MII IG Modul Biobank v2025
Organization (Sammlung/Biobank)
Mittels einer Organization wird eine Sammlung/Biobank abgebildet.
Canonical:
https://www.medizininformatik-initiative.de/fhir/ext/modul-biobank/StructureDefinition/Organization
Differential
| ProfileOrganizationSammlungBiobank (Organization) | C | Organization | There are no (further) constraints on this element Element idOrganizationShort description A grouping of people or organizations with a common purpose DefinitionA formally or informally recognized grouping of people or organizations formed for the purpose of achieving some form of collective action. Includes companies, institutions, corporations, departments, community groups, healthcare practice groups, payer/insurer, etc.
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| id | Σ | 0..1 | string | There are no (further) constraints on this element Element idOrganization.idShort description Logical id of this artifact DefinitionThe logical id of the resource, as used in the URL for the resource. Once assigned, this value never changes. The only time that a resource does not have an id is when it is being submitted to the server using a create operation. | ||
| meta | Σ | 0..1 | Meta | There are no (further) constraints on this element Element idOrganization.metaShort description Metadata about the resource DefinitionThe metadata about the resource. This is content that is maintained by the infrastructure. Changes to the content might not always be associated with version changes to the resource.
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| implicitRules | Σ ?! | 0..1 | uri | There are no (further) constraints on this element Element idOrganization.implicitRulesShort description A set of rules under which this content was created DefinitionA reference to a set of rules that were followed when the resource was constructed, and which must be understood when processing the content. Often, this is a reference to an implementation guide that defines the special rules along with other profiles etc. Asserting this rule set restricts the content to be only understood by a limited set of trading partners. This inherently limits the usefulness of the data in the long term. However, the existing health eco-system is highly fractured, and not yet ready to define, collect, and exchange data in a generally computable sense. Wherever possible, implementers and/or specification writers should avoid using this element. Often, when used, the URL is a reference to an implementation guide that defines these special rules as part of it's narrative along with other profiles, value sets, etc.
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| language | 0..1 | codeBinding | There are no (further) constraints on this element Element idOrganization.languageShort description Language of the resource content DefinitionThe base language in which the resource is written. Language is provided to support indexing and accessibility (typically, services such as text to speech use the language tag). The html language tag in the narrative applies to the narrative. The language tag on the resource may be used to specify the language of other presentations generated from the data in the resource. Not all the content has to be in the base language. The Resource.language should not be assumed to apply to the narrative automatically. If a language is specified, it should it also be specified on the div element in the html (see rules in HTML5 for information about the relationship between xml:lang and the html lang attribute). A human language.
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| text | 0..1 | Narrative | There are no (further) constraints on this element Element idOrganization.textShort description Text summary of the resource, for human interpretation Alternate namesnarrative, html, xhtml, display DefinitionA human-readable narrative that contains a summary of the resource and can be used to represent the content of the resource to a human. The narrative need not encode all the structured data, but is required to contain sufficient detail to make it "clinically safe" for a human to just read the narrative. Resource definitions may define what content should be represented in the narrative to ensure clinical safety. Contained resources do not have narrative. Resources that are not contained SHOULD have a narrative. In some cases, a resource may only have text with little or no additional discrete data (as long as all minOccurs=1 elements are satisfied). This may be necessary for data from legacy systems where information is captured as a "text blob" or where text is additionally entered raw or narrated and encoded information is added later.
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| contained | 0..* | Resource | There are no (further) constraints on this element Element idOrganization.containedShort description Contained, inline Resources Alternate namesinline resources, anonymous resources, contained resources DefinitionThese resources do not have an independent existence apart from the resource that contains them - they cannot be identified independently, and nor can they have their own independent transaction scope. This should never be done when the content can be identified properly, as once identification is lost, it is extremely difficult (and context dependent) to restore it again. Contained resources may have profiles and tags In their meta elements, but SHALL NOT have security labels.
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| extension | C | 0..* | Extension | Element idOrganization.extensionShort description Additional content defined by implementations Alternate namesextensions, user content DefinitionMay be used to represent additional information that is not part of the basic definition of the resource. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone. Unordered, Open, by url(Value) Constraints
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| beschreibung | S C | 0..1 | Extension(markdown) | Element idOrganization.extension:beschreibungShort description Beschreibung der Sammlung/Biobank Alternate namesextensions, user content DefinitionEine Freitextbeschreibung der Sammlung/Biobank, die z.B. in einer Suche angezeigt werden kann. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone. The cardinality or value of this element may be affected by these constraints: ele-1 Constraints
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| modifierExtension | ?! C | 0..* | Extension | There are no (further) constraints on this element Element idOrganization.modifierExtensionShort description Extensions that cannot be ignored Alternate namesextensions, user content DefinitionMay be used to represent additional information that is not part of the basic definition of the resource and that modifies the understanding of the element that contains it and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer is allowed to define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions. Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself). Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.
