Notice
- Important: This guidance is under active development by NHS England and content may be added or updated on a regular basis.
- This Implementation Guide is currently in Draft and SHOULD NOT be used for development or active implementation without express direction from the NHS England Genomics Unit.
Observation-DiseasePenetrancePheobeSmitham-Example
Example of an Observation indicating the degree of disease penetrance on the subject.
Observation |
id : Observation-DiseasePenetrancePheobeSmitham-Example |
status : final |
code |
coding |
system : https://fhir.nhs.uk/CodeSystem/England-GenomicTestDirectory |
code : R14 |
display : Acutely unwell children with a likely monogenic disorder |
version : 7 |
subject |
reference : Patient/Patient-PheobeSmitham-Example |
identifier |
system : https://fhir.nhs.uk/Id/nhs-number |
value : 9449307539 |
effective : 2023-09-15T15:00:00Z |
value |
coding |
system : http://snomed.info/sct |
code : 87006007 |
display : Dominant autosomal hereditary disorder, incomplete penetrance |
{ "resourceType": "Observation", "id": "Observation-DiseasePenetrancePheobeSmitham-Example", "status": "final", "code": { "coding": [ { "system": "https://fhir.nhs.uk/CodeSystem/England-GenomicTestDirectory", "code": "R14", "display": "Acutely unwell children with a likely monogenic disorder", "version": "7" } ] }, "subject": { "reference": "Patient/Patient-PheobeSmitham-Example", "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9449307539" } }, "effectiveDateTime": "2023-09-15T15:00:00Z", "valueCodeableConcept": { "coding": [ { "system": "http://snomed.info/sct", "code": "87006007", "display": "Dominant autosomal hereditary disorder, incomplete penetrance" } ] } }
<Observation xmlns="http://hl7.org/fhir"> <id value="Observation-DiseasePenetrancePheobeSmitham-Example" /> <status value="final" /> <code> <coding> <system value="https://fhir.nhs.uk/CodeSystem/England-GenomicTestDirectory" /> <version value="7" /> <code value="R14" /> <display value="Acutely unwell children with a likely monogenic disorder" /> </coding> </code> <subject> <reference value="Patient/Patient-PheobeSmitham-Example" /> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9449307539" /> </identifier> </subject> <effectiveDateTime value="2023-09-15T15:00:00Z" /> <valueCodeableConcept> <coding> <system value="http://snomed.info/sct" /> <code value="87006007" /> <display value="Dominant autosomal hereditary disorder, incomplete penetrance" /> </coding> </valueCodeableConcept> </Observation>