "Date", "answer": [ { "valueDateTime": "2023-09-15" } ] } ] } ] } ] }
<QuestionnaireResponse xmlns="http://hl7.org/fhir"> <id value="QuestionnaireResponse-RoD-ConsulteeDeclarationForm-Example" /> <basedOn> <reference value="ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example" /> </basedOn> <questionnaire value="https://fhir.nhs.uk/Questionnaire/Questionnaire-RoD-ConsulteeDeclarationForm-Example" /> <status value="completed" /> <subject> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9449307539" /> </identifier> <display value="A Patient" /> </subject> <authored value="2024-01-25" /> <author> <type value="PractitionerRole" /> <identifier> <system value="https://fhir.nhs.uk/Id/sds-role-profile-id" /> <value value="999999999999" /> </identifier> </author> <source> <type value="PractitionerRole" /> <identifier> <system value="https://fhir.nhs.uk/Id/sds-role-profile-id" /> <value value="999999999999" /> </identifier> </source> <item> <linkId value="patientDetails" /> <text value="Patient Details" /> <item> <linkId value="givenName" /> <text value="First Name" /> <answer> <valueString value="Phoebe" /> </answer> </item> <item> <linkId value="familyName" /> <text value="Last Name" /> <answer> <valueString value="Smitham" /> </answer> </item> <item> <linkId value="nhs_Number" /> <text value="NHS number (or postcode if not not known)" /> <answer> <valueString value="9449307539" /> </answer> </item> <item> <linkId value="birthDate" /> <text value="Date of Birth" /> <answer> <valueDate value="2013-09-27" /> </answer> </item> </item> <item> <linkId value="confirmationOfDecision" /> <text value="Confirmation of decision" /> <item> <linkId value="confirmation" /> <text value="I confirm that I have read and had the opportunity to discuss information about acting as a consultee for the person lacking capacity. My research choices are indicated below." /> <item> <linkId value="choiceConfirmation1" /> <text value="I have been consulted about this person’s participation in the National Genomic Research Library" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="choiceConfirmation2" /> <text value="I am willing to accept the role of consultee for this person" /> <answer> <valueBoolean value="true" /> </answer> </item> </item> </item> <item> <linkId value="isRemoteConsentTrue" /> <text value="Consent obtained remotely, no consultee signature" /> <answer> <valueBoolean value="false" /> </answer> </item> <item> <linkId value="consulteeValidation" /> <text value="Consultee Validation" /> <item> <linkId value="consulteeNamecombined" /> <text value="Your Name(i.e, the Consultee)" /> <answer> <valueString value="James Goldsmith" /> </answer> </item> <item> <linkId value="dateConsulteeCompletedForm" /> <text value="Date" /> <answer> <valueDateTime value="2023-09-15" /> </answer> </item> <item> <linkId value="consulteeSignature" /> <text value="Signature" /> <answer> <valueString value="JamesG" /> </answer> </item> </item> <item> <linkId value="healthcareProfessionalValidation" /> <text value="Healthcare professional use only" /> <item> <linkId value="healthcareProfessional" /> <text value="To be completed by the healthcare professional recording the consultee’s choices." /> <item> <linkId value="healthcareProfessionalName" /> <text value="Healthcare professional name" /> <answer> <valueString value="Mathew Arnold" /> </answer> </item> <item> <linkId value="healthcareProfessionalSignature" /> <text value="Signature" /> <answer> <valueString value="MathewA" /> </answer> </item> <item> <linkId value="datehealthcareProfessionalCompletedForm" /> <text value="Date" /> <answer> <valueDateTime value="2023-09-15" /> </answer> </item> </item> </item> </QuestionnaireResponse>
QuestionnaireResponse-RoD-Example
Example of a filled RoD Form.
QuestionnaireResponse |
id : QuestionnaireResponse-RoD-Example |
questionnaire : https://fhir.nhs.uk/Questionnaire/NHSDigital-Questionnaire-Genomics-Example |
status : completed |
subject |
reference : Patient/Patient-LindsaySorrell-Example |
identifier |
system : https://fhir.nhs.uk/Id/nhs-number |
value : 9449307946 |
authored : 2023-08-21 |
author |
identifier |
system : https://fhir.nhs.uk/Id/sds-role-profile-id |
value : 9999999996 |
display : Test AHP |
source |
reference : Patient/Patient-LindsaySorrell-Example |
identifier |
system : https://fhir.nhs.uk/Id/nhs-number |
value : 9449307946 |
item |
linkId : patientDetails |
text : Patient Details |
item |
linkId : givenName |
text : First Name |
answer |
value : Lindsay |
item |
linkId : familyName |
text : Last Name |
answer |
value : Sorrell |
item |
linkId : nhs_Number |
text : NHS number (or postcode if not not known) |
answer |
value : 944 9307 946 |
item |
linkId : birthDate |
text : Date of Birth |
answer |
value : 2011-04-12 |
item |
linkId : declaration4 |
text : Confirmation of Your Genomic Test and Research Choices |
item |
linkId : confirmation |
text : I confirm that I have had the opportunity to discuss information about genomic testing, I agree to the genomic test, and my research choice is indicated below. |
item |
linkId : researchConfirmation1 |
text : I have discussed taking part in the National Genomic Research Library. If your answer to A is NO then please ignore B and sign directly below |
answer |
value : True |
item |
linkId : researchConfirmation2 |
text : I agree that my data and remainder sample may contribute to the National Genomic Research Library |
answer |
value : True |
item |
linkId : isRespondentAttorney |
text : Are you completing this form on behalf of someone? |
answer |
value : False |
item |
linkId : patientValidation |
text : Patient Validation |
item |
linkId : patientNamecombined |
text : Patient Name |
answer |
value : Mr. Lindsay Sorrell |
item |
linkId : patientSignature |
text : Signature |
answer |
value : NA |
item |
linkId : datePatientCompletedForm |
text : Date |
answer |
value : 2023-08-21 |
item |
linkId : declaration5 |
text : Healthcare professional use only |
item |
linkId : healthcareProfessional |
text : To be completed by the healthcare professional recording the patient’s choices. |
item |
linkId : patientCategory |
text : Patient category |
answer |
value |
system : https://fhir.nhs.uk/CodeSystem/patient-choice-category-genomics |
code : adult-own-choice |
display : Adult(made their own choice) |
item |
linkId : testType |
text : Test type |
answer |
value |
system : https://fhir.nhs.uk/CodeSystem/test-type-genomics |
code : RID-WGS |
display : Rare and Inherited Diseases - WGS |
item |
linkId : remoteConsent |
text : Remote consent, recorded remotely by clinician, no patient signature |
answer |
value : True |
item |
linkId : responsibleClinician |
text : Responsible clinician |
answer |
value : Dr Hazel Smith |
item |
linkId : patientMRN |
text : Hospital number |
answer |
value : RWT14789 |
item |
linkId : healthcareProfessionalName |
text : Healthcare professional name |
answer |
value : Test AHP |
item |
linkId : healthcareProfessionalSignature |
text : Signature |
answer |
value : Dr. Hazel Smith |
item |
linkId : datehealthcareProfessionalCompletedForm |
text : Date |
answer |
value : 2023-08-21 |