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| identifier | S Σ C | 0..* | Identifier | Element idOrganization.identifierShort description Identifies this organization across multiple systems DefinitionIdentifier for the organization that is used to identify the organization across multiple disparate systems. Organizations are known by a variety of ids. Some institutions maintain several, and most collect identifiers for exchange with other organizations concerning the organization. Unordered, Open, by system(Pattern) ConditionsThe cardinality or value of this element may be affected by these constraints: org-1 Constraints
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| bbmri-eric-id | S Σ C | 0..1 | IdentifierPattern | Element idOrganization.identifier:bbmri-eric-idShort description BBMRI-ERIC ID DefinitionEindeutige Kennung im BBMRI-ERIC-Netzwerk. Organizations are known by a variety of ids. Some institutions maintain several, and most collect identifiers for exchange with other organizations concerning the organization. The cardinality or value of this element may be affected by these constraints: org-1 Constraints
{
"system": "http://www.bbmri-eric.eu/"
}Mappings
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| active | Σ ?! | 0..1 | boolean | There are no (further) constraints on this element Element idOrganization.activeShort description Whether the organization's record is still in active use DefinitionWhether the organization's record is still in active use. Need a flag to indicate a record is no longer to be used and should generally be hidden for the user in the UI. This active flag is not intended to be used to mark an organization as temporarily closed or under construction. Instead the Location(s) within the Organization should have the suspended status. If further details of the reason for the suspension are required, then an extension on this element should be used. This element is labeled as a modifier because it may be used to mark that the resource was created in error. This resource is generally assumed to be active if no value is provided for the active element
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| type | S Σ | 0..* | CodeableConceptBinding | Element idOrganization.typeShort description Sammlungstyp DefinitionDer Typ der Sammlung oder Biobank, basierend auf MIABIS. Need to be able to track the kind of organization that this is - different organization types have different uses. Organizations can be corporations, wards, sections, clinical teams, government departments, etc. Note that code is generally a classifier of the type of organization; in many applications, codes are used to identity a particular organization (say, ward) as opposed to another of the same type - these are identifiers, not codes When considering if multiple types are appropriate, you should evaluate if child organizations would be a more appropriate use of the concept, as different types likely are in different sub-areas of the organization. This is most likely to be used where type values have orthogonal values, such as a religious, academic and medical center. We expect that some jurisdictions will profile this optionality to be a single cardinality. Used to categorize the organization. https://www.medizininformatik-initiative.de/fhir/ext/modul-biobank/ValueSet/miabis-collection-type (extensible) Constraints
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| name | S Σ C | 1..1 | string | Element idOrganization.nameShort description Name DefinitionDer vollständige Name der Sammlung oder Biobank. Need to use the name as the label of the organization. If the name of an organization changes, consider putting the old name in the alias column so that it can still be located through searches. The cardinality or value of this element may be affected by these constraints: org-1 Constraints
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| alias | S | 0..* | string | Element idOrganization.aliasShort description Akronym DefinitionDas Akronym oder der Kurztitel der Sammlung oder Biobank. Over time locations and organizations go through many changes and can be known by different names. For searching knowing previous names that the organization was known by can be very useful. There are no dates associated with the alias/historic names, as this is not intended to track when names were used, but to assist in searching so that older names can still result in identifying the organization.
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| telecom | C | 0..* | ContactPoint | There are no (further) constraints on this element Element idOrganization.telecomShort description A contact detail for the organization DefinitionA contact detail for the organization. Human contact for the organization. The use code 'home' is not to be used. Note that these contacts are not the contact details of people who are employed by or represent the organization, but official contacts for the organization itself. The cardinality or value of this element may be affected by these constraints: org-3 Constraints
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| address | C | 0..* | Address | There are no (further) constraints on this element Element idOrganization.addressShort description An address for the organization DefinitionAn address for the organization. May need to keep track of the organization's addresses for contacting, billing or reporting requirements. Organization may have multiple addresses with different uses or applicable periods. The use code 'home' is not to be used. The cardinality or value of this element may be affected by these constraints: org-2 Constraints
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| partOf | S Σ | 0..1 | Reference(Organization) | Element idOrganization.partOfShort description Teil von DefinitionVerweist auf eine übergeordnete Sammlung oder Biobank, zu der diese gehört. Need to be able to track the hierarchy of organizations within an organization.
