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HdBe-Ziektebeleving

WARNING This page contains a draft CBB, as raw output from the zib export and automatic conversion to CBB. It requires thorough review and adaption to the Belgian realm. This CBB is merely added for informative use.

CBBConceptStatus
HdBe-IllnessPerception

Een langdurige of levenbedreigende ziekte is in vrijwel alle gevallen een traumatisch ervaring voor de patiënt en zijn omgeving. Iedere patiënt gaat op zijn eigen manier hiermee om. De manier waarop iemand met problemen en stress omgaat, wordt ook wel coping genoemd. Ziektebeleving gaat in op zowel de inschatting door de patiënt van zijn situatie als op de wijze waarop de patiënt en zijn omgeving met deze situatie omgaan (copingstrategieën).

Purpose

Informatie over de mate van inzicht van patiënt en zijn omgeving in de gevolgen van zijn ziekte stelt de verpleegkundige in staat de patiënt en zijn naasten adequaat te ondersteunen bij het leren omgaan met de ziekte of het gezondheidsprobleem.

draft

id0..1string
extensionI0..*Extension
PatientIllnessInsight0..1string
CopingWithIllnessByPatient0..1string
CopingWithIllnessByFamily0..1string

IllnessPerception0..*
IllnessPerception.PatientIllnessInsightstring0..1
IllnessPerception.CopingWithIllnessByPatientstring0..1
IllnessPerception.CopingWithIllnessByFamilystring0..1


IllnessPerception
DefinitionRoot concept of the IllnessPerception information model. This root concept contains all data elements of the IllnessPerception information model.
Cardinality0...*
Invariants
  • ele-1: All FHIR elements must have a @value or children
    hasValue() or (children().count() > id.count())
Mappings
  • rim: n/a
IllnessPerception.id
DefinitionUnique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.
Cardinality0...1
Typestring
Mappings
  • rim: n/a
IllnessPerception.extension
DefinitionMay be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.
Cardinality0...*
TypeExtension
Aliasextensions, user content
Comments

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

SlicingUnordered, Open, by url(Value)
Invariants
  • ele-1: All FHIR elements must have a @value or children
    hasValue() or (children().count() > id.count())
  • ext-1: Must have either extensions or value[x], not both
    extension.exists() != value.exists()
Mappings
  • rim: n/a
  • rim: N/A
IllnessPerception.PatientIllnessInsight
DefinitionThe patient’s illness insight describes their awareness of having an illness or health problem and what that means for their daily life.
Cardinality0...1
Typestring
Comments

Note that FHIR strings SHALL NOT exceed 1MB in size

Invariants
  • ele-1: All FHIR elements must have a @value or children
    hasValue() or (children().count() > id.count())
Mappings
  • rim: n/a
IllnessPerception.CopingWithIllnessByPatient
DefinitionThe description of how the patient deals with their illness or health problem.
Cardinality0...1
Typestring
Comments

Note that FHIR strings SHALL NOT exceed 1MB in size

Invariants
  • ele-1: All FHIR elements must have a @value or children
    hasValue() or (children().count() > id.count())
Mappings
  • rim: n/a
IllnessPerception.CopingWithIllnessByFamily
DefinitionThe description of how the family deals with the patient’s illness or health problem.
Cardinality0...1
Typestring
Comments

Note that FHIR strings SHALL NOT exceed 1MB in size

Invariants
  • ele-1: All FHIR elements must have a @value or children
    hasValue() or (children().count() > id.count())
Mappings
  • rim: n/a

Example instances

[CBB name]
[Concept name ] [example value]

// example of NameInformation

## Example instances

| NameInformation      |                   |
|----------------------|-------------------|
| FirstNames | Johanna Petronella Maria   
| Initials | J.P.M. 
| GivenName | Jo 
| NameUsage | Geslachtsnaam partner gevolgd door eigen geslachtsnaam
| LastName.Prefix | van
| LastName.LastName | Putten
| LastNamePartner.PartnerPrefix | van der
| LastNamePartner.PartnerLastName | Giessen
| Titles |

zib [zib name + version](https://zibs.nl/wiki/[zib name + version(release)]) difference

Concept Category Description
[element.path] [category of change] [Description of change]([Reference to ticket/issue/zulip chat using MarkDown link])



Terminology Bindings