Uncategorised data
Uncategorised Data - Data Model
Note - This clinical area differs from others in that whilst other clinical areas represent a standard attribution of data in the GP clinical systems. This area is to represent those other areas where there is inconsistent attribution across clinical concepts such as procedures, family history, measurements and many more. As these boundaries are not consistent, we have decided to represent them in a single clinical area. We understand that this is unlikely to be the manner in which a Consumer wants to represent this data.
It is expected that Consumers will either use this data along with other clinical areas to create aggregated journal type views or use subsets of this data. Or by Identifying categories of coding that meets a specific need for the application, for example representing end of life information.
As a general recommendation, we do not expect this to be useful to the patient / citizen by just presenting this as full clinical area in isolation.
Patient Facing Services incorporates the GP Connect data model, this contains guidelines on how Providers need to populate each of the FHIR resources. It is advised to read the data model first, to understand how this is being populated by GP clinical systems.
The relevant profiles in the data model are as follows:
- Observation - CareConnect-GPC-Observation-1
However, not all clinical information stored on GP systems may be safe to display for the end user (patients / citizens). This guide is intended to help Consumers understand what is clinically safe and useful to display via PFS from the GP Connect data model. Please see the PFS recommendations below.
PFS Recommendation
Safe to display to patient / citizen - With a safety rating of 'High', 'Medium' or 'Low'.
Useful to display to patient / citizen - With a recommendation of 'Recommended' or 'Not recommended'.
For example, the element 'Id’ has a safety rating of ‘High’, meaning it can be shown via Patient Facing Services (PFS). However, we believe it may not be useful to display 'Not Recommended' for the patient / citizen. It’s worth noting, there are elements that will have no meaning or have any merit in being displayed such as ‘Id’. For example, some elements are just entities that link data together.
For further information on the labelling please visit Data model labels used within this guidance.
Observation - uncategorised data
| Element | Safe to display to patient / citizen | Useful to display to patient / citizen |
|---|---|---|
| id | ||
| meta.profile | ||
| identifier | ||
| status | ||
| code | ||
| subject | ||
| context | ||
| effectiveDateTime | ||
| issued | ||
| performer | ||
| value[x] | ||
| interpretation | ||
| comment | ||
| exampleelement | ||
| referenceRange | ||
| related | ||
| component |
Observation - blood pressure
| Element | Safe to display to patient / citizen | Useful to display to patient / citizen |
|---|---|---|
| id | ||
| meta.profile | ||
| identifier | ||
| status | ||
| code | ||
| subject | ||
| context | ||
| effectiveDateTime | ||
| issued | ||
| performer | ||
| comment | ||
| bodysite | ||
| related |
Observation - blood pressure (systolic and diastolic)
| Element | Safe to display to patient / citizen | Useful to display to patient / citizen |
|---|---|---|
| component.code | ||
| component.valueQuantity | ||
| component.dataAbsentReason | ||
| component.interpretation | ||
| component.referenceRange |
Further Information
Note - Not every element will have further information. Further information is to simply give additional context and perspective to the element.
Observation - uncategorised data
code
Further information
This element is a CodeableConcept. The element may include more than one code for the medication and/or more one text description. Consumers are strongly advised to use the original term text as the primary text displayed to the end user (patient / citizen). For more information on 'Processing data from a CodeableConcept', specifically section 'Original term text' then please visit -
context
Further information
Displaying the element alone will have no meaning to the patient. This is not advised and may cause more confusion than benefit to the user. If a clear business case is portrayed, then this can be utilised in conjunction with other information to represent information free from ambiguity or confusion to the patient / citizen.
issued
Use with caution for PFS
Further information
The ‘issued’ element states the date the result was published, not the date when it was taken.
value[x]
Further information
The ‘value[x]’ element has significant information where it is included but it may also be qualified by other elements such as:
- ‘value[x]’
- ‘referenceRange’
- ‘interpretation’
- ‘comment’
Note - not all of the bullet point elements will have a value. Some may only have a comment / value or a mix of both.
interpretation
Further information
For added value and context for the end user (patient / citizen), the advised order is as follows: - ‘value\[x]’ - ‘referenceRange’ - ‘interpretation’ - ‘comment’
Note - not all of the bullet point elements will have a value. Some may only have a comment / value or a mix of both.
comment
Further information
For added value and context for the end user (patient / citizen), the advised order is as follows: - ‘value\[x]’ - ‘referenceRange’ - ‘interpretation’ - ‘comment’
referenceRange
Further information
It is advised to display the ‘referenceRange’ in a way in which it is immediately clear and obvious that the range value is not the patient's test result but merely the range. There is also a risk that if the ‘referenceRange’ data is separated, the meaning and context may be lost.
For added value and context for the end user (patient / citizen), the advised order is as follows:
- ‘value[x]’
- ‘referenceRange’
- ‘interpretation’
- ‘comment’
related
Further information
Displaying the element alone will have no meaning to the patient. This is not advised and may cause more confusion than benefit to the user. If a clear business case is portrayed, then this can be utilised in conjunction with other information to represent information free from ambiguity or confusion to the patient / citizen.
component
Further information
This element is useful, however, there are not many use cases that exist other than blood pressure.
Observation - blood pressure
code
Use with caution for PFS
Further information
This element is a CodeableConcept. The element may include more than one code for the medication and/or more one text description. Consumers are strongly advised to use the original term text as the primary text displayed to the end user (patient / citizen). For more information on 'Processing data from a CodeableConcept', specifically section 'Original term text' then please visit -
Please ensure you are aware of the design for modelling blood pressures in the GP Connect payload.
context
Further information
Displaying the element alone will have no meaning to the patient. This is not advised and may cause more confusion than benefit to the user. If a clear business case is portrayed, then this can be utilised in conjunction with other information to represent information free from ambiguity or confusion to the patient / citizen.
issued
Use with caution for PFS
Further information
The ‘issued’ element states the date the result was published, not the date when it was taken. The 'effectiveDateTime' element is the most clinically relevant date for the patient / citizen for the majority of anticipated use cases. It is advised to display 'issued' as a secondary item to 'effectiveDateTime' and to clearly distinguish this as secondary information.
related
Further information
Displaying the element alone will have no meaning to the patient. This is not advised and may cause more confusion than benefit to the user. If a clear business case is portrayed, then this can be utilised in conjunction with other information to represent information free from ambiguity or confusion to the patient / citizen.
Note - if you wish to represent diastolic and systolic blood pressure pairings together. For example, in cases where they have not been presented as a triple, the ‘related’ element will enable this functionality, please see 'Representing blood pressure readings from GP systems'.
Observation - blood pressure (systolic and diastolic)
component.code
Further information
This element is a CodeableConcept. The element may include more than one code for the medication and/or more one text description. Consumers are strongly advised to use the original term text as the primary text displayed to the end user (patient / citizen). For more information on 'Processing data from a CodeableConcept', specifically section 'Original term text' then please visit -
Please ensure you are aware of the design for modelling blood pressures in the GP Connect payload.
component.referenceRange
Not advised for PFS
Further information
This element is advised as unsafe for the reason that there isn't a universal reference range that applies to all citizens for all ages. Furthermore, reference range data can occasionally be generated automatically by GP clinical system. Both circumstances are cause for concerns, as incorrect conclusions may be drawn from the reference range.