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| contact | S | 1..* | BackboneElement | Element idOrganization.contactShort description Contact for the organization for a certain purpose DefinitionContact for the organization for a certain purpose. Need to keep track of assigned contact points within bigger organization. Where multiple contacts for the same purpose are provided there is a standard extension that can be used to determine which one is the preferred contact to use. Unordered, Open, by purpose(Pattern) Constraints
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| (All Slices) | The requirements in this element apply to all slices | |||||
| id | 0..1 | string | There are no (further) constraints on this element Element idOrganization.contact.idShort description Unique id for inter-element referencing DefinitionUnique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.
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| extension | C | 0..* | Extension | There are no (further) constraints on this element Element idOrganization.contact.extensionShort description Additional content defined by implementations Alternate namesextensions, user content DefinitionMay be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.
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| modifierExtension | Σ ?! C | 0..* | Extension | There are no (further) constraints on this element Element idOrganization.contact.modifierExtensionShort description Extensions that cannot be ignored even if unrecognized Alternate namesextensions, user content, modifiers DefinitionMay be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions. Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself). Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.
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| purpose | 0..1 | CodeableConceptBinding | There are no (further) constraints on this element Element idOrganization.contact.purposeShort description The type of contact DefinitionIndicates a purpose for which the contact can be reached. Need to distinguish between multiple contact persons. The purpose for which you would contact a contact party. ContactEntityType (extensible) Constraints
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| name | 0..1 | HumanName | There are no (further) constraints on this element Element idOrganization.contact.nameShort description A name associated with the contact DefinitionA name associated with the contact. Need to be able to track the person by name.
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| telecom | 0..* | ContactPoint | There are no (further) constraints on this element Element idOrganization.contact.telecomShort description Contact details (telephone, email, etc.) for a contact DefinitionA contact detail (e.g. a telephone number or an email address) by which the party may be contacted. People have (primary) ways to contact them in some way such as phone, email.
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| address | 0..1 | Address | There are no (further) constraints on this element Element idOrganization.contact.addressShort description Visiting or postal addresses for the contact DefinitionVisiting or postal addresses for the contact. May need to keep track of a contact party's address for contacting, billing or reporting requirements.
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| forschungskontakt | S | 1..* | BackboneElement | There are no (further) constraints on this element Element idOrganization.contact:forschungskontaktShort description Contact for the organization for a certain purpose DefinitionContact for the organization for a certain purpose. Need to keep track of assigned contact points within bigger organization. Where multiple contacts for the same purpose are provided there is a standard extension that can be used to determine which one is the preferred contact to use.
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| id | 0..1 | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.idShort description Unique id for inter-element referencing DefinitionUnique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.
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| extension | C | 1..* | Extension | Element idOrganization.contact:forschungskontakt.extensionShort description Additional content defined by implementations Alternate namesextensions, user content DefinitionMay be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone. Unordered, Open, by url(Value) Constraints
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| rolle | S C | 1..1 | Extension(string) | Element idOrganization.contact:forschungskontakt.extension:rolleShort description Extension - Rolle des Kontaktes Alternate namesextensions, user content DefinitionMittels dieser Extension soll die Rolle der Kontaktperson in der probenverwaltenden Organisation angegeben werden, z.B. Principal Investigator, Direktor usw. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone. https://www.medizininformatik-initiative.de/fhir/ext/modul-biobank/StructureDefinition/KontaktRolle ConditionsThe cardinality or value of this element may be affected by these constraints: ele-1 Constraints
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| modifierExtension | Σ ?! C | 0..* | Extension | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.modifierExtensionShort description Extensions that cannot be ignored even if unrecognized Alternate namesextensions, user content, modifiers DefinitionMay be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions. Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself). Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.
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| purpose | 1..1 | CodeableConceptBindingPattern | Element idOrganization.contact:forschungskontakt.purposeShort description The type of contact DefinitionIndicates a purpose for which the contact can be reached. Need to distinguish between multiple contact persons. The purpose for which you would contact a contact party. ContactEntityType (extensible) Constraints
{
"coding": [
{
"system": "https://www.medizininformatik-initiative.de/fhir/ext/modul-biobank/CodeSystem/ContactType",
"code": "RESEARCH"
}
]
}Mappings
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| name | 0..1 | HumanName | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.nameShort description A name associated with the contact DefinitionA name associated with the contact. Need to be able to track the person by name.
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| id | 0..1 | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.idShort description Unique id for inter-element referencing DefinitionUnique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.
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| extension | C | 0..* | Extension | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.extensionShort description Additional content defined by implementations Alternate namesextensions, user content DefinitionMay be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone. Unordered, Open, by url(Value) Extensions are always sliced by (at least) url Constraints
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| use | Σ ?! | 0..1 | codeBinding | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.useShort description usual | official | temp | nickname | anonymous | old | maiden DefinitionIdentifies the purpose for this name. Allows the appropriate name for a particular context of use to be selected from among a set of names. Applications can assume that a name is current unless it explicitly says that it is temporary or old. The use of a human name.
