{ "resourceType": "StructureDefinition", "url": "https://example.org/StructureDefinition/AboutMe", "version": "1.2", "name": "AboutMe", "status": "active", "fhirVersion": "3.0.2", "mapping": [ { "identity": "sct", "uri": "http://snomed.info/sct", "name": "SNOMED CT Mappings" } ], "kind": "logical", "abstract": false, "type": "https://example.org/StructureDefinition/AboutMe", "baseDefinition": "http://hl7.org/fhir/StructureDefinition/Element", "derivation": "specialization", "differential": { "element": [ { "id": "AboutMe", "path": "AboutMe", "short": "About Me", "definition": "This is a record of the things that a person feels it is important to communicate about their needs, strengths, values, concerns and preferences to others providing support and care.", "min": 0, "max": "*", "type": [ { "code": "Element" } ] }, { "id": "AboutMe.What is most important to me", "path": "AboutMe.What is most important to me", "code": [ { "system": "http://snomed.info/sct", "code": "363882003", "display": "Motivation (observable entity)" } ], "short": "What is most important to me", "definition": "*A description of what is most important to you*\r\n\r\n###### Emergency Information\r\n\r\nInclude any essential information that any professional in health and social care should know about you in any situation, including emergencies.\r\n\r\n###### Other information\r\n\r\nThis could include:\r\n- Values\r\n- Spirituality and religion\r\n- Ethnicity\r\n- Culture\r\n- Pets\r\n- Goals and aspirations\r\n- Meaningful activities including leisure activities, visiting places, sport and exercise, listening to music, employment, education, volunteering", "min": 0, "max": "1", "type": [ { "code": "markdown", "profile": "http://hl7.org/fhir/StructureDefinition/markdown" }, { "code": "Attachment", "profile": "http://hl7.org/fhir/StructureDefinition/Attachment" } ], "mustSupport": true, "mapping": [ { "identity": "sct", "map": "363882003 | Motivation (observable entity)" } ] }, { "id": "AboutMe.People who are important to me", "path": "AboutMe.People who are important to me", "code": [ { "system": "http://snomed.info/sct", "code": "302160007", "display": "Household, family and support network detail (observable entity)" } ], "short": "People who are important to me", "definition": "*Details of who is important to you and why.*\r\n\r\nThey could be family members, carers, friends, members of staff etc.\r\n\r\nInclude how you want the people important to you to be engaged and involved in your care and support in both emergency and normal situations.\r\n\r\nInclude how you stay connected to the people important to you.\r\n\r\nWho should not be contacted or consulted about your care and support and why, if you wish to say.", "min": 0, "max": "1", "type": [ { "code": "markdown", "profile": "http://hl7.org/fhir/StructureDefinition/markdown" }, { "code": "Attachment", "profile": "http://hl7.org/fhir/StructureDefinition/Attachment" } ], "mustSupport": true, "mapping": [ { "identity": "sct", "map": "302160007 | Household, family and support network detail (observable entity)" } ] }, { "id": "AboutMe.How I communicate and how to communicate with me", "path": "AboutMe.How I communicate and how to communicate with me", "code": [ { "system": "http://snomed.info/sct", "code": "428330008", "display": "Preferred mode of communication (observable entity)" } ], "short": "How I communicate and how to communicate with me", "definition": "*A description of how you communicate normally including any communication aids you use, for example a hearing aid.*\r\n\r\nInclude your preferred language of communication, if your first language is not English.\r\n\r\nInclude how you would communicate when you are in pain or distress. Include how you communicate choices.\r\n\r\nInclude how you give feedback or raise a concern.\r\n\r\nInclude how you like to receive information.\r\n\r\nDescribe how you would like others to engage and communicate with you, including how you would like to be addressed", "min": 0, "max": "1", "type": [ { "code": "markdown", "profile": "http://hl7.org/fhir/StructureDefinition/markdown" }, { "code": "Attachment", "profile": "http://hl7.org/fhir/StructureDefinition/Attachment" } ], "mustSupport": true, "mapping": [ { "identity": "sct", "map": "428330008 | Preferred mode of communication (observable entity)" } ] }, { "id": "AboutMe.My wellness", "path": "AboutMe.My wellness", "code": [ { "system": "http://snomed.info/sct", "code": "363800008", "display": "General wellbeing (observable entity)" } ], "short": "My wellness", "definition": "*A description covering what you are able to do, how you engage with others and how you feel on a typical day through to on a day when you are unwell or really unwell.*\r\n\r\n- Include any causes that might result in you becoming unwell and strategies for avoiding or addressing the causes. For example, not drinking enough water could cause constipation.\r\n- Include any signs that indicate you might be becoming unwell.\r\n- On a bad day describe what is different about what you are able to do, how you engage with others and how you feel.