Profile: FamilyMemberHistory

PS-AB Simplifier Project Page: FamilyMemberHistory (PS-AB)

Derived from PS-CA FamilyMemberHistory

Views of Profile Content

idΣ0..1id
metaΣ0..1Meta
implicitRulesΣ ?!0..1uri
language0..1codeBinding
text0..1Narrative
contained0..*Resource
extensionC0..*Extension
modifierExtension?! C0..*Extension
identifierΣ0..*Identifier
instantiatesCanonicalΣ0..*canonical(ActivityDefinition | Measure | OperationDefinition | PlanDefinition | Questionnaire)
instantiatesUriΣ0..*uri
statusSO Σ ?!1..1codeBinding
dataAbsentReasonΣ0..1CodeableConcept
id0..1string
extensionC0..*Extension
referenceSO Σ C1..1string
typeΣ0..1uriBinding
identifierΣ0..1Identifier
displayΣ0..1string
dateΣ0..1dateTime
nameΣ0..1string
id0..1string
extensionC0..*Extension
codingΣ0..*CodingPSCA
textSO Σ1..1string
sexΣ0..1CodeableConceptBinding
bornDatedate
bornPeriodPeriod
bornStringstring
ageAgeAge
ageRangeRange
ageStringstring
estimatedAgeΣ C0..1boolean
deceasedAgeAge
deceasedBooleanboolean
deceasedDatedate
deceasedRangeRange
deceasedStringstring
reasonCodeΣ0..*CodeableConcept
reasonReferenceΣ C0..*Reference(AllergyIntolerance | Condition | DiagnosticReport | DocumentReference | Observation | QuestionnaireResponse)
id0..1string
extensionC0..*Extension
authorReferenceReference(Organization | Patient | Practitioner | RelatedPerson)
authorStringstring
timeΣ0..1dateTime
textSO Σ1..1markdown
id0..1string
extensionC0..*Extension
modifierExtensionΣ ?! C0..*Extension
code1..1CodeableConceptPSCA
outcome0..1CodeableConcept
contributedToDeath0..1boolean
onsetAgeAge
onsetPeriodPeriod
onsetRangeRange
onsetStringstring
id0..1string
extensionC0..*Extension
authorReferenceReference(Organization | Patient | Practitioner | RelatedPerson)
authorStringstring
timeΣ0..1dateTime
textSO Σ1..1markdown
idΣ0..1id
metaΣ0..1Meta
implicitRulesΣ ?!0..1uri
language0..1codeBinding
text0..1Narrative
contained0..*Resource
extensionC0..*Extension
modifierExtension?! C0..*Extension
identifierΣ0..*Identifier
instantiatesCanonicalΣ0..*canonical(ActivityDefinition | Measure | OperationDefinition | PlanDefinition | Questionnaire)
instantiatesUriΣ0..*uri
statusSO Σ ?!1..1codeBinding
dataAbsentReasonΣ0..1CodeableConcept
id0..1string
extensionC0..*Extension
referenceSO Σ C1..1string
typeΣ0..1uriBinding
identifierΣ0..1Identifier
displayΣ0..1string
dateΣ0..1dateTime
nameΣ0..1string
id0..1string
extensionC0..*Extension
codingΣ0..*CodingPSCA
textSO Σ1..1string
sexΣ0..1CodeableConceptBinding
bornDatedate
bornPeriodPeriod
bornStringstring
ageAgeAge
ageRangeRange
ageStringstring
estimatedAgeΣ C0..1boolean
deceasedAgeAge
deceasedBooleanboolean
deceasedDatedate
deceasedRangeRange
deceasedStringstring
reasonCodeΣ0..*CodeableConcept
reasonReferenceΣ C0..*Reference(AllergyIntolerance | Condition | DiagnosticReport | DocumentReference | Observation | QuestionnaireResponse)
id0..1string
extensionC0..*Extension
authorReferenceReference(Organization | Patient | Practitioner | RelatedPerson)
authorStringstring
timeΣ0..1dateTime
textSO Σ1..1markdown
id0..1string
extensionC0..*Extension
modifierExtensionΣ ?! C0..*Extension
code1..1CodeableConceptPSCA
outcome0..1CodeableConcept
contributedToDeath0..1boolean
onsetAgeAge
onsetPeriodPeriod
onsetRangeRange
onsetStringstring
id0..1string
extensionC0..*Extension
authorReferenceReference(Organization | Patient | Practitioner | RelatedPerson)
authorStringstring
timeΣ0..1dateTime
textSO Σ1..1markdown
idΣ0..1id
metaΣ0..1Meta
implicitRulesΣ ?!0..1uri
language0..1codeBinding
text0..1Narrative
contained0..*Resource
extensionC0..*Extension
modifierExtension?! C0..*Extension
identifierΣ0..*Identifier
instantiatesCanonicalΣ0..*canonical(ActivityDefinition | Measure | OperationDefinition | PlanDefinition | Questionnaire)
instantiatesUriΣ0..*uri
statusSO Σ ?!1..1codeBinding
dataAbsentReasonΣ0..1CodeableConcept
id0..1string
extensionC0..*Extension
referenceSO Σ C1..1string
typeΣ0..1uriBinding
identifierΣ0..1Identifier
displayΣ0..1string
dateΣ0..1dateTime
nameΣ0..1string
id0..1string
extensionC0..*Extension
codingΣ0..*CodingPSCA
textSO Σ1..1string
sexΣ0..1CodeableConceptBinding
bornDatedate
bornPeriodPeriod
bornStringstring
ageAgeAge
ageRangeRange
ageStringstring
estimatedAgeΣ C0..1boolean
deceasedAgeAge
deceasedBooleanboolean
deceasedDatedate
deceasedRangeRange
deceasedStringstring
reasonCodeΣ0..*CodeableConcept
reasonReferenceΣ C0..*Reference(AllergyIntolerance | Condition | DiagnosticReport | DocumentReference | Observation | QuestionnaireResponse)
id0..1string
extensionC0..*Extension
authorReferenceReference(Organization | Patient | Practitioner | RelatedPerson)
authorStringstring
timeΣ0..1dateTime
textSO Σ1..1markdown
id0..1string
extensionC0..*Extension
modifierExtensionΣ ?! C0..*Extension
code1..1CodeableConceptPSCA
outcome0..1CodeableConcept
contributedToDeath0..1boolean
onsetAgeAge
onsetPeriodPeriod
onsetRangeRange
onsetStringstring
id0..1string
extensionC0..*Extension
authorReferenceReference(Organization | Patient | Practitioner | RelatedPerson)
authorStringstring
timeΣ0..1dateTime
textSO Σ1..1markdown