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| text | Σ | 0..1 | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.textShort description Text representation of the full name DefinitionSpecifies the entire name as it should be displayed e.g. on an application UI. This may be provided instead of or as well as the specific parts. A renderable, unencoded form. Can provide both a text representation and parts. Applications updating a name SHALL ensure that when both text and parts are present, no content is included in the text that isn't found in a part.
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| family | S Σ | 1..1 | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.familyShort description Family name (often called 'Surname') Alternate namessurname DefinitionThe part of a name that links to the genealogy. In some cultures (e.g. Eritrea) the family name of a son is the first name of his father. Family Name may be decomposed into specific parts using extensions (de, nl, es related cultures).
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| given | S Σ | 1..* | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.givenShort description Given names (not always 'first'). Includes middle names Alternate namesfirst name, middle name DefinitionGiven name. If only initials are recorded, they may be used in place of the full name parts. Initials may be separated into multiple given names but often aren't due to paractical limitations. This element is not called "first name" since given names do not always come first.
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| prefix | Σ | 0..* | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.prefixShort description Parts that come before the name DefinitionPart of the name that is acquired as a title due to academic, legal, employment or nobility status, etc. and that appears at the start of the name.
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| suffix | Σ | 0..* | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.suffixShort description Parts that come after the name DefinitionPart of the name that is acquired as a title due to academic, legal, employment or nobility status, etc. and that appears at the end of the name.
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| period | Σ | 0..1 | Period | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.periodShort description Time period when name was/is in use DefinitionIndicates the period of time when this name was valid for the named person. Allows names to be placed in historical context.
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| telecom | 1..* | ContactPoint | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.telecomShort description Contact details (telephone, email, etc.) for a contact DefinitionA contact detail (e.g. a telephone number or an email address) by which the party may be contacted. People have (primary) ways to contact them in some way such as phone, email.
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| address | S C | 1..1 | AddressDeBasis | Element idOrganization.contact:forschungskontakt.addressShort description Eine Adresse gemäß postalischer Konventionen DefinitionEine Adresse gemäß postalischer Konventionen (im Gegensatz zu bspw. GPS-Koordinaten). Die Adresse kann sowohl zur Zustellung von Postsendungen oder zum Aufsuchen von Orten, die keine gültige Postadresse haben, verwendet werden. Die verwendeten Extensions in diesem Profil bilden die Struktur der Adresse ab, wie sie im VSDM-Format der elektronischen Versichertenkarte verwendet wird. Insbesondere bei ausländischen Adresse oder Adressen, die nicht durch Einlesen einer elektronischen Versichertenkarte erfasst wurden, sind abweichende Strukturen möglich. Die Verwendung der Extensions ist nicht verpflichtend. May need to keep track of a contact party's address for contacting, billing or reporting requirements. Note: address is intended to describe postal addresses for administrative purposes, not to describe absolute geographical coordinates. Postal addresses are often used as proxies for physical locations (also see the Location resource). The cardinality or value of this element may be affected by these constraints: ele-1 Constraints
Beispiel für einfache Adresse {
"use": "home",
"type": "postal",
"line": [
"Musterweg 42"
],
"city": "Musterhausen",
"postalCode": "99999"
}Mappings
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| endpoint | 0..* | Reference(Endpoint) | There are no (further) constraints on this element Element idOrganization.endpointShort description Technical endpoints providing access to services operated for the organization DefinitionTechnical endpoints providing access to services operated for the organization. Organizations have multiple systems that provide various services and need to be able to define the technical connection details for how to connect to them, and for what purpose.
