<StructureDefinition xmlns="http://hl7.org/fhir">
  <id value="09627953-4ea4-4cd1-84aa-e61aed8e1120" />
  <meta>
    <lastUpdated value="2020-11-17T16:33:20.729+00:00" />
  </meta>
  <url value="https://theprsb.org/fhir/StructureDefinition/AboutMe" />
  <name value="AboutMe" />
  <status value="draft" />
  <date value="2020-11-17T16:25:45.6837334Z" />
  <fhirVersion value="4.0.1" />
  <kind value="logical" />
  <abstract value="false" />
  <type value="http://example.org/fhir/StructureDefinition/AboutMe" />
  <baseDefinition value="http://hl7.org/fhir/StructureDefinition/Element" />
  <derivation value="specialization" />
  <differential>
    <element id="AboutMe">
      <path value="AboutMe" />
      <comment value="20201117 benmcalister: query PRSB representation as 0..1, suggest 0..*" />
      <min value="0" />
      <max value="*" />
      <type>
        <code value="Element" />
      </type>
      <mapping>
        <identity value="PRSBRecordStructureAndContent" />
        <map value="PRSBRecordStructureAndContent" />
        <comment value="Source dataset: PRSB Record structure and content https://art-decor.org/art-decor/decor-scenarios--prsb03-?id=2.16.840.1.113883.3.1937.777.28.4.142&amp;effectiveDate=2020-04-28T12:49:07" />
      </mapping>
    </element>
    <element id="AboutMe.about_me">
      <path value="AboutMe.about_me" />
      <short value="What is most important to me" />
      <definition value="This is a record of the things that a person feels it is important to communicate about their needs, strengths, values, concerns and preferences to others providing support and care." />
      <comment value="20201117 benmcalister: query PRSB representation as 0..*, suggest 0..1" />
      <min value="0" />
      <max value="*" />
      <type>
        <code value="BackboneElement" />
      </type>
      <mustSupport value="true" />
    </element>
    <element id="AboutMe.about_me.what_is_most_important_to_me">
      <path value="AboutMe.about_me.what_is_most_important_to_me" />
      <short value="What is most important to me" />
      <definition value="A description of what is most important to you&#xD;&#xA;&#xD;&#xA;Emergency Information&#xD;&#xA;&#xD;&#xA;Include any essential information that any professional in health and social care should know about the you in any situation, including emergencies.&#xD;&#xA;&#xD;&#xA;Other Information&#xD;&#xA;&#xD;&#xA;This could include:&#xD;&#xA;&#xD;&#xA;•   Values&#xD;&#xA;&#xD;&#xA;•   Spirituality/religion&#xD;&#xA;&#xD;&#xA;•   Ethnicity&#xD;&#xA;&#xD;&#xA;•   Culture&#xD;&#xA;&#xD;&#xA;•   Pets&#xD;&#xA;&#xD;&#xA;•   Goals and aspirations&#xD;&#xA;&#xD;&#xA;•  Meaningful activities including leisure activities, visiting places, sport and exercise, listening to music, employment, education, volunteering&#xD;&#xA;&#xD;&#xA;&#xD;&#xA;Operationalization&#xD;&#xA;&#xD;&#xA;Free text or multimedia file" />
      <min value="0" />
      <max value="1" />
      <type>
        <code value="string" />
        <profile value="http://hl7.org/fhir/StructureDefinition/string" />
      </type>
      <mustSupport value="true" />
    </element>
    <element id="AboutMe.about_me.people_who_are_important_to_me">
      <path value="AboutMe.about_me.people_who_are_important_to_me" />
      <short value="People who are important to me" />
      <definition value="Details of who is important to you and why. They could be family members, carers, friends, members of staff etc .&#xD;&#xA;Include how you want the people important to you to be engaged and involved in your care and support in both emergency and normal situations.&#xD;&#xA;&#xD;&#xA;Who should not be contacted or consulted about your care and support and why, if you wish to say" />
      <min value="0" />
      <max value="1" />
      <type>
        <code value="string" />
        <profile value="http://hl7.org/fhir/StructureDefinition/string" />