{ "resourceType": "QuestionnaireResponse", "id": "QuestionnaireResponse-RoD-Example", "questionnaire": "https://fhir.nhs.uk/Questionnaire/NHSDigital-Questionnaire-Genomics-Example", "status": "completed", "subject": { "reference": "Patient/Patient-LindsaySorrell-Example", "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9449307946" } }, "authored": "2023-08-21", "author": { "identifier": { "system": "https://fhir.nhs.uk/Id/sds-role-profile-id", "value": "9999999996" }, "display": "Test AHP" }, "source": { "reference": "Patient/Patient-LindsaySorrell-Example", "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9449307946" } }, "item": [ { "linkId": "patientDetails", "text": "Patient Details", "item": [ { "linkId": "givenName", "text": "First Name", "answer": [ { "valueString": "Lindsay" } ] }, { "linkId": "familyName", "text": "Last Name", "answer": [ { "valueString": "Sorrell" } ] }, { "linkId": "nhs_Number", "text": "NHS number (or postcode if not not known)", "answer": [ { "valueString": "944 9307 946" } ] }, { "linkId": "birthDate", "text": "Date of Birth", "answer": [ { "valueDate": "2011-04-12" } ] } ] }, { "linkId": "declaration4", "text": "Confirmation of Your Genomic Test and Research Choices", "item": [ { "linkId": "confirmation", "text": "I confirm that I have had the opportunity to discuss information about genomic testing, I agree to the genomic test, and my research choice is indicated below.", "item": [ { "linkId": "researchConfirmation1", "text": "I have discussed taking part in the National Genomic Research Library. If your answer to A is NO then please ignore B and sign directly below", "answer": [ { "valueBoolean": true } ] }, { "linkId": "researchConfirmation2", "text": "I agree that my data and remainder sample may contribute to the National Genomic Research Library", "answer": [ { "valueBoolean": true } ] } ] } ] }, { "linkId": "isRespondentAttorney", "text": "Are you completing this form on behalf of someone?", "answer": [ { "valueBoolean": false } ] }, { "linkId": "patientValidation", "text": "Patient Validation", "item": [ { "linkId": "patientNamecombined", "text": "Patient Name", "answer": [ { "valueString": "Mr. Lindsay Sorrell" } ] }, { "linkId": "patientSignature", "text": "Signature", "answer": [ { "valueString": "NA" } ] }, { "linkId": "datePatientCompletedForm", "text": "Date", "answer": [ { "valueDateTime": "2023-08-21" } ] } ] }, { "linkId": "declaration5", "text": "Healthcare professional use only", "item": [ { "linkId": "healthcareProfessional", "text": "To be completed by the healthcare professional recording the patient’s choices.", "item": [ { "linkId": "patientCategory", "text": "Patient category", "answer": [ { "valueCoding": { "system": "https://fhir.nhs.uk/CodeSystem/patient-choice-category-genomics", "code": "adult-own-choice", "display": "Adult(made their own choice)" } } ] }, { "linkId": "testType", "text": "Test type", "answer": [ { "valueCoding": { "system": "https://fhir.nhs.uk/CodeSystem/test-type-genomics", "code": "RID-WGS", "display": "Rare and Inherited Diseases - WGS" } } ] }, { "linkId": "remoteConsent", "text": "Remote consent, recorded remotely by clinician, no patient signature", "answer": [ { "valueBoolean": true } ] }, { "linkId": "responsibleClinician", "text": "Responsible clinician", "answer": [ { "valueString": "Dr Hazel Smith" } ] }, { "linkId": "patientMRN", "text": "Hospital number", "answer": [ { "valueString": "RWT14789" } ] }, { "linkId": "healthcareProfessionalName", "text": "Healthcare professional name", "answer": [ { "valueString": "Test AHP" } ] }, { "linkId": "healthcareProfessionalSignature", "text": "Signature", "answer": [ { "valueString": "Dr. Hazel Smith" } ] }, { "linkId": "datehealthcareProfessionalCompletedForm", "text": "Date", "answer": [ { "valueDateTime": "2023-08-21" } ] } ] } ] } ] }
<QuestionnaireResponse xmlns="http://hl7.org/fhir"> <id value="QuestionnaireResponse-RoD-Example" /> <questionnaire value="https://fhir.nhs.uk/Questionnaire/NHSDigital-Questionnaire-Genomics-Example" /> <status value="completed" /> <subject> <reference value="Patient/Patient-LindsaySorrell-Example" /> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9449307946" /> </identifier> </subject> <authored value="2023-08-21" /> <author> <identifier> <system value="https://fhir.nhs.uk/Id/sds-role-profile-id" /> <value value="9999999996" /> </identifier> <display value="Test AHP" /> </author> <source> <reference value="Patient/Patient-LindsaySorrell-Example" /> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9449307946" /> </identifier> </source> <item> <linkId value="patientDetails" /> <text value="Patient Details" /> <item> <linkId value="givenName" /> <text value="First Name" /> <answer> <valueString value="Lindsay" /> </answer> </item> <item> <linkId value="familyName" /> <text value="Last Name" /> <answer> <valueString value="Sorrell" /> </answer> </item> <item> <linkId value="nhs_Number" /> <text value="NHS number (or postcode if not not known)" /> <answer> <valueString value="944 9307 946" /> </answer> </item> <item> <linkId value="birthDate" /> <text value="Date of Birth" /> <answer> <valueDate value="2011-04-12" /> </answer> </item> </item> <item> <linkId value="declaration4" /> <text value="Confirmation of Your Genomic Test and Research Choices" /> <item> <linkId value="confirmation" /> <text value="I confirm that I have had the opportunity to discuss information about genomic testing, I agree to the genomic test, and my research choice is indicated below." /> <item> <linkId value="researchConfirmation1" /> <text value="I have discussed taking part in the National Genomic Research Library. If your answer to A is NO then please ignore B and sign directly below" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="researchConfirmation2" /> <text value="I agree that my data and remainder sample may contribute to the National Genomic Research Library" /> <answer> <valueBoolean value="true" /> </answer> </item> </item> </item> <item> <linkId value="isRespondentAttorney" /> <text value="Are you completing this form on behalf of someone?" /> <answer> <valueBoolean value="false" /> </answer> </item> <item> <linkId value="patientValidation" /> <text value="Patient Validation" /> <item> <linkId value="patientNamecombined" /> <text value="Patient Name" /> <answer> <valueString value="Mr. Lindsay Sorrell" /> </answer> </item> <item> <linkId value="patientSignature" /> <text value="Signature" /> <answer> <valueString value="NA" /> </answer> </item> <item> <linkId value="datePatientCompletedForm" /> <text value="Date" /> <answer> <valueDateTime value="2023-08-21" /> </answer> </item> </item> <item> <linkId value="declaration5" /> <text value="Healthcare professional use only" /> <item> <linkId value="healthcareProfessional" /> <text value="To be completed by the healthcare professional recording the patient’s choices." /> <item> <linkId value="patientCategory" /> <text value="Patient category" /> <answer> <valueCoding> <system value="https://fhir.nhs.uk/CodeSystem/patient-choice-category-genomics" /> <code value="adult-own-choice" /> <display value="Adult(made their own choice)" /> </valueCoding> </answer> </item> <item> <linkId value="testType" /> <text value="Test type" /> <answer> <valueCoding> <system value="https://fhir.nhs.uk/CodeSystem/test-type-genomics" /> <code value="RID-WGS" /> <display value="Rare and Inherited Diseases - WGS" /> </valueCoding> </answer> </item> <item> <linkId value="remoteConsent" /> <text value="Remote consent, recorded remotely by clinician, no patient signature" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="responsibleClinician" /> <text value="Responsible clinician" /> <answer> <valueString value="Dr Hazel Smith" /> </answer> </item> <item> <linkId value="patientMRN" /> <text value="Hospital number" /> <answer> <valueString value="RWT14789" /> </answer> </item> <item> <linkId value="healthcareProfessionalName" /> <text value="Healthcare professional name" /> <answer> <valueString value="Test AHP" /> </answer> </item> <item> <linkId value="healthcareProfessionalSignature" /> <text value="Signature" /> <answer> <valueString value="Dr. Hazel Smith" /> </answer> </item> <item> <linkId value="datehealthcareProfessionalCompletedForm" /> <text value="Date" /> <answer> <valueDateTime value="2023-08-21" /> </answer> </item> </item> </item> </QuestionnaireResponse>
QuestionnaireResponse-RoD-PheobeSmithamCDForn-Example
Example of a filled Consultee Declaration Form.