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| FHIR Element | Erklärung |
|---|---|
| extension.beschreibung | Beschreibung der Sammlung/Biobank als Freitext |
| identifier | Unterstützung beliebiger IDs sowie max. einer BBMRI-ERIC-ID |
| type | Angabe zum Typ der Sammlung nach den Vorgaben des BBMRI-ERIC-Directories sofern vorhanden, weitere Codes erlaubt |
| name | Name der Sammlung/Biobank |
| alias | Hier kann u.a. ein Akronym angegeben werden |
| partOf | Zuordung zu einer übergeordneten Sammlung/Biobank |
| contact | Angabe einer Ansprechperson bei Anfragen zu Proben der Sammlung/Biobank |
| contact.extension.rolle | Rolle der Person in der Biobank |
| contact.name | Name der Ansprechperson |
| contact.name.family | Familienname der Ansprechperson |
| contact.name.given | Vorname(n) der Ansprechperson |
| contact.telecom[email] | E-Mailadresse der Ansprechperson |
| contact.address | Post und/oder physische Adresse der Ansprechperson |
| FHIR Element | Logischer Datensatz |
|---|---|
| extension.beschreibung | Biobank.Beschreibung |
| identifier | Biobank.Probensammlung - Biobank.Sammlungs-ID |
| identifier[bbmri-eric-id] | Biobank.Probensammlung - Biobank.BBMRI-ERIC-ID |
| type | Biobank.Probensammlung - Biobank.Sammlungstyp |
| name | Biobank.Probensammlung - Biobank.Name |
| alias | Biobank.Probensammlung - Biobank.Akronym |
| partOf | Biobank.Probensammlung - Biobank.besteht aus |
| contact[forschungskontakt] | Biobank.Kontakt |
| contact[forschungskontakt].extension.rolle | Biobank.Kontakt.Rolle |
| contact[forschungskontakt].name.family | Biobank.Kontakt.Nachname |
| contact[forschungskontakt].name.given | Biobank.Kontakt.Vorname |
| contact[forschungskontakt].telecom[email] | Biobank.Kontakt.E-Mail |
| contact[forschungskontakt].address | Biobank.Kontakt.Adresse |
Snapshot
| ProfileOrganizationSammlungBiobank (Organization) | C | Organization | There are no (further) constraints on this element Element idOrganizationShort description A grouping of people or organizations with a common purpose DefinitionA formally or informally recognized grouping of people or organizations formed for the purpose of achieving some form of collective action. Includes companies, institutions, corporations, departments, community groups, healthcare practice groups, payer/insurer, etc.
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| id | Σ | 0..1 | string | There are no (further) constraints on this element Element idOrganization.idShort description Logical id of this artifact DefinitionThe logical id of the resource, as used in the URL for the resource. Once assigned, this value never changes. The only time that a resource does not have an id is when it is being submitted to the server using a create operation. | ||
| meta | Σ | 0..1 | Meta | There are no (further) constraints on this element Element idOrganization.metaShort description Metadata about the resource DefinitionThe metadata about the resource. This is content that is maintained by the infrastructure. Changes to the content might not always be associated with version changes to the resource.
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| implicitRules | Σ ?! | 0..1 | uri | There are no (further) constraints on this element Element idOrganization.implicitRulesShort description A set of rules under which this content was created DefinitionA reference to a set of rules that were followed when the resource was constructed, and which must be understood when processing the content. Often, this is a reference to an implementation guide that defines the special rules along with other profiles etc. Asserting this rule set restricts the content to be only understood by a limited set of trading partners. This inherently limits the usefulness of the data in the long term. However, the existing health eco-system is highly fractured, and not yet ready to define, collect, and exchange data in a generally computable sense. Wherever possible, implementers and/or specification writers should avoid using this element. Often, when used, the URL is a reference to an implementation guide that defines these special rules as part of it's narrative along with other profiles, value sets, etc.
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| language | 0..1 | codeBinding | There are no (further) constraints on this element Element idOrganization.languageShort description Language of the resource content DefinitionThe base language in which the resource is written. Language is provided to support indexing and accessibility (typically, services such as text to speech use the language tag). The html language tag in the narrative applies to the narrative. The language tag on the resource may be used to specify the language of other presentations generated from the data in the resource. Not all the content has to be in the base language. The Resource.language should not be assumed to apply to the narrative automatically. If a language is specified, it should it also be specified on the div element in the html (see rules in HTML5 for information about the relationship between xml:lang and the html lang attribute). A human language.
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| text | 0..1 | Narrative | There are no (further) constraints on this element Element idOrganization.textShort description Text summary of the resource, for human interpretation Alternate namesnarrative, html, xhtml, display DefinitionA human-readable narrative that contains a summary of the resource and can be used to represent the content of the resource to a human. The narrative need not encode all the structured data, but is required to contain sufficient detail to make it "clinically safe" for a human to just read the narrative. Resource definitions may define what content should be represented in the narrative to ensure clinical safety. Contained resources do not have narrative. Resources that are not contained SHOULD have a narrative. In some cases, a resource may only have text with little or no additional discrete data (as long as all minOccurs=1 elements are satisfied). This may be necessary for data from legacy systems where information is captured as a "text blob" or where text is additionally entered raw or narrated and encoded information is added later.
| |||
| contained | 0..* | Resource | There are no (further) constraints on this element Element idOrganization.containedShort description Contained, inline Resources Alternate namesinline resources, anonymous resources, contained resources DefinitionThese resources do not have an independent existence apart from the resource that contains them - they cannot be identified independently, and nor can they have their own independent transaction scope. This should never be done when the content can be identified properly, as once identification is lost, it is extremely difficult (and context dependent) to restore it again. Contained resources may have profiles and tags In their meta elements, but SHALL NOT have security labels.
