UKCore Hackathon Supporting Guide

Observations Data Capture

Pattern

Structured Data Capture

retrieve-form

Overview

Unless Observations are recorded via a device, it is possible Observations do not get entered as FHIR Observations. It is quite easy to find applications which use forms or form based applications to capture the data. For examples:

NHS UK has a blood pressure form.

https://www.nhs.uk/conditions/blood-pressure-test

Form-Blood-Pressure

It is quite common in virtual wards (and during the COVID 19 pandemic) for patients to be asked to enter a series of clinical relevant observation values daily. This often resembled NEWS2/Vital Signs forms used within hospitals. (Screenshot below is taken from NLM LHC Forms Demo application

This data capture is part of a clinical process. If data is entered by a patient then it is likely to have:

Clinical review: It is not expected the form/patient apps will be returning clinical FHIR resources. For example the 'Blood Pressure' form is not returning a FHIR Observation. This would probably happen after a review by a clinician, who would approve the data entered by the patient and record as an Observation.

For Virtual Wards, it is possible the following process will occur:

Patient manually completes a form. See Questionnaires and Structured Data Capture for more details.
The captured data has a clinical review and where applicable data is entered as Observations in the patients EHR. See
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Which data is stored as FHIR Observations depends on the (wider) clinical need for sharing. For example, it is not anticipated a Patients Heart rate is shared as a form/FHIR QuestionnaireResponse, it would be shared as a FHIR Observation.