QuestionnaireResponse |
id : QuestionnaireResponse-RoD-PheobeSmithamCDForn-Example |
questionnaire : https://fhir.nhs.uk/Questionnaire/Questionnaire-RoD-ConsulteeDeclarationForm-Example |
status : completed |
basedOn |
reference : ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example |
subject |
reference : Patient/Patient-PheobeSmitham-Example |
identifier |
system : https://fhir.nhs.uk/Id/nhs-number |
value : 9449307539 |
display : A Patient |
authored : 2023-09-15 |
author |
type : PractitionerRole |
identifier |
system : https://fhir.nhs.uk/Id/sds-role-profile-id |
value : 999999999999 |
source |
type : RelatedPerson |
reference : RelatedPerson/RelatedPerson-AliceSmithamProbandMother-Example |
identifier |
system : https://fhir.nhs.uk/Id/nhs-number |
value : 9449307246 |
item |
linkId : patientDetails |
text : Patient Details |
item |
linkId : givenName |
text : First Name |
answer |
value : Phoebe |
item |
linkId : familyName |
text : Last Name |
answer |
value : Smitham |
item |
linkId : nhs_Number |
text : NHS number (or postcode if not not known) |
answer |
value : 9449307539 |
item |
linkId : birthDate |
text : Date of Birth |
answer |
value : 2013-09-27 |
item |
linkId : confirmationOfDecision |
text : Confirmation of decision |
item |
linkId : confirmation |
text : I confirm that I have read and had the opportunity to discuss information about acting as a consultee for the person lacking capacity. My research choices are indicated below. |
item |
linkId : choiceConfirmation1 |
text : I have been consulted about this person’s participation in the National Genomic Research Library |
answer |
value : True |
item |
linkId : choiceConfirmation2 |
text : I am willing to accept the role of consultee for this person |
answer |
value : True |
item |
linkId : isRemoteConsentTrue |
text : Consent obtained remotely, no consultee signature |
answer |
value : True |
item |
item |
linkId : consulteeNamecombined |
answer |
value : Alice Smith |
item |
linkId : dateConsulteeCompletedForm |
answer |
value : 2023-09-15 |
linkId : consulteeValidation |
text : Consultee Validation |
item |
linkId : healthcareProfessionalValidation |
text : Healthcare professional use only |
item |
linkId : healthcareProfessional |
text : To be completed by the healthcare professional recording the consultee’s choices. |
item |
linkId : healthcareProfessionalName |
text : Healthcare professional name |
answer |
value : Dr. Eugene Smith |
item |
linkId : healthcareProfessionalSignature |
text : Signature |
answer |
value : EugeneSmith |
item |
linkId : datehealthcareProfessionalCompletedForm |
text : Date |
answer |
value : 2023-09-15 |
{ "resourceType": "QuestionnaireResponse", "id": "QuestionnaireResponse-RoD-PheobeSmithamCDForn-Example", "questionnaire": "https://fhir.nhs.uk/Questionnaire/Questionnaire-RoD-ConsulteeDeclarationForm-Example", "status": "completed", "basedOn": [ { "reference": "ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example" } ], "subject": { "reference": "Patient/Patient-PheobeSmitham-Example", "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9449307539" }, "display": "A Patient" }, "authored": "2023-09-15", "author": { "type": "PractitionerRole", "identifier": { "system": "https://fhir.nhs.uk/Id/sds-role-profile-id", "value": "999999999999" } }, "source": { "type": "RelatedPerson", "reference": "RelatedPerson/RelatedPerson-AliceSmithamProbandMother-Example", "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9449307246" } }, "item": [ { "linkId": "patientDetails", "text": "Patient Details", "item": [ { "linkId": "givenName", "text": "First Name", "answer": [ { "valueString": "Phoebe" } ] }, { "linkId": "familyName", "text": "Last Name", "answer": [ { "valueString": "Smitham" } ] }, { "linkId": "nhs_Number", "text": "NHS number (or postcode if not not known)", "answer": [ { "valueString": "9449307539" } ] }, { "linkId": "birthDate", "text": "Date of Birth", "answer": [ { "valueDate": "2013-09-27" } ] } ] }, { "linkId": "confirmationOfDecision", "text": "Confirmation of decision", "item": [ { "linkId": "confirmation", "text": "I confirm that I have read and had the opportunity to discuss information about acting as a consultee for the person lacking capacity. My research choices are indicated below.", "item": [ { "linkId": "choiceConfirmation1", "text": "I have been consulted about this person’s participation in the National Genomic Research Library", "answer": [ { "valueBoolean": true } ] }, { "linkId": "choiceConfirmation2", "text": "I am willing to accept the role of consultee for this person", "answer": [ { "valueBoolean": true } ] } ] } ] }, { "linkId": "isRemoteConsentTrue", "text": "Consent obtained remotely, no consultee signature", "answer": [ { "valueBoolean": true } ] }, { "item": [ { "linkId": "consulteeNamecombined", "answer": [ { "valueString": "Alice Smith" } ] }, { "linkId": "dateConsulteeCompletedForm", "answer": [ { "valueDateTime": "2023-09-15" } ] } ], "linkId": "consulteeValidation", "text": "Consultee Validation" }, { "linkId": "healthcareProfessionalValidation", "text": "Healthcare professional use only", "item": [ { "linkId": "healthcareProfessional", "text": "To be completed by the healthcare professional recording the consultee’s choices.", "item": [ { "linkId": "healthcareProfessionalName", "text": "Healthcare professional name", "answer": [ { "valueString": "Dr. Eugene Smith" } ] }, { "linkId": "healthcareProfessionalSignature", "text": "Signature", "answer": [ { "valueString": "EugeneSmith" } ] }, { "linkId": "datehealthcareProfessionalCompletedForm", "text": "Date", "answer": [ { "valueDateTime": "2023-09-15" } ] } ] } ] } ] }
<QuestionnaireResponse xmlns="http://hl7.org/fhir"> <id value="QuestionnaireResponse-RoD-PheobeSmithamCDForn-Example" /> <basedOn> <reference value="ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example" /> </basedOn> <questionnaire value="https://fhir.nhs.uk/Questionnaire/Questionnaire-RoD-ConsulteeDeclarationForm-Example" /> <status value="completed" /> <subject> <reference value="Patient/Patient-PheobeSmitham-Example" /> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9449307539" /> </identifier> <display value="A Patient" /> </subject> <authored value="2023-09-15" /> <author> <type value="PractitionerRole" /> <identifier> <system value="https://fhir.nhs.uk/Id/sds-role-profile-id" /> <value value="999999999999" /> </identifier> </author> <source> <reference value="RelatedPerson/RelatedPerson-AliceSmithamProbandMother-Example" /> <type value="RelatedPerson" /> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9449307246" /> </identifier> </source> <item> <linkId value="patientDetails" /> <text value="Patient Details" /> <item> <linkId