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| extension | C | 0..* | Extension | Element idOrganization.extensionShort description Additional content defined by implementations Alternate namesextensions, user content DefinitionMay be used to represent additional information that is not part of the basic definition of the resource. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone. Unordered, Open, by url(Value) Constraints
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| beschreibung | S C | 0..1 | Extension(markdown) | Element idOrganization.extension:beschreibungShort description Beschreibung der Sammlung/Biobank Alternate namesextensions, user content DefinitionEine Freitextbeschreibung der Sammlung/Biobank, die z.B. in einer Suche angezeigt werden kann. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone. The cardinality or value of this element may be affected by these constraints: ele-1 Constraints
| ||
| modifierExtension | ?! C | 0..* | Extension | There are no (further) constraints on this element Element idOrganization.modifierExtensionShort description Extensions that cannot be ignored Alternate namesextensions, user content DefinitionMay be used to represent additional information that is not part of the basic definition of the resource and that modifies the understanding of the element that contains it and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer is allowed to define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions. Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself). Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.
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| identifier | S Σ C | 0..* | Identifier | Element idOrganization.identifierShort description Identifies this organization across multiple systems DefinitionIdentifier for the organization that is used to identify the organization across multiple disparate systems. Organizations are known by a variety of ids. Some institutions maintain several, and most collect identifiers for exchange with other organizations concerning the organization. Unordered, Open, by system(Pattern) ConditionsThe cardinality or value of this element may be affected by these constraints: org-1 Constraints
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| bbmri-eric-id | S Σ C | 0..1 | IdentifierPattern | Element idOrganization.identifier:bbmri-eric-idShort description BBMRI-ERIC ID DefinitionEindeutige Kennung im BBMRI-ERIC-Netzwerk. Organizations are known by a variety of ids. Some institutions maintain several, and most collect identifiers for exchange with other organizations concerning the organization. The cardinality or value of this element may be affected by these constraints: org-1 Constraints
{
"system": "http://www.bbmri-eric.eu/"
}Mappings
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| active | Σ ?! | 0..1 | boolean | There are no (further) constraints on this element Element idOrganization.activeShort description Whether the organization's record is still in active use DefinitionWhether the organization's record is still in active use. Need a flag to indicate a record is no longer to be used and should generally be hidden for the user in the UI. This active flag is not intended to be used to mark an organization as temporarily closed or under construction. Instead the Location(s) within the Organization should have the suspended status. If further details of the reason for the suspension are required, then an extension on this element should be used. This element is labeled as a modifier because it may be used to mark that the resource was created in error. This resource is generally assumed to be active if no value is provided for the active element
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| type | S Σ | 0..* | CodeableConceptBinding | Element idOrganization.typeShort description Sammlungstyp DefinitionDer Typ der Sammlung oder Biobank, basierend auf MIABIS. Need to be able to track the kind of organization that this is - different organization types have different uses. Organizations can be corporations, wards, sections, clinical teams, government departments, etc. Note that code is generally a classifier of the type of organization; in many applications, codes are used to identity a particular organization (say, ward) as opposed to another of the same type - these are identifiers, not codes When considering if multiple types are appropriate, you should evaluate if child organizations would be a more appropriate use of the concept, as different types likely are in different sub-areas of the organization. This is most likely to be used where type values have orthogonal values, such as a religious, academic and medical center. We expect that some jurisdictions will profile this optionality to be a single cardinality. Used to categorize the organization. https://www.medizininformatik-initiative.de/fhir/ext/modul-biobank/ValueSet/miabis-collection-type (extensible) Constraints
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| name | S Σ C | 1..1 | string | Element idOrganization.nameShort description Name DefinitionDer vollständige Name der Sammlung oder Biobank. Need to use the name as the label of the organization. If the name of an organization changes, consider putting the old name in the alias column so that it can still be located through searches. The cardinality or value of this element may be affected by these constraints: org-1 Constraints
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| alias | S | 0..* | string | Element idOrganization.aliasShort description Akronym DefinitionDas Akronym oder der Kurztitel der Sammlung oder Biobank. Over time locations and organizations go through many changes and can be known by different names. For searching knowing previous names that the organization was known by can be very useful. There are no dates associated with the alias/historic names, as this is not intended to track when names were used, but to assist in searching so that older names can still result in identifying the organization.