Restrictions

Alberta Patient Summary (PS-AB) employs a set of constraints on the Bundle (PS-AB) Profile that prevents patient summaries created in Alberta to include certain elements from Family Member History.

Family Member History records sent in a PS-AB Bundle SHALL NOT contain any of the following Family Member History details:

  • .instantiatesCanonical
  • .instantiatesUri
  • .reasonReference
  • .condition.outcome
  • .condition.contributedToDeath

These elements are restricted based on current privacy requirements that require data that is collected, used or disclosed be limited to only the amount of health information that is essential to enable the custodian or the recipient of the information to carry out the intended purpose.

Usage

The FamilyMemberHistory resource contains information about a particular medical condition or health history for a specified family member and is used to populate entries in the Family History section of a patient summary.

.id

  • TESTED element
  • identifier for the FamilyMemberHistory resource, unique within the submitted Bundle
  • if a persistent identity for the resource is not available to use when constructing a Bundle for transmission, a UUID SHOULD be used in this element (with a corresponding value in Bundle.entry.fullUrl)

.status

  • TESTED element
  • a code depicting the status of the clinical record for the family member history being reported
  • SHALL always be populated

.patient

  • TESTED element
  • the person to whom the family history applies
  • SHALL always be populated
  • .reference
    • TESTED element
    • reference to the associated subject (Patient) resource within the submission Bundle
    • SHALL always be populated
    • SHALL reference the same patient resource as the Composition.subject
    • the referenced resource SHALL be included in the Bundle.entry
    • SHALL be the UUID in the Bundle.entry.fullURL of the referenced resourceresource
  • .type
    • TESTED element
    • type the reference refers to (e.g. "Patient")

.relationship

  • TESTED element
  • the relationship between the subject (Patient) and family member
  • SHALL always be populated
  • .text
    • TESTED element
    • SHALL contain a text description of the family member’s relationship to the patient for any reported entry
    • shortened or abbreviated relationship types SHOULD be avoided
    • relationship names SHOULD be gender-specific (e.g. ‘grandmother’ rather than ‘grandparent’) when known
    • SHALL always be populated

.sex

  • CONDITIONALLY TESTED element
  • the birth sex of the family member whose condition or history is being reported

.born[x]

  • CONDITIONALLY TESTED element
  • the actual or approximate date of birth for the family member whose condition or history is being reported

.age[x]

  • CONDITIONALLY TESTED element
  • indicates that the family member age of event is an estimated value

.estimatedAge

  • CONDITIONALLY TESTED element
  • indicates that the family member age of event is an estimated value

.note.text

  • CONDITIONALLY TESTED element
  • notes or additional information about the reported family member medical history that the author chooses to include

.condition

  • TESTED element
  • code.text
    • TESTED element
    • description of a medical condition or characteristic of a family member, that can be important in diagnosing an inherited condition, revealing a pattern of inheritance, or informing clinical decisions regarding testing and/or management of patient care
  • .onset[x]
    • CONDITIONALLY TESTED
    • the age or timing when the family member's condition or characteristic was diagnosed or treated, or when a medical event occurred
    • highly desired, when available
    • MAY be recorded as a full or partial date (actual or estimated), age (actual or approximate), or a text description of an age or life stage (e.g. ‘early childhood’, ‘pre-menopause’, ‘teenage’, etc.)