value="givenName" /> <text value="First Name" /> <answer> <valueString value="Phoebe" /> </answer> </item> <item> <linkId value="familyName" /> <text value="Last Name" /> <answer> <valueString value="Smitham" /> </answer> </item> <item> <linkId value="nhs_Number" /> <text value="NHS number (or postcode if not not known)" /> <answer> <valueString value="9449307539" /> </answer> </item> <item> <linkId value="birthDate" /> <text value="Date of Birth" /> <answer> <valueDate value="2013-09-27" /> </answer> </item> </item> <item> <linkId value="confirmationOfDecision" /> <text value="Confirmation of decision" /> <item> <linkId value="confirmation" /> <text value="I confirm that I have read and had the opportunity to discuss information about acting as a consultee for the person lacking capacity. My research choices are indicated below." /> <item> <linkId value="choiceConfirmation1" /> <text value="I have been consulted about this person’s participation in the National Genomic Research Library" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="choiceConfirmation2" /> <text value="I am willing to accept the role of consultee for this person" /> <answer> <valueBoolean value="true" /> </answer> </item> </item> </item> <item> <linkId value="isRemoteConsentTrue" /> <text value="Consent obtained remotely, no consultee signature" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="consulteeValidation" /> <text value="Consultee Validation" /> <item> <linkId value="consulteeNamecombined" /> <answer> <valueString value="Alice Smith" /> </answer> </item> <item> <linkId value="dateConsulteeCompletedForm" /> <answer> <valueDateTime value="2023-09-15" /> </answer> </item> </item> <item> <linkId value="healthcareProfessionalValidation" /> <text value="Healthcare professional use only" /> <item> <linkId value="healthcareProfessional" /> <text value="To be completed by the healthcare professional recording the consultee’s choices." /> <item> <linkId value="healthcareProfessionalName" /> <text value="Healthcare professional name" /> <answer> <valueString value="Dr. Eugene Smith" /> </answer> </item> <item> <linkId value="healthcareProfessionalSignature" /> <text value="Signature" /> <answer> <valueString value="EugeneSmith" /> </answer> </item> <item> <linkId value="datehealthcareProfessionalCompletedForm" /> <text value="Date" /> <answer> <valueDateTime value="2023-09-15" /> </answer> </item> </item> </item> </QuestionnaireResponse>
QuestionnaireResponse-RoD-PheobeSmithamFather-Example
Example of a filled RoD Form.
QuestionnaireResponse |
id : QuestionnaireResponse-RoD-PheobeSmithamFather-Example |
questionnaire : https://fhir.nhs.uk/Questionnaire/NHSDigital-Questionnaire-Genomics-Example |
status : completed |
basedOn |
reference : ServiceRequest/ServiceRequest-WGSTestOrderFormUpdated-TrioTesting-Example |
subject |
reference : Patient/Patient-PheobeSmithamFather-Example |
identifier |
system : https://fhir.nhs.uk/Id/nhs-number |
value : 9449307636 |
authored : 2023-10-01 |
author |
identifier |
system : https://fhir.nhs.uk/Id/sds-role-profile-id |
value : 9999999996 |
source |
reference : Patient/Patient-PheobeSmithamFather-Example |
identifier |
system : https://fhir.nhs.uk/Id/nhs-number |
value : 9449307636 |
item |
linkId : patientDetails |
text : Patient Details |
item |
linkId : givenName |
text : First Name |
answer |
value : James |
item |
linkId : familyName |
text : Last Name |
answer |
value : Lawrence |
item |
linkId : nhs_Number |
text : NHS number (or postcode if not not known) |
answer |
value : 9449307636 |
item |
linkId : birthDate |
text : Date of Birth |
answer |
value : 1981-08-03 |
item |
linkId : declaration4 |
text : Confirmation of Your Genomic Test and Research Choices |
item |
linkId : confirmation |
text : I confirm that I have had the opportunity to discuss information about genomic testing, I agree to the genomic test, and my research choice is indicated below. |
item |
linkId : researchConfirmation1 |
text : I have discussed taking part in the National Genomic Research Library. If your answer to A is NO then please ignore B and sign directly below |
answer |
value : True |
item |
linkId : researchConfirmation2 |
text : I agree that my data and remainder sample may contribute to the National Genomic Research Library |
answer |
value : True |
item |
linkId : isRespondentAttorney |
text : Are you completing this form on behalf of someone? |
answer |
value : False |
item |
linkId : patientValidation |
text : Patient Validation |
item |
linkId : patientNamecombined |
text : Patient Name |
answer |
value : James Lawrence |
item |
linkId : patientSignature |
text : Signature |
answer |
value : JamesLawrence |
item |
linkId : datePatientCompletedForm |
text : Date |
answer |
value : 2023-10-01 |
item |
linkId : declaration5 |
text : Healthcare professional use only |
item |
linkId : healthcareProfessional |
text : To be completed by the healthcare professional recording the patient’s choices. |
item |
linkId : patientCategory |
text : Patient category |
answer |
value |
system : https://fhir.nhs.uk/CodeSystem/patient-choice-category-genomics |
code : adult-own-choice |
display : Adult(made their own choice) |
item |
linkId : testType |
text : Test type |
answer |
value |
system : https://fhir.nhs.uk/CodeSystem/test-type-genomics |
code : RID-WGS |
display : Rare and Inherited Diseases - WGS |
item |
linkId : remoteConsent |
text : Remote consent, recorded remotely by clinician, no patient signature |
answer |
value : True |
item |
linkId : responsibleClinician |
text : Responsible clinician |
answer |
value : Dr. Eugene Smith |
item |
linkId : patientMRN |
text : Hospital number |
answer |
value : NA |
item |
linkId : healthcareProfessionalName |
text : Healthcare professional name |
answer |
value : Dr. Eugene Smith |
item |
linkId : healthcareProfessionalSignature |
text : Signature |
answer |
value : Dr. Eugene Smith |
item |
linkId : datehealthcareProfessionalCompletedForm |
text : Date |
answer |
value : 2023-10-01 |
