Ethnic group


Parameter Case Report Form and Response Options

Ethnic group
Caucasian
African
Asian
Arabs
Latin-American
Mixed-origin
Other

The EthnicGroups-Extension shall be used in conjunction with the profile on the Patient-resource.

Note that in prior versions to 1.0.4 of this implementation guide, the response option Mixed-origin used the SNOMED code 186019001 |Other ethnic, mixed origin (ethnic group)| which was inactivated by SNOMED in the meantime. Hence, this has been replaced by 26242008 |Mixed (qualifier value)|.


Response option Code Display System
Caucasian 14045001 Caucasian (ethnic group) http://snomed.info/sct
African 18167009 Black African (ethnic group) http://snomed.info/sct
Asian 315280000 Asian - ethnic group (ethnic group) http://snomed.info/sct
Arabs 90027003 Arabs (ethnic group) http://snomed.info/sct
Latin-American 2135-2 Hispanic or Latino urn:oid:2.16.840.1.113883.6.238
Mixed-origin 26242008 Mixed (qualifier value) http://snomed.info/sct
Other descendent-of 372148003 Ethnic group (ethnic group) http://snomed.info/sct

Extension - Ethnic Groups

Canonical: https://www.netzwerk-universitaetsmedizin.de/fhir/StructureDefinition/ethnic-group

Snapshot

extensionI0..0Extension
url1..1System.StringFixed Value
valueCodingCoding


ValueSets

The ethnic groups valueset is provided with SNOMED-CT codes.


Canonical: https://www.netzwerk-universitaetsmedizin.de/fhir/ValueSet/ethnic-groups

ValueSet 'EthnicGroups'

Version1.0.6
Published byBerlin Institute of Health at Charité (BIH)
StatusActive
ExperimentalFalse

Ethnic groups in the context of Covid-19

Contact Information

Website: https://www.bihealth.org/en/re...

This value set includes codes from the following code systems:

  • The following codes from system: SNOMED_CT

    CodeDisplay
    14045001Caucasian (ethnic group)
    18167009Black African (ethnic group)
    315280000Asian - ethnic group (ethnic group)
    90027003Arabs (ethnic group)
    26242008Mixed (qualifier value)
  • The following codes from system: urn:oid:2.16.840.1.113883.6.238

    CodeDisplay
    2135-2Hispanic or Latino
  • Include codes from SNOMED_CT where concept DescendentOf 372148003


Examples

Example instance of the ethnic group extension:

{
    "url": "https://www.netzwerk-universitaetsmedizin.de/fhir/StructureDefinition/ethnic-group",
    "valueCoding": {
        "code": "26242008",
        "display": "Mixed (qualifier value)",
        "system": "http://snomed.info/sct"
    }
}


Example patient resource that contains the extension:

{
    "resourceType": "Patient",
    "id": "gecco-patient",
    "meta": {
        "profile":  [
            "https://www.netzwerk-universitaetsmedizin.de/fhir/StructureDefinition/Patient"
        ]
    },
    "extension":  [
        {
            "url": "https://www.netzwerk-universitaetsmedizin.de/fhir/StructureDefinition/ethnic-group",
            "valueCoding": {
                "code": "26242008",
                "system": "http://snomed.info/sct",
                "display": "Mixed (qualifier value)"
            }
        },
        {
            "extension":  [
                {
                    "url": "dateTimeOfDocumentation",
                    "valueDateTime": "2020-10-01"
                },
                {
                    "url": "age",
                    "valueAge": {
                        "value": 67,
                        "code": "a",
                        "system": "http://unitsofmeasure.org",
                        "unit": "years"
                    }
                }
            ],
            "url": "https://www.netzwerk-universitaetsmedizin.de/fhir/StructureDefinition/age"
        }
    ],
    "birthDate": "1953-09-30"
}