Notice
- Important: This guidance is under active development by NHS England and content may be added or updated on a regular basis.
- This Implementation Guide is currently in Draft and SHOULD NOT be used for development or active implementation without express direction from the NHS England Genomics Unit.
Consent-RoDYoungPersonAssentFormAvailable-Example
Example of a Consent resource where the Young Person Assent form has been filled, as described in the Clinical Scenario: Direct to Lab. Capturing of consent within the Genomic Medicine Service, outside of Record of Discussion forms, is still under review within the NHS England Genomic Unit.
Consent |
id : Consent-RoDYoungPersonAssentFormAvailable-Example |
status : active |
scope |
coding |
system : http://terminology.hl7.org/CodeSystem/consentscope |
code : research |
display : Research |
category |
coding |
system : http://terminology.hl7.org/CodeSystem/consentcategorycodes |
code : research |
display : Research Information Access |
patient |
reference : Patient/Patient-PheobeSmitham-Example |
source |
reference : QuestionnaireResponse/QuestionnaireResponse-RoD-YoungPersonAssentForm-Example |
policy |
authority : https://www.england.nhs.uk |
uri : https://www.england.nhs.uk/wp-content/uploads/2021/09/nhs-genomic-medicine-service-young-persons-assent-form.pdf |
provision |
data |
meaning : instance |
reference |
reference : ServiceRequest/ServiceRequest-WGSTestOrderForm-DirectToLab-Example |
{ "resourceType": "Consent", "id": "Consent-RoDYoungPersonAssentFormAvailable-Example", "status": "active", "scope": { "coding": [ { "system": "http://terminology.hl7.org/CodeSystem/consentscope", "code": "research", "display": "Research" } ] }, "category": [ { "coding": [ { "system": "http://terminology.hl7.org/CodeSystem/consentcategorycodes", "code": "research", "display": "Research Information Access" } ] } ], "patient": { "reference": "Patient/Patient-PheobeSmitham-Example" }, "sourceReference": { "reference": "QuestionnaireResponse/QuestionnaireResponse-RoD-YoungPersonAssentForm-Example" }, "policy": [ { "authority": "https://www.england.nhs.uk", "uri": "https://www.england.nhs.uk/wp-content/uploads/2021/09/nhs-genomic-medicine-service-young-persons-assent-form.pdf" } ], "provision": { "data": [ { "meaning": "instance", "reference": { "reference": "ServiceRequest/ServiceRequest-WGSTestOrderForm-DirectToLab-Example" } } ] } }
<Consent xmlns="http://hl7.org/fhir"> <id value="Consent-RoDYoungPersonAssentFormAvailable-Example" /> <status value="active" /> <scope> <coding> <system value="http://terminology.hl7.org/CodeSystem/consentscope" /> <code value="research" /> <display value="Research" /> </coding> </scope> <category> <coding> <system value="http://terminology.hl7.org/CodeSystem/consentcategorycodes" /> <code value="research" /> <display value="Research Information Access" /> </coding> </category> <patient> <reference value="Patient/Patient-PheobeSmitham-Example" /> </patient> <sourceReference> <reference value="QuestionnaireResponse/QuestionnaireResponse-RoD-YoungPersonAssentForm-Example" /> </sourceReference> <policy> <authority value="https://www.england.nhs.uk" /> <uri value="https://www.england.nhs.uk/wp-content/uploads/2021/09/nhs-genomic-medicine-service-young-persons-assent-form.pdf" /> </policy> <provision> <data> <meaning value="instance" /> <reference> <reference value="ServiceRequest/ServiceRequest-WGSTestOrderForm-DirectToLab-Example" /> </reference> </data> </provision> </Consent>