{ "resourceType": "QuestionnaireResponse", "id": "QuestionnaireResponse-RoD-PheobeSmithamFather-Example", "questionnaire": "https://fhir.nhs.uk/Questionnaire/NHSDigital-Questionnaire-Genomics-Example", "status": "completed", "basedOn": [ { "reference": "ServiceRequest/ServiceRequest-WGSTestOrderFormUpdated-TrioTesting-Example" } ], "subject": { "reference": "Patient/Patient-PheobeSmithamFather-Example", "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9449307636" } }, "authored": "2023-10-01", "author": { "identifier": { "system": "https://fhir.nhs.uk/Id/sds-role-profile-id", "value": "9999999996" } }, "source": { "reference": "Patient/Patient-PheobeSmithamFather-Example", "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9449307636" } }, "item": [ { "linkId": "patientDetails", "text": "Patient Details", "item": [ { "linkId": "givenName", "text": "First Name", "answer": [ { "valueString": "James" } ] }, { "linkId": "familyName", "text": "Last Name", "answer": [ { "valueString": "Lawrence" } ] }, { "linkId": "nhs_Number", "text": "NHS number (or postcode if not not known)", "answer": [ { "valueString": "9449307636" } ] }, { "linkId": "birthDate", "text": "Date of Birth", "answer": [ { "valueDate": "1981-08-03" } ] } ] }, { "linkId": "declaration4", "text": "Confirmation of Your Genomic Test and Research Choices", "item": [ { "linkId": "confirmation", "text": "I confirm that I have had the opportunity to discuss information about genomic testing, I agree to the genomic test, and my research choice is indicated below.", "item": [ { "linkId": "researchConfirmation1", "text": "I have discussed taking part in the National Genomic Research Library. If your answer to A is NO then please ignore B and sign directly below", "answer": [ { "valueBoolean": true } ] }, { "linkId": "researchConfirmation2", "text": "I agree that my data and remainder sample may contribute to the National Genomic Research Library", "answer": [ { "valueBoolean": true } ] } ] } ] }, { "linkId": "isRespondentAttorney", "text": "Are you completing this form on behalf of someone?", "answer": [ { "valueBoolean": false } ] }, { "linkId": "patientValidation", "text": "Patient Validation", "item": [ { "linkId": "patientNamecombined", "text": "Patient Name", "answer": [ { "valueString": "James Lawrence" } ] }, { "linkId": "patientSignature", "text": "Signature", "answer": [ { "valueString": "JamesLawrence" } ] }, { "linkId": "datePatientCompletedForm", "text": "Date", "answer": [ { "valueDateTime": "2023-10-01" } ] } ] }, { "linkId": "declaration5", "text": "Healthcare professional use only", "item": [ { "linkId": "healthcareProfessional", "text": "To be completed by the healthcare professional recording the patient’s choices.", "item": [ { "linkId": "patientCategory", "text": "Patient category", "answer": [ { "valueCoding": { "system": "https://fhir.nhs.uk/CodeSystem/patient-choice-category-genomics", "code": "adult-own-choice", "display": "Adult(made their own choice)" } } ] }, { "linkId": "testType", "text": "Test type", "answer": [ { "valueCoding": { "system": "https://fhir.nhs.uk/CodeSystem/test-type-genomics", "code": "RID-WGS", "display": "Rare and Inherited Diseases - WGS" } } ] }, { "linkId": "remoteConsent", "text": "Remote consent, recorded remotely by clinician, no patient signature", "answer": [ { "valueBoolean": true } ] }, { "linkId": "responsibleClinician", "text": "Responsible clinician", "answer": [ { "valueString": "Dr. Eugene Smith" } ] }, { "linkId": "patientMRN", "text": "Hospital number", "answer": [ { "valueString": "NA" } ] }, { "linkId": "healthcareProfessionalName", "text": "Healthcare professional name", "answer": [ { "valueString": "Dr. Eugene Smith" } ] }, { "linkId": "healthcareProfessionalSignature", "text": "Signature", "answer": [ { "valueString": "Dr. Eugene Smith" } ] }, { "linkId": "datehealthcareProfessionalCompletedForm", "text": "Date", "answer": [ { "valueDateTime": "2023-10-01" } ] } ] } ] } ] }
<QuestionnaireResponse xmlns="http://hl7.org/fhir"> <id value="QuestionnaireResponse-RoD-PheobeSmithamFather-Example" /> <basedOn> <reference value="ServiceRequest/ServiceRequest-WGSTestOrderFormUpdated-TrioTesting-Example" /> </basedOn> <questionnaire value="https://fhir.nhs.uk/Questionnaire/NHSDigital-Questionnaire-Genomics-Example" /> <status value="completed" /> <subject> <reference value="Patient/Patient-PheobeSmithamFather-Example" /> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9449307636" /> </identifier> </subject> <authored value="2023-10-01" /> <author> <identifier> <system value="https://fhir.nhs.uk/Id/sds-role-profile-id" /> <value value="9999999996" /> </identifier> </author> <source> <reference value="Patient/Patient-PheobeSmithamFather-Example" /> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9449307636" /> </identifier> </source> <item> <linkId value="patientDetails" /> <text value="Patient Details" /> <item> <linkId value="givenName" /> <text value="First Name" /> <answer> <valueString value="James" /> </answer> </item> <item> <linkId value="familyName" /> <text value="Last Name" /> <answer> <valueString value="Lawrence" /> </answer> </item> <item> <linkId value="nhs_Number" /> <text value="NHS number (or postcode if not not known)" /> <answer> <valueString value="9449307636" /> </answer> </item> <item> <linkId value="birthDate" /> <text value="Date of Birth" /> <answer> <valueDate value="1981-08-03" /> </answer> </item> </item> <item> <linkId value="declaration4" /> <text value="Confirmation of Your Genomic Test and Research Choices" /> <item> <linkId value="confirmation" /> <text value="I confirm that I have had the opportunity to discuss information about genomic testing, I agree to the genomic test, and my research choice is indicated below." /> <item> <linkId value="researchConfirmation1" /> <text value="I have discussed taking part in the National Genomic Research Library. If your answer to A is NO then please ignore B and sign directly below" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="researchConfirmation2" /> <text value="I agree that my data and remainder sample may contribute to the National Genomic Research Library" /> <answer> <valueBoolean value="true" /> </answer> </item> </item> </item> <item> <linkId value="isRespondentAttorney" /> <text value="Are you completing this form on behalf of someone?" /> <answer> <valueBoolean value="false" /> </answer> </item> <item> <linkId value="patientValidation" /> <text value="Patient Validation" /> <item> <linkId value="patientNamecombined" /> <text value="Patient Name" /> <answer> <valueString value="James Lawrence" /> </answer> </item> <item> <linkId value="patientSignature" /> <text value="Signature" /> <answer> <valueString value="JamesLawrence" /> </answer> </item> <item> <linkId value="datePatientCompletedForm" /> <text value="Date" /> <answer> <valueDateTime value="2023-10-01" /> </answer> </item> </item> <item> <linkId value="declaration5" /> <text value="Healthcare professional use only" /> <item> <linkId value="healthcareProfessional" /> <text value="To be completed by the healthcare professional recording the patient’s choices." /> <item> <linkId value="patientCategory" /> <text value="Patient category" /> <answer> <valueCoding> <system value="https://fhir.nhs.uk/CodeSystem/patient-choice-category-genomics" /> <code value="adult-own-choice" /> <display value="Adult(made their own choice)" /> </valueCoding> </answer> </item> <item> <linkId