This Implementation Guide supports the project Reuse Between EHRs For Children With AML. The project is part of the masters thesis written on the last semester of the Masters degree in Biomedical Engineering and Informatics at Aalborg University, Denmark.
The context for the project is the standardized care plan and treatment process for a child with acute myeloid leukemia (AML). The children are mainly treated at Aarhus University Hospital, Aarhus and Rigshospitalet, Copenhagen, where they receive chemotherapy treatments, but due to the risk of complication, children are also often treated at the nearest larger hospital, e.g. at Aalborg University Hospital, Aalborg or Odense University Hospital, Odense. Currently, the exchange of data between the hospitals' EHRs is minimal and happens via the third-party service sundhed.dk where only an extract of the data measured during a hospital stay can be seen. Thus, the healthcare personnel cannot access the full amount of data. The project aims to solve this problem by creating a webservice where data from one EHR is collected, standardized and ready-to-use for EHRs at the other hospitals.
The project contains one extension and 12 profiles which have been modified to suit the Danish EHRs. By implementing the profiles, the data from one EHR will be standardized and ready-to-use for EHRs at other hospitals in Denmark. For ease of terminology, a central ward is defined as the ward at which the patient receives chemotherapy treatment and is often located far from the patient's home. A decentral ward that handles the treatment of complications arising from the chemotherapy treatment and is often located closer to the patient's home.