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| telecom | C | 0..* | ContactPoint | There are no (further) constraints on this element Element idOrganization.telecomShort description A contact detail for the organization DefinitionA contact detail for the organization. Human contact for the organization. The use code 'home' is not to be used. Note that these contacts are not the contact details of people who are employed by or represent the organization, but official contacts for the organization itself. The cardinality or value of this element may be affected by these constraints: org-3 Constraints
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| address | C | 0..* | Address | There are no (further) constraints on this element Element idOrganization.addressShort description An address for the organization DefinitionAn address for the organization. May need to keep track of the organization's addresses for contacting, billing or reporting requirements. Organization may have multiple addresses with different uses or applicable periods. The use code 'home' is not to be used. The cardinality or value of this element may be affected by these constraints: org-2 Constraints
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| partOf | S Σ | 0..1 | Reference(Organization) | Element idOrganization.partOfShort description Teil von DefinitionVerweist auf eine übergeordnete Sammlung oder Biobank, zu der diese gehört. Need to be able to track the hierarchy of organizations within an organization.
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| contact | S | 1..* | BackboneElement | Element idOrganization.contactShort description Contact for the organization for a certain purpose DefinitionContact for the organization for a certain purpose. Need to keep track of assigned contact points within bigger organization. Where multiple contacts for the same purpose are provided there is a standard extension that can be used to determine which one is the preferred contact to use. Unordered, Open, by purpose(Pattern) Constraints
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| (All Slices) | The requirements in this element apply to all slices | |||||
| id | 0..1 | string | There are no (further) constraints on this element Element idOrganization.contact.idShort description Unique id for inter-element referencing DefinitionUnique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.
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| extension | C | 0..* | Extension | There are no (further) constraints on this element Element idOrganization.contact.extensionShort description Additional content defined by implementations Alternate namesextensions, user content DefinitionMay be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.
| ||
| modifierExtension | Σ ?! C | 0..* | Extension | There are no (further) constraints on this element Element idOrganization.contact.modifierExtensionShort description Extensions that cannot be ignored even if unrecognized Alternate namesextensions, user content, modifiers DefinitionMay be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions. Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself). Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.
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| purpose | 0..1 | CodeableConceptBinding | There are no (further) constraints on this element Element idOrganization.contact.purposeShort description The type of contact DefinitionIndicates a purpose for which the contact can be reached. Need to distinguish between multiple contact persons. The purpose for which you would contact a contact party. ContactEntityType (extensible) Constraints
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| name | 0..1 | HumanName | There are no (further) constraints on this element Element idOrganization.contact.nameShort description A name associated with the contact DefinitionA name associated with the contact. Need to be able to track the person by name.
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| telecom | 0..* | ContactPoint | There are no (further) constraints on this element Element idOrganization.contact.telecomShort description Contact details (telephone, email, etc.) for a contact DefinitionA contact detail (e.g. a telephone number or an email address) by which the party may be contacted. People have (primary) ways to contact them in some way such as phone, email.
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| address | 0..1 | Address | There are no (further) constraints on this element Element idOrganization.contact.addressShort description Visiting or postal addresses for the contact DefinitionVisiting or postal addresses for the contact. May need to keep track of a contact party's address for contacting, billing or reporting requirements.
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| forschungskontakt | S | 1..* | BackboneElement | There are no (further) constraints on this element Element idOrganization.contact:forschungskontaktShort description Contact for the organization for a certain purpose DefinitionContact for the organization for a certain purpose. Need to keep track of assigned contact points within bigger organization. Where multiple contacts for the same purpose are provided there is a standard extension that can be used to determine which one is the preferred contact to use.
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| id | 0..1 | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.idShort description Unique id for inter-element referencing DefinitionUnique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.
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| extension | C | 1..* | Extension | Element idOrganization.contact:forschungskontakt.extensionShort description Additional content defined by implementations Alternate namesextensions, user content DefinitionMay be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone. Unordered, Open, by url(Value) Constraints
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| rolle | S C | 1..1 | Extension(string) | Element idOrganization.contact:forschungskontakt.extension:rolleShort description Extension - Rolle des Kontaktes Alternate namesextensions, user content DefinitionMittels dieser Extension soll die Rolle der Kontaktperson in der probenverwaltenden Organisation angegeben werden, z.B. Principal Investigator, Direktor usw. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone. https://www.medizininformatik-initiative.de/fhir/ext/modul-biobank/StructureDefinition/KontaktRolle ConditionsThe cardinality or value of this element may be affected by these constraints: ele-1 Constraints
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| modifierExtension | Σ ?! C | 0..* | Extension | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.modifierExtensionShort description Extensions that cannot be ignored even if unrecognized Alternate namesextensions, user content, modifiers DefinitionMay be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions. Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself). Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.
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| purpose | 1..1 | CodeableConceptBindingPattern | Element idOrganization.contact:forschungskontakt.purposeShort description The type of contact DefinitionIndicates a purpose for which the contact can be reached. Need to distinguish between multiple contact persons. The purpose for which you would contact a contact party. ContactEntityType (extensible) Constraints
{
"coding": [
{
"system": "https://www.medizininformatik-initiative.de/fhir/ext/modul-biobank/CodeSystem/ContactType",
"code": "RESEARCH"
}
]
}Mappings
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| name | 0..1 | HumanName | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.nameShort description A name associated with the contact DefinitionA name associated with the contact. Need to be able to track the person by name.