value="testType" /> <text value="Test type" /> <answer> <valueCoding> <system value="https://fhir.nhs.uk/CodeSystem/test-type-genomics" /> <code value="RID-WGS" /> <display value="Rare and Inherited Diseases - WGS" /> </valueCoding> </answer> </item> <item> <linkId value="remoteConsent" /> <text value="Remote consent, recorded remotely by clinician, no patient signature" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="responsibleClinician" /> <text value="Responsible clinician" /> <answer> <valueString value="Dr. Eugene Smith" /> </answer> </item> <item> <linkId value="patientMRN" /> <text value="Hospital number" /> <answer> <valueString value="NA" /> </answer> </item> <item> <linkId value="healthcareProfessionalName" /> <text value="Healthcare professional name" /> <answer> <valueString value="Dr. Eugene Smith" /> </answer> </item> <item> <linkId value="healthcareProfessionalSignature" /> <text value="Signature" /> <answer> <valueString value="Dr. Eugene Smith" /> </answer> </item> <item> <linkId value="datehealthcareProfessionalCompletedForm" /> <text value="Date" /> <answer> <valueDateTime value="2023-10-01" /> </answer> </item> </item> </item> </QuestionnaireResponse>
QuestionnaireResponse-RoD-PheobeSmithamMother-Example
Example of a filled RoD Form.
QuestionnaireResponse |
id : QuestionnaireResponse-RoD-PheobeSmithamMother-Example |
questionnaire : https://fhir.nhs.uk/Questionnaire/NHSDigital-Questionnaire-Genomics-Example |
status : completed |
basedOn |
reference : ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example |
subject |
reference : Patient/Patient-PheobeSmithamMother-Example |
identifier |
system : https://fhir.nhs.uk/Id/nhs-number |
value : 9449307246 |
authored : 2023-09-15 |
author |
identifier |
system : https://fhir.nhs.uk/Id/sds-role-profile-id |
value : 9999999996 |
source |
reference : Patient/Patient-PheobeSmithamMother-Example |
identifier |
system : https://fhir.nhs.uk/Id/nhs-number |
value : 9449307246 |
item |
linkId : patientDetails |
text : Patient Details |
item |
linkId : givenName |
text : First Name |
answer |
value : Alice |
item |
linkId : familyName |
text : Last Name |
answer |
value : Smitham |
item |
linkId : nhs_Number |
text : NHS number (or postcode if not not known) |
answer |
value : 9449307246 |
item |
linkId : birthDate |
text : Date of Birth |
answer |
value : 1983-03-22 |
item |
linkId : declaration4 |
text : Confirmation of Your Genomic Test and Research Choices |
item |
linkId : confirmation |
text : I confirm that I have had the opportunity to discuss information about genomic testing, I agree to the genomic test, and my research choice is indicated below. |
item |
linkId : researchConfirmation1 |
text : I have discussed taking part in the National Genomic Research Library. If your answer to A is NO then please ignore B and sign directly below |
answer |
value : True |
item |
linkId : researchConfirmation2 |
text : I agree that my data and remainder sample may contribute to the National Genomic Research Library |
answer |
value : True |
item |
linkId : isRespondentAttorney |
text : Are you completing this form on behalf of someone? |
answer |
value : False |
item |
linkId : patientValidation |
text : Patient Validation |
item |
linkId : patientNamecombined |
text : Patient Name |
answer |
value : Alice Smitham |
item |
linkId : patientSignature |
text : Signature |
answer |
value : AliceSmitham |
item |
linkId : datePatientCompletedForm |
text : Date |
answer |
value : 2023-09-15 |
item |
linkId : declaration5 |
text : Healthcare professional use only |
item |
linkId : healthcareProfessional |
text : To be completed by the healthcare professional recording the patient’s choices. |
item |
linkId : patientCategory |
text : Patient category |
answer |
value |
system : https://fhir.nhs.uk/CodeSystem/patient-choice-category-genomics |
code : adult-own-choice |
display : Adult(made their own choice) |
item |
linkId : testType |
text : Test type |
answer |
value |
system : https://fhir.nhs.uk/CodeSystem/test-type-genomics |
code : RID-WGS |
display : Rare and Inherited Diseases - WGS |
item |
linkId : remoteConsent |
text : Remote consent, recorded remotely by clinician, no patient signature |
answer |
value : True |
item |
linkId : responsibleClinician |
text : Responsible clinician |
answer |
value : Dr. Eugene Smith |
item |
linkId : patientMRN |
text : Hospital number |
answer |
value : NA |
item |
linkId : healthcareProfessionalName |
text : Healthcare professional name |
answer |
value : Dr. Eugene Smith |
item |
linkId : healthcareProfessionalSignature |
text : Signature |
answer |
value : Dr. Eugene Smith |
item |
linkId : datehealthcareProfessionalCompletedForm |
text : Date |
answer |
value : 2023-09-15 |
{ "resourceType": "QuestionnaireResponse", "id": "QuestionnaireResponse-RoD-PheobeSmithamMother-Example", "questionnaire": "https://fhir.nhs.uk/Questionnaire/NHSDigital-Questionnaire-Genomics-Example", "status": "completed", "basedOn": [ { "reference": "ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example" } ], "subject": { "reference": "Patient/Patient-PheobeSmithamMother-Example", "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9449307246" } }, "authored": "2023-09-15", "author": { "identifier": { "system": "https://fhir.nhs.uk/Id/sds-role-profile-id", "value": "9999999996" } }, "source": { "reference": "Patient/Patient-PheobeSmithamMother-Example", "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9449307246" } }, "item": [ { "linkId": "patientDetails", "text": "Patient Details", "item": [ { "linkId": "givenName", "text": "First Name", "answer": [ { "valueString": "Alice" } ] }, { "linkId": "familyName", "text": "Last Name", "answer": [ { "valueString": "Smitham" } ] }, { "linkId": "nhs_Number", "text": "NHS number (or postcode if not not known)", "answer": [ { "valueString": "9449307246" } ] }, { "linkId": "birthDate", "text": "Date of Birth", "answer": [ { "valueDate": "1983-03-22" } ] } ] }, { "linkId": "declaration4", "text": "Confirmation of Your Genomic Test and Research Choices", "item": [ { "linkId": "confirmation", "text": "I confirm that I have had the opportunity to discuss information about genomic testing, I agree to the genomic test, and my research choice is indicated below.", "item": [ { "linkId": "researchConfirmation1", "text": "I have discussed taking part in the National Genomic Research Library. If your answer to A is NO then please ignore B and sign directly below", "answer": [ { "valueBoolean": true } ] }, { "linkId": "researchConfirmation2", "text": "I agree that my data and remainder sample may contribute to the National Genomic Research Library", "answer": [ { "valueBoolean": true } ] } ] } ] }, { "linkId": "isRespondentAttorney", "text": "Are you completing this form on behalf of someone?", "answer": [ { "valueBoolean": false } ] }, { "linkId": "patientValidation", "text": "Patient Validation", "item": [ { "linkId": "patientNamecombined", "text": "Patient Name", "answer": [ { "valueString": "Alice Smitham" } ] }, { "linkId": "patientSignature", "text": "Signature", "answer": [ { "valueString": "AliceSmitham" } ] }, { "linkId": "datePatientCompletedForm", "text": "Date", "answer": [ { "valueDateTime": "2023-09-15" } ] } ] }, { "linkId": "declaration5", "text": "Healthcare professional use only", "item": [ { "linkId": "healthcareProfessional", "text": "To be completed by the healthcare professional recording the patient’s choices.", "item": [ { "linkId": "patientCategory", "text": "Patient category", "answer": [ { "valueCoding": { "system": "https://fhir.nhs.uk/CodeSystem/patient-choice-category-genomics", "code": "adult-own-choice", "display": "Adult(made their own choice)" } } ] }, { "linkId": "testType", "text": "Test type", "answer": [ { "valueCoding": { "system": "https://fhir.nhs.uk/CodeSystem/test-type-genomics", "code": "RID-WGS", "display": "Rare and Inherited Diseases - WGS" } } ] }, { "linkId": "remoteConsent", "text": "Remote consent, recorded remotely by clinician, no patient signature", "answer": [ { "valueBoolean": true } ] }, { "linkId": "responsibleClinician", "text": "Responsible clinician", "answer": [ { "valueString": "Dr. Eugene Smith" } ] }, { "linkId": "patientMRN", "text": "Hospital number", "answer": [ { "valueString": "NA" } ] }, { "linkId": "healthcareProfessionalName", "text": "Healthcare professional name", "answer": [ { "valueString": "Dr. Eugene Smith" } ] }, { "linkId": "healthcareProfessionalSignature", "text": "Signature", "answer": [ { "valueString": "Dr. Eugene Smith" } ] }, { "linkId": "datehealthcareProfessionalCompletedForm", "text": "Date", "answer": [ { "valueDateTime": "2023-09-15" } ] } ] } ] } ] }
<QuestionnaireResponse xmlns="http://hl7.org/fhir"> <id value="QuestionnaireResponse-RoD-PheobeSmithamMother-Example" /> <basedOn> <reference value="ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example" /> </basedOn> <questionnaire value="https://fhir.nhs.uk/Questionnaire/NHSDigital-Questionnaire-Genomics-Example" /> <status value="completed" /> <subject> <reference value="Patient/Patient-PheobeSmithamMother-Example" /> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9449307246" /> </identifier> </subject> <authored value="2023-09-15" /> <author> <identifier> <system value="https://fhir.nhs.uk/Id/sds-role-profile-id" /> <value value="9999999996" /> </identifier> </author> <source> <reference value="Patient/Patient-PheobeSmithamMother-Example" /> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9449307246" /> </identifier> </source> <item> <linkId value="patientDetails" /> <text value="Patient Details" /> <item> <linkId value="givenName" /> <text value="First Name" /> <answer> <valueString value="Alice" /> </answer> </item> <item> <linkId value="familyName" /> <text value="Last Name" /> <answer> <valueString value="Smitham" /> </answer> </item> <item> <linkId value="nhs_Number" /> <text value="NHS number (or postcode if not not known)" /> <answer> <valueString value="9449307246" /> </answer> </item> <item> <linkId value="birthDate" /> <text value="Date of Birth" /> <answer> <valueDate value="1983-03-22" /> </answer> </item> </item> <item> <linkId value="declaration4" /> <text value="Confirmation of Your Genomic Test and Research Choices" /> <item> <linkId value="confirmation" /> <text value="I confirm that I have had the opportunity to discuss information about genomic testing, I agree to the genomic test, and my research choice is indicated below." /> <item> <linkId value="researchConfirmation1" /> <text value="I have discussed taking part in the National Genomic Research Library. If your answer to A is NO then please ignore B and sign directly below" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="researchConfirmation2" /> <text value="I agree that my data and remainder sample may contribute to the National Genomic Research Library" /> <answer> <valueBoolean value="true" /> </answer> </item> </item> </item> <item> <linkId value="isRespondentAttorney" /> <text value="Are you completing this form on behalf of someone?" /> <answer> <valueBoolean value="false" /> </answer> </item> <item> <linkId value="patientValidation" /> <text value="Patient Validation" /> <item> <linkId value="patientNamecombined" /> <text value="Patient Name" /> <answer> <valueString value="Alice Smitham" /> </answer> </item> <item> <linkId value="patientSignature" /> <text value="Signature" /> <answer> <valueString value="AliceSmitham" /> </answer> </item> <item> <linkId value="datePatientCompletedForm" /> <text value="Date" /> <answer> <valueDateTime value="2023-09-15" /> </answer> </item> </item> <item> <linkId value="declaration5" /> <text value="Healthcare professional use only" /> <item> <linkId value="healthcareProfessional" /> <text value="To be completed by the healthcare professional recording the patient’s choices." /> <item> <linkId value="patientCategory" /> <text value="Patient category" /> <answer> <valueCoding> <system value="https://fhir.nhs.uk/CodeSystem/patient-choice-category-genomics" /> <code value="adult-own-choice" /> <display value="Adult(made their own choice)" /> </valueCoding> </answer> </item> <item> <linkId value="testType" /> <text value="Test type" /> <answer> <valueCoding> <system value="https://fhir.nhs.uk/CodeSystem/test-type-genomics" /> <code value="RID-WGS" /> <display value="Rare and Inherited Diseases - WGS" /> </valueCoding> </answer> </item> <item> <linkId value="remoteConsent" /> <text value="Remote consent, recorded remotely by clinician, no patient signature" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="responsibleClinician" /> <text value="Responsible clinician" /> <answer> <valueString value="Dr. Eugene Smith" /> </answer> </item> <item> <linkId value="patientMRN" /> <text value="Hospital number" /> <answer> <valueString value="NA" /> </answer> </item> <item> <linkId value="healthcareProfessionalName" /> <text value="Healthcare professional name" /> <answer> <valueString value="Dr. Eugene Smith" /> </answer> </item> <item> <linkId value="healthcareProfessionalSignature" /> <text value="Signature" /> <answer> <valueString value="Dr. Eugene Smith" /> </answer> </item> <item> <linkId value="datehealthcareProfessionalCompletedForm" /> <text value="Date" /> <answer> <valueDateTime value="2023-09-15" /> </answer> </item> </item> </item> </QuestionnaireResponse>
QuestionnaireResponse-RoD-PheobeSmithamYPAForm-Example
Example of a filled Young Person Assent Form.
