GECCO - Implementation Guide

Ethnic group

Parameter Case Report Form and Response Options

Ethnic group
Caucasian	☐
African	☐
Asian	☐
Arabs	☐
Latin-American	☐
Mixed-origin	☐
Other	☐

The EthnicGroups-Extension shall be used in conjunction with the profile on the Patient-resource.

Note that in prior versions to 1.0.4 of this implementation guide, the response option Mixed-origin used the SNOMED code 186019001 |Other ethnic, mixed origin (ethnic group)| which was inactivated by SNOMED in the meantime. Hence, this has been replaced by 26242008 |Mixed (qualifier value)|.

Response option	Code	Display	System
Caucasian	`14045001`	`Caucasian (ethnic group)`	`http://snomed.info/sct`
African	`18167009`	`Black African (ethnic group)`	`http://snomed.info/sct`
Asian	`315280000`	`Asian - ethnic group (ethnic group)`	`http://snomed.info/sct`
Arabs	`90027003`	`Arabs (ethnic group)`	`http://snomed.info/sct`
Latin-American	`2135-2`	`Hispanic or Latino`	`urn:oid:2.16.840.1.113883.6.238`
Mixed-origin	`26242008`	`Mixed (qualifier value)`	`http://snomed.info/sct`
Other	`descendent-of` `372148003`	`Ethnic group (ethnic group)`	`http://snomed.info/sct`

Extension - Ethnic Groups

Canonical: https://www.netzwerk-universitaetsmedizin.de/fhir/StructureDefinition/ethnic-group

Snapshot

Extension	I		Extension	There are no (further) constraints on this element Element id Extension Short description Optional Extensions Element Definition Optional Extension Element - found in all resources. Data type Extension Constraints ele-1: All FHIR elements must have a @value or children `hasValue() or (children().count() > id.count())` ext-1: Must have either extensions or value[x], not both `extension.exists() != value.exists()` Mappings rim: n/a rim: N/A
id		0..1	string	There are no (further) constraints on this element Element id Extension.id Short description Unique id for inter-element referencing Definition Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces. Data type string Mappings rim: n/a
extension	I	0..0	Extension	There are no (further) constraints on this element Element id Extension.extension Short description Additional content defined by implementations Alternate names extensions, user content Definition May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Comments There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone. Data type Extension Sliced: Unordered, Open, by url(Value) Extensions are always sliced by (at least) url Constraints ele-1: All FHIR elements must have a @value or children `hasValue() or (children().count() > id.count())` ext-1: Must have either extensions or value[x], not both `extension.exists() != value.exists()` Mappings rim: n/a rim: N/A
url		1..1	uriFixed Value	Element id Extension.url Short description identifies the meaning of the extension Definition Source of the definition for the extension code - a logical name or a URL. Comments The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension. Data type uri Fixed value https://www.netzwerk-universitaetsmedizin.de/fhir/StructureDefinition/ethnic-group Mappings rim: N/A
value[x]		0..1	Binding	Element id Extension.value[x] Short description Value of extension Definition Value of extension - must be one of a constrained set of the data types (see Extensibility for a list). Binding EthnicGroups (required) Constraints ele-1: All FHIR elements must have a @value or children `hasValue() or (children().count() > id.count())` Mappings rim: n/a rim: N/A
valueCoding			Coding	Data type Coding

ValueSets

The ethnic groups valueset is provided with SNOMED-CT codes.

Canonical: https://www.netzwerk-universitaetsmedizin.de/fhir/ValueSet/ethnic-groups

ValueSet 'EthnicGroups'

Version	1.0.6
Published by	Berlin Institute of Health at Charité (BIH)
Status	Active
Experimental	False

Ethnic groups in the context of Covid-19

Contact Information

Website: https://www.bihealth.org/en/re...

This value set includes codes from the following code systems:

The following codes from system: SNOMED_CT
Code Display
14045001 Caucasian (ethnic group)
18167009 Black African (ethnic group)
315280000 Asian - ethnic group (ethnic group)
90027003 Arabs (ethnic group)
26242008 Mixed (qualifier value)
The following codes from system: urn:oid:2.16.840.1.113883.6.238
Code Display
2135-2 Hispanic or Latino
Include codes from SNOMED_CT where concept DescendentOf 372148003

Code	Display
14045001	Caucasian (ethnic group)
18167009	Black African (ethnic group)
315280000	Asian - ethnic group (ethnic group)
90027003	Arabs (ethnic group)
26242008	Mixed (qualifier value)

Code	Display
2135-2	Hispanic or Latino

Examples

Example instance of the ethnic group extension:

{
    "url": "https://www.netzwerk-universitaetsmedizin.de/fhir/StructureDefinition/ethnic-group",
    "valueCoding": {
        "code": "26242008",
        "display": "Mixed (qualifier value)",
        "system": "http://snomed.info/sct"
    }
}

Example patient resource that contains the extension:

{
    "resourceType": "Patient",
    "id": "gecco-patient",
    "meta": {
        "profile":  [
            "https://www.netzwerk-universitaetsmedizin.de/fhir/StructureDefinition/Patient"
        ]
    },
    "extension":  [
        {
            "url": "https://www.netzwerk-universitaetsmedizin.de/fhir/StructureDefinition/ethnic-group",
            "valueCoding": {
                "code": "26242008",
                "system": "http://snomed.info/sct",
                "display": "Mixed (qualifier value)"
            }
        },
        {
            "extension":  [
                {
                    "url": "dateTimeOfDocumentation",
                    "valueDateTime": "2020-10-01"
                },
                {
                    "url": "age",
                    "valueAge": {
                        "value": 67,
                        "code": "a",
                        "system": "http://unitsofmeasure.org",
                        "unit": "years"
                    }
                }
            ],
            "url": "https://www.netzwerk-universitaetsmedizin.de/fhir/StructureDefinition/age"
        }
    ],
    "birthDate": "1953-09-30"
}