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| id | 0..1 | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.idShort description Unique id for inter-element referencing DefinitionUnique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.
| |||
| extension | C | 0..* | Extension | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.extensionShort description Additional content defined by implementations Alternate namesextensions, user content DefinitionMay be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone. Unordered, Open, by url(Value) Extensions are always sliced by (at least) url Constraints
| ||
| use | Σ ?! | 0..1 | codeBinding | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.useShort description usual | official | temp | nickname | anonymous | old | maiden DefinitionIdentifies the purpose for this name. Allows the appropriate name for a particular context of use to be selected from among a set of names. Applications can assume that a name is current unless it explicitly says that it is temporary or old. The use of a human name.
| ||
| text | Σ | 0..1 | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.textShort description Text representation of the full name DefinitionSpecifies the entire name as it should be displayed e.g. on an application UI. This may be provided instead of or as well as the specific parts. A renderable, unencoded form. Can provide both a text representation and parts. Applications updating a name SHALL ensure that when both text and parts are present, no content is included in the text that isn't found in a part.
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| family | S Σ | 1..1 | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.familyShort description Family name (often called 'Surname') Alternate namessurname DefinitionThe part of a name that links to the genealogy. In some cultures (e.g. Eritrea) the family name of a son is the first name of his father. Family Name may be decomposed into specific parts using extensions (de, nl, es related cultures).
| ||
| given | S Σ | 1..* | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.givenShort description Given names (not always 'first'). Includes middle names Alternate namesfirst name, middle name DefinitionGiven name. If only initials are recorded, they may be used in place of the full name parts. Initials may be separated into multiple given names but often aren't due to paractical limitations. This element is not called "first name" since given names do not always come first.
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| prefix | Σ | 0..* | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.prefixShort description Parts that come before the name DefinitionPart of the name that is acquired as a title due to academic, legal, employment or nobility status, etc. and that appears at the start of the name.
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| suffix | Σ | 0..* | string | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.suffixShort description Parts that come after the name DefinitionPart of the name that is acquired as a title due to academic, legal, employment or nobility status, etc. and that appears at the end of the name.
| ||
| period | Σ | 0..1 | Period | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.name.periodShort description Time period when name was/is in use DefinitionIndicates the period of time when this name was valid for the named person. Allows names to be placed in historical context.
| ||
| telecom | 1..* | ContactPoint | There are no (further) constraints on this element Element idOrganization.contact:forschungskontakt.telecomShort description Contact details (telephone, email, etc.) for a contact DefinitionA contact detail (e.g. a telephone number or an email address) by which the party may be contacted. People have (primary) ways to contact them in some way such as phone, email.
| |||
| address | S C | 1..1 | AddressDeBasis | Element idOrganization.contact:forschungskontakt.addressShort description Eine Adresse gemäß postalischer Konventionen DefinitionEine Adresse gemäß postalischer Konventionen (im Gegensatz zu bspw. GPS-Koordinaten). Die Adresse kann sowohl zur Zustellung von Postsendungen oder zum Aufsuchen von Orten, die keine gültige Postadresse haben, verwendet werden. Die verwendeten Extensions in diesem Profil bilden die Struktur der Adresse ab, wie sie im VSDM-Format der elektronischen Versichertenkarte verwendet wird. Insbesondere bei ausländischen Adresse oder Adressen, die nicht durch Einlesen einer elektronischen Versichertenkarte erfasst wurden, sind abweichende Strukturen möglich. Die Verwendung der Extensions ist nicht verpflichtend. May need to keep track of a contact party's address for contacting, billing or reporting requirements. Note: address is intended to describe postal addresses for administrative purposes, not to describe absolute geographical coordinates. Postal addresses are often used as proxies for physical locations (also see the Location resource). The cardinality or value of this element may be affected by these constraints: ele-1 Constraints
Beispiel für einfache Adresse {
"use": "home",
"type": "postal",
"line": [
"Musterweg 42"
],
"city": "Musterhausen",
"postalCode": "99999"
}Mappings
| ||
| endpoint | 0..* | Reference(Endpoint) | There are no (further) constraints on this element Element idOrganization.endpointShort description Technical endpoints providing access to services operated for the organization DefinitionTechnical endpoints providing access to services operated for the organization. Organizations have multiple systems that provide various services and need to be able to define the technical connection details for how to connect to them, and for what purpose.
|
Beispiele
Beispiel Biobank:
Beispiel Sammlung:
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