      </type>
      <mustSupport value="true" />
    </element>
    <element id="AboutMe.about_me.how_i_communicate_and_how_to_communicate_with_me">
      <path value="AboutMe.about_me.how_i_communicate_and_how_to_communicate_with_me" />
      <short value="How I communicate and how to communicate with me" />
      <definition value="A description of how you communicate normally including any communication aids you use, for example a hearing aid.&#xD;&#xA;&#xD;&#xA;•   Include your preferred language of communication, if your first language is not English.&#xD;&#xA;&#xD;&#xA;•   Include how you would communicate when you are in pain or distress.&#xD;&#xA;&#xD;&#xA;•   Include how you communicate choices.&#xD;&#xA;&#xD;&#xA;•   Include how you give feedback or raise a concern.&#xD;&#xA;&#xD;&#xA;&#xD;&#xA;Describe how you would like others to engage and communicate with you , including how you would like to be addressed.&#xD;&#xA;&#xD;&#xA;Operationalization &#xD;&#xA;&#xD;&#xA;Free text or multimedia file" />
      <min value="0" />
      <max value="1" />
      <type>
        <code value="string" />
        <profile value="http://hl7.org/fhir/StructureDefinition/string" />
      </type>
      <mustSupport value="true" />
    </element>
    <element id="AboutMe.about_me.please_do_and_please_dont">
      <path value="AboutMe.about_me.please_do_and_please_dont" />
      <short value="Please do and please don't" />
      <definition value="A description of things you want someone supporting you to do or not to do.&#xD;&#xA;&#xD;&#xA;For example, this might include:&#xD;&#xA;&#xD;&#xA;•   Talk to me not to my carer&#xD;&#xA;&#xD;&#xA;•   Remind me to take my medication&#xD;&#xA;&#xD;&#xA;•   Encourage me to wash my hands regularly&#xD;&#xA;&#xD;&#xA;•   Explain to me what is happening and why&#xD;&#xA;&#xD;&#xA;•   Respond to my communication&#xD;&#xA;&#xD;&#xA;&#xD;&#xA;A description of things you do not want someone supporting for you to do. For example, this might include:&#xD;&#xA;•   Asking questions about certain topics&#xD;&#xA;&#xD;&#xA;•   Making assumptions about something&#xD;&#xA;&#xD;&#xA;•   Providing support when it is not wanted&#xD;&#xA;&#xD;&#xA;•   Talking to you in a certain way" />
      <min value="0" />
      <max value="1" />
      <type>
        <code value="string" />
        <profile value="http://hl7.org/fhir/StructureDefinition/string" />
      </type>
      <mustSupport value="true" />
    </element>
    <element id="AboutMe.about_me.my_wellness">
      <path value="AboutMe.about_me.my_wellness" />
      <short value="My wellness" />
      <definition value="A description covering what you are able to do, how you engage with others and how you feel on a typical day through to on a day when you are unwell.&#xD;&#xA;&#xD;&#xA;•  Include any causes that might result in you becoming unwell and strategies for avoiding or addressing the causes. For example, not drinking enough water could cause constipation.&#xD;&#xA;&#xD;&#xA;•   Include any signs that indicate you might be becoming unwell.&#xD;&#xA;&#xD;&#xA;•   On a bad day describe what is different about what you are able to do, how you engage with others and how you feel.&#xD;&#xA;&#xD;&#xA;•   Include any medical conditions e.g. dementia and any symptoms e.g. itchiness, cough, pain that you are living with and that that affect your everyday life and how you manage those conditions.&#xD;&#xA;&#xD;&#xA;•   Include past health issues or experiences that need to be considered&#xD;&#xA;&#xD;&#xA;&#xD;&#xA;Operationalization &#xD;&#xA;Free text or multimedia file" />
      <min value="0" />
      <max value="1" />
      <type>
        <code value="string" />
        <profile value="http://hl7.org/fhir/StructureDefinition/string" />
      </type>
    </element>
    <element id="AboutMe.about_me.how_and_when_to_support_me">