QuestionnaireResponse |
id : QuestionnaireResponse-RoD-PheobeSmithamYPAForm-Example |
questionnaire : https://fhir.nhs.uk/Questionnaire/Questionnaire-RoD-YoungPersonAssentForm-Example |
status : completed |
basedOn |
reference : ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example |
subject |
identifier |
system : https://fhir.nhs.uk/Id/nhs-number |
value : 9449307539 |
display : A Patient |
authored : 2024-01-25 |
author |
type : PractitionerRole |
identifier |
system : https://fhir.nhs.uk/Id/sds-role-profile-id |
value : 999999999999 |
source |
type : PractitionerRole |
identifier |
system : https://fhir.nhs.uk/Id/sds-role-profile-id |
value : 999999999999 |
item |
linkId : patientDetails |
text : Patient Details |
item |
linkId : givenName |
text : First Name |
answer |
value : Phoebe |
item |
linkId : familyName |
text : Last Name |
answer |
value : Smitham |
item |
linkId : nhs_Number |
text : NHS number (or postcode if not not known) |
answer |
value : 9449307539 |
item |
linkId : birthDate |
text : Date of Birth |
answer |
value : 2013-09-27 |
item |
linkId : declarationResponse |
text : Please indicate your choices below by ticking the appropriate box: |
item |
linkId : consentQuestion1 |
text : 1. Have you read information or has someone explained the research to you? |
answer |
value : True |
item |
linkId : consentQuestion2 |
text : 2. Have you asked all the questions you want? |
answer |
value : True |
item |
linkId : consentQuestion3 |
text : 3. Have you had your questions answered in a way you understand? |
answer |
value : True |
item |
linkId : consentQuestion4 |
text : 4. Do you understand it’s OK to say you don’t want to take part – but that your parent(s), or guardian who look after you, will make the final choice? |
answer |
value : True |
item |
linkId : consentQuestion5 |
text : 5. Are you happy to take part? |
answer |
value : True |
item |
linkId : isRemoteConsentTrue |
text : Assent obtained remotely, no participant signature |
answer |
value : True |
{ "resourceType": "QuestionnaireResponse", "id": "QuestionnaireResponse-RoD-PheobeSmithamYPAForm-Example", "questionnaire": "https://fhir.nhs.uk/Questionnaire/Questionnaire-RoD-YoungPersonAssentForm-Example", "status": "completed", "basedOn": [ { "reference": "ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example" } ], "subject": { "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9449307539" }, "display": "A Patient" }, "authored": "2024-01-25", "author": { "type": "PractitionerRole", "identifier": { "system": "https://fhir.nhs.uk/Id/sds-role-profile-id", "value": "999999999999" } }, "source": { "type": "PractitionerRole", "identifier": { "system": "https://fhir.nhs.uk/Id/sds-role-profile-id", "value": "999999999999" } }, "item": [ { "linkId": "patientDetails", "text": "Patient Details", "item": [ { "linkId": "givenName", "text": "First Name", "answer": [ { "valueString": "Phoebe" } ] }, { "linkId": "familyName", "text": "Last Name", "answer": [ { "valueString": "Smitham" } ] }, { "linkId": "nhs_Number", "text": "NHS number (or postcode if not not known)", "answer": [ { "valueString": "9449307539" } ] }, { "linkId": "birthDate", "text": "Date of Birth", "answer": [ { "valueDate": "2013-09-27" } ] } ] }, { "linkId": "declarationResponse", "text": "Please indicate your choices below by ticking the appropriate box:", "item": [ { "linkId": "consentQuestion1", "text": "1. Have you read information or has someone explained the research to you?", "answer": [ { "valueBoolean": true } ] }, { "linkId": "consentQuestion2", "text": "2. Have you asked all the questions you want?", "answer": [ { "valueBoolean": true } ] }, { "linkId": "consentQuestion3", "text": "3. Have you had your questions answered in a way you understand?", "answer": [ { "valueBoolean": true } ] }, { "linkId": "consentQuestion4", "text": "4. Do you understand it’s OK to say you don’t want to take part – but that your parent(s), or guardian who look after you, will make the final choice?", "answer": [ { "valueBoolean": true } ] }, { "linkId": "consentQuestion5", "text": "5. Are you happy to take part?", "answer": [ { "valueBoolean": true } ] } ] }, { "linkId": "isRemoteConsentTrue", "text": "Assent obtained remotely, no participant signature", "answer": [ { "valueBoolean": true } ] } ] }
<QuestionnaireResponse xmlns="http://hl7.org/fhir"> <id value="QuestionnaireResponse-RoD-PheobeSmithamYPAForm-Example" /> <basedOn> <reference value="ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example" /> </basedOn> <questionnaire value="https://fhir.nhs.uk/Questionnaire/Questionnaire-RoD-YoungPersonAssentForm-Example" /> <status value="completed" /> <subject> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9449307539" /> </identifier> <display value="A Patient" /> </subject> <authored value="2024-01-25" /> <author> <type value="PractitionerRole" /> <identifier> <system value="https://fhir.nhs.uk/Id/sds-role-profile-id" /> <value value="999999999999" /> </identifier> </author> <source> <type value="PractitionerRole" /> <identifier> <system value="https://fhir.nhs.uk/Id/sds-role-profile-id" /> <value value="999999999999" /> </identifier> </source> <item> <linkId value="patientDetails" /> <text value="Patient Details" /> <item> <linkId value="givenName" /> <text value="First Name" /> <answer> <valueString value="Phoebe" /> </answer> </item> <item> <linkId value="familyName" /> <text value="Last Name" /> <answer> <valueString value="Smitham" /> </answer> </item> <item> <linkId value="nhs_Number" /> <text value="NHS number (or postcode if not not known)" /> <answer> <valueString value="9449307539" /> </answer> </item> <item> <linkId value="birthDate" /> <text value="Date of Birth" /> <answer> <valueDate value="2013-09-27" /> </answer> </item> </item> <item> <linkId value="declarationResponse" /> <text value="Please indicate your choices below by ticking the appropriate box:" /> <item> <linkId value="consentQuestion1" /> <text value="1. Have you read information or has someone explained the research to you?" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="consentQuestion2" /> <text value="2. Have you asked all the questions you want?" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="consentQuestion3" /> <text value="3. Have you had your questions answered in a way you understand?" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="consentQuestion4" /> <text value="4. Do you understand it’s OK to say you don’t want to take part – but that your parent(s), or guardian who look after you, will make the final choice?" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="consentQuestion5" /> <text value="5. Are you happy to take part?" /> <answer> <valueBoolean value="true" /> </answer> </item> </item> <item> <linkId value="isRemoteConsentTrue" /> <text value="Assent obtained remotely, no participant signature" /> <answer> <valueBoolean value="true" /> </answer> </item> </QuestionnaireResponse>