<status value="active" /> <date value="2023-10-26T12:54:50.1353924+00:00" /> <publisher value="NICE" /> <contact> <name value="NICE" /> <telecom> <system value="email" /> <value value="vragen@stichting-nice.nl" /> </telecom> </contact> <description value="This profile is for sumbitting data to the NICE related to the patient's respiration. Of interest are the patient's: - FiO2 in the first 24 hours after ICU admission - Highest & lowest respiratory rate in the first 24 hours after ICU admission If also submitting sepsis related data: - Breathing frequency 2 hours before or after suspicion of sepsis" /> <purpose value="This profile is used to submit respiratory related information to the Dutch National Intensive Care Evaluation (NICE). It was derived from the Nictiz Health and Care Information Model (HCIM; Dutch: Zorginformatiebouwsteen or ZIB) Respiration, 2017 release version 3.1" /> <copyright value="CC0" /> <fhirVersion value="3.0.2" /> <mapping> <identity value="NICE-Datadictionary-MDS" /> <uri value="https://www.stichting-nice.nl/dd/#528" /> <name value="NICE-Datadictionary-MDS" /> <comment value="The Minimal Data Set (MDS)" /> </mapping> <mapping> <identity value="NICE-Datadictionary-Sepsis" /> <uri value="https://www.stichting-nice.nl/dd/#646" /> <name value="NICE-Datadictionary-Sepsis" /> <comment value="The sepsis registration" /> </mapping> <kind value="resource" /> <abstract value="false" /> <type value="Observation" /> <baseDefinition value="http://nictiz.nl/fhir/StructureDefinition/zib-Respiration" /> <derivation value="constraint" /> <differential> <element id="Observation"> <path value="Observation" /> <definition value="Respiratory measurements and simple assertions made about a patient or device that administered extra oxygen. This profile should be used to submit the percentage of oxygen inhaled (FiO2) and breathing frequency (normal condition and during suspected sepsis). More information can be found in the NICE data dictionary." /> </element> <element id="Observation.extension"> <path value="Observation.extension" /> <min value="1" /> </element> <element id="Observation.extension:AdministeredOxygen"> <path value="Observation.extension" /> <sliceName value="AdministeredOxygen" /> </element> <element id="Observation.extension:AdministeredOxygen.extension:fiO2"> <path value="Observation.extension.extension" /> <sliceName value="fiO2" /> <mapping> <identity value="NICE-Datadictionary-MDS" /> <map value="https://www.stichting-nice.nl/dd/#114" /> <comment value="FiO2 (MDS)" /> </mapping> </element> <element id="Observation.extension:ExtremeValueType"> <path value="Observation.extension" /> <sliceName value="ExtremeValueType" /> <short value="Highest/lowest vakue indication" /> <definition value="A range of specific NICE Datadictionary elements require to submit a lowest and/or highest measurement. This extension element should be used to differentiate between those two measurement types. The following NICE Datadictionary element requires lowest and/or highest measurements: - Lowest/Highest respiratory rate (MDS)" /> <type> <code value="Extension" /> <profile value="https://fhir.stichting-nice.nl/STU3/StructureDefinition/NICE-ExtremeValueType-2022Q1" /> </type> </element> <element id="Observation.extension:ExtremeValueType.valueCodeableConcept:valueCodeableConcept"> <path value="Observation.extension.valueCodeableConcept" /> <sliceName value="valueCodeableConcept" /> <short value="Value of ExtremeValueType" /> <definition value="Submit "L" for the lowest or "H" for the highest score during the ScoreDay." /> </element> <element id="Observation.extension:Verified"> <path value="Observation.extension" /> <sliceName value="Verified" /> <short value="Specifying validation status" /> <min value="1" /> <max value="1" /> <type> <code value="Extension" /> <profile value="https://fhir.stichting-nice.nl/STU3/StructureDefinition/NICE-Verified-2022Q1" /> </type> </element> <element id="Observation.status"> <path value="Observation.status" /> <short value="final | amended" /> <definition value="The status of the result value. This value SHALL be final or amended." /> </element> <element id="Observation.subject"> <path value="Observation.subject" /> <type> <code value="Reference" /> <targetProfile value="https://fhir.stichting-nice.nl/STU3/StructureDefinition/NICE-Patient-2022Q1" /> </type> </element> <element id="Observation.context"> <path value="Observation.context" /> <type> <code value="Reference" /> <targetProfile value="https://fhir.stichting-nice.nl/STU3/StructureDefinition/NICE-Encounter-2022Q1" /> </type> </element> <element id="Observation.component:BreathingFrequency"> <path value="Observation.component" /> <sliceName value="BreathingFrequency" /> <mapping> <identity value="NICE-Datadictionary-MDS" /> <map value="https://www.stichting-nice.nl/dd/#365" /> <comment value="Highest respiratory rate" /> </mapping> <mapping> <identity value="NICE-Datadictionary-MDS" /> <map value="https://www.stichting-nice.nl/dd/#366" /> <comment value="Lowest respiratory rate" /> </mapping> </element> <element id="Observation.component:BreathingFrequency.valueQuantity:valueQuantity.system"> <path value="Observation.component.valueQuantity.system" /> <fixedUri value="http://unitsofmeasure.org" /> </element> <element id="Observation.component:BreathingFrequencySepsisCodeList"> <path value="Observation.component" /> <sliceName value="BreathingFrequencySepsisCodeList" /> <short value="Breathing freuqency sepsis suspected" /> <definition value="Additional component for submitting respiratory frequency measurements that are required for the sepsis registration. In this case, the respiratory frequency around the time that sepsis was suspected should be submitted." /> <mapping> <identity value="NICE-Datadictionary-Sepsis" /> <map value="https://www.stichting-nice.nl/dd/#663" /> <comment value="Respiratory frequency" /> </mapping> </element> <element id="Observation.component:BreathingFrequencySepsisCodeList.code"> <path value="Observation.component.code" /> <patternCodeableConcept> <coding> <system value="http://loinc.org" /> <code value="9279-1" /> <display value="Respiratory rate" /> </coding> </patternCodeableConcept> </element> <element id="Observation.component:BreathingFrequencySepsisCodeList.code.coding.system"> <path value="Observation.component.code.coding.system" /> <fixedUri value="https://fhir.stichting-nice.nl/NICE-codes" /> </element> <element id="Observation.component:BreathingFrequencySepsisCodeList.code.coding.code"> <path value="Observation.component.code.coding.code" /> <fixedCode value="SuspectedSepsis" /> </element> <element id="Observation.component:BreathingFrequencySepsisCodeList.value[x]:valueCodeableConcept"> <path value="Observation.component.valueCodeableConcept" /> <sliceName value="valueCodeableConcept" /> <definition value="A code from the NICE-HeartRateCategoryCodeList valueset shall be used to specify the breathing frequency during suspected sepsis" /> <type> <code value="CodeableConcept" /> </type> <binding> <strength value="extensible" /> <description value="Breathingfrequency during suspected sepsis" /> <valueSetUri value="https://fhir.stichting-nice.nl/ValueSet/NICE-BreathingFrequencySepsisCodeList" /> </binding> </element> </differential> </StructureDefinition>