      <path value="AboutMe.about_me.how_and_when_to_support_me" />
      <short value="How and when to support me" />
      <definition value="A description of how and when you want someone caring for you to support you.&#xD;&#xA;&#xD;&#xA;This could include support needs in an emergency situation (for example taking blood)&#xD;&#xA;&#xD;&#xA;This could include support you need to maintain important routines or to carry out particular activities, for example:&#xD;&#xA;&#xD;&#xA;•  Personal care routines&#xD;&#xA;&#xD;&#xA;•  Eating and drinking&#xD;&#xA;&#xD;&#xA;•  Bedtime routines&#xD;&#xA;&#xD;&#xA;•  Taking medications&#xD;&#xA;&#xD;&#xA;•  Moving and transitioning&#xD;&#xA;&#xD;&#xA;&#xD;&#xA;This could also include support needed with:&#xD;&#xA;•  wearing glasses/hearing aids/false teeth etc.&#xD;&#xA;&#xD;&#xA;•  making informed choices or understanding dangers and risks.&#xD;&#xA;&#xD;&#xA;•  managing your emotions, moods and behaviours.&#xD;&#xA;&#xD;&#xA;•  memory or confusion.&#xD;&#xA;&#xD;&#xA;&#xD;&#xA;Include how your support needs change in different environments.&#xD;&#xA;&#xD;&#xA;Include any triggers that might result in you needing further support and strategies for avoiding or addressing the triggers.&#xD;&#xA;&#xD;&#xA;Include how you want the support to be provided." />
      <min value="0" />
      <max value="1" />
      <type>
        <code value="string" />
        <profile value="http://hl7.org/fhir/StructureDefinition/string" />
      </type>
      <mustSupport value="true" />
    </element>
    <element id="AboutMe.about_me.also_worth_knowing_about_me">
      <path value="AboutMe.about_me.also_worth_knowing_about_me" />
      <short value="Also worth knowing about me" />
      <definition value="A description of what is also worth knowing about you for people caring or supporting you.&#xD;&#xA;&#xD;&#xA;This could include a short history of your life (where you have worked, where you lived, important events in your life, important people in your past life).&#xD;&#xA;&#xD;&#xA;This could include a short profile of your current life:&#xD;&#xA;&#xD;&#xA;•  your work / study&#xD;&#xA;&#xD;&#xA;•  your aspirations&#xD;&#xA;&#xD;&#xA;•  your skills&#xD;&#xA;&#xD;&#xA;•  your networks&#xD;&#xA;&#xD;&#xA;•  things you like e.g. particular foods, places, a football team and things you like to talk about.&#xD;&#xA;&#xD;&#xA;•  things you dislike&#xD;&#xA;&#xD;&#xA;&#xD;&#xA;This could also include any care and support preferences that have not been included elsewhere.&#xD;&#xA;&#xD;&#xA;Operationalization &#xD;&#xA;&#xD;&#xA;Free text or multimedia file" />
      <min value="0" />
      <max value="1" />
      <type>
        <code value="string" />
        <profile value="http://hl7.org/fhir/StructureDefinition/string" />
      </type>
    </element>
    <element id="AboutMe.date">
      <path value="AboutMe.date" />
      <short value="Date" />
      <definition value="This is a record of the date that this information was last updated." />
      <min value="0" />
      <max value="1" />
      <type>
        <code value="dateTime" />
        <profile value="http://hl7.org/fhir/StructureDefinition/dateTime" />
      </type>
      <mustSupport value="true" />
    </element>
    <element id="AboutMe.supported_to_write_this_by">
      <path value="AboutMe.supported_to_write_this_by" />
      <short value="Supported to write this by" />
      <definition value="Where relevant, this is a record of name, relationship/role and contact details of the individual who supported the person to write this section e.g. carer, family member, advocate, professional." />
      <min value="0" />
      <max value="1" />
      <type>
        <code value="string" />
        <profile value="http://hl7.org/fhir/StructureDefinition/string" />
      </type>
      <mustSupport value="true" />
    </element>
  </differential>
</StructureDefinition>