\r\n- Include how your everyday life is affected by any medical conditions, e.g., dementia, andsymptoms, e.g., itchiness, cough or pain, and how you manage those conditions\r\n- Include past health issues or experiences that need to be considered\r\n- Include your wellbeing and lifestyle goals and aspirations", "min": 0, "max": "1", "type": [ { "code": "markdown", "profile": "http://hl7.org/fhir/StructureDefinition/markdown" }, { "code": "Attachment", "profile": "http://hl7.org/fhir/StructureDefinition/Attachment" } ], "mustSupport": true, "mapping": [ { "identity": "sct", "map": "363800008 | General wellbeing (observable entity)" } ] }, { "id": "AboutMe.How and when to support me", "path": "AboutMe.How and when to support me", "code": [ { "system": "http://snomed.info/sct", "code": "1364521000000106", "display": "Trigger factor to activate care plan (observable entity)" } ], "short": "How and when to support me", "definition": "*A description of how and when you want someone caring for you to support you.*\r\n\r\nThis could include support needs in an emergency situation (for example taking blood).\r\n\r\nThis could include support you need to maintain important routines or to carry out particular activities, for example:\r\n\r\n- Personal care routines\r\n- Eating and drinking\r\n- Bedtime routines\r\n- Taking medications\r\n- Moving and transitioning\r\n\r\nThis could also include support needed with:\r\n\r\n- wearing glasses, hearing aids or false teeth etc.\r\n- making informed choices or understanding dangers and risks.\r\n- managing your emotions, moods and behaviours.\r\n- memory or confusion.\r\n\r\nInclude how your support needs change in different environments.\r\n\r\nInclude any triggers that might result in you needing further support and strategies for avoiding or addressing the triggers.\r\n\r\nInclude how you want the support to be provided.", "min": 0, "max": "1", "type": [ { "code": "markdown", "profile": "http://hl7.org/fhir/StructureDefinition/markdown" }, { "code": "Attachment", "profile": "http://hl7.org/fhir/StructureDefinition/Attachment" } ], "mustSupport": true, "mapping": [ { "identity": "sct", "map": "1364521000000106 | Trigger factor to activate care plan (observable entity)" } ] }, { "id": "AboutMe.Please do and please don't", "path": "AboutMe.Please do and please don't", "code": [ { "system": "http://snomed.info/sct", "code": "414642003", "display": "Making considered choices (observable entity)" } ], "short": "Please do and please don't", "definition": "*A description of things you want someone supporting you to do or not to do.*\r\n\r\nFor example, this might include:\r\n\r\n- Talk to me not to my carer\r\n- Remind me to take my medication\r\n- Encourage me to wash my hands regularly\r\n- Explain to me what is happening and why\r\n- Respond to my communication\r\n\r\nA description of things you do not want someone supporting for you to do. For example, this might include:\r\n\r\n- Discussing or asking questions about certain topics\r\n- Making assumptions about something\r\n- Providing support when it is not wanted\r\n- Talking to you in a certain way", "min": 0, "max": "1", "type": [ { "code": "markdown", "profile": "http://hl7.org/fhir/StructureDefinition/markdown" }, { "code": "Attachment", "profile": "http://hl7.org/fhir/StructureDefinition/Attachment" } ], "mustSupport": true, "mapping": [ { "identity": "sct", "map": "414642003 | Making considered choices (observable entity)" } ] }, { "id": "AboutMe.Also worth knowing about me", "path": "AboutMe.Also worth knowing about me", "code": [ { "system": "http://snomed.info/sct", "code": "160476009", "display": "Social / personal history observable (observable entity)" } ], "short": "Also worth knowing about me", "definition": "*A description of what is also worth knowing about you for people caring or supporting you.*\r\n\r\nThis could include a short history of your life (where you have worked, where you lived, important events in your life important people in your past life).\r\n\r\nThis could include a short profile of your current life:\r\n\r\n- your work and/or study\r\n- your aspirations\r\n- your skills\r\n- your networks \r\n- things you like e.g. particular foods, places, a football team and things you like to talk about.\r\n- things you dislike\r\n\r\nThis could also include any care and support preferences that have not been included elsewhere.", "min": 0, "max": "1", "type": [ { "code": "markdown", "profile": "http://hl7.org/fhir/StructureDefinition/markdown" }, { "code": "Attachment", "profile": "http://hl7.org/fhir/StructureDefinition/Attachment" } ], "mustSupport": true, "mapping": [ { "identity": "sct", "map": "160476009 | Social / personal history observable (observable entity)" } ] }, { "id": "AboutMe.Date", "path": "AboutMe.Date", "short": "Date and Time Created", "definition": "This is a record of the date that this information was last updated.", "min": 1, "max": "1", "type": [ { "code": "dateTime", "profile": "http://hl7.org/fhir/StructureDefinition/dateTime" } ], "mustSupport": true }, { "id": "AboutMe.Supported to write this by", "path": "AboutMe.Supported to write this by", "short": "Supported to write this by", "definition": "Where relevant, this is a record of name, relationship/role and contact details of the individual who supported the person to write this section e.g. carer, family member, advocate, professional.", "min": 0, "max": "1", "type": [ { "code": "string", "profile": "http://hl7.org/fhir/StructureDefinition/string" } ], "mustSupport": true } ] } }