<status value="active" /> <date value="2023-10-26T15:14:37.50191+00:00" /> <publisher value="NICE" /> <contact> <name value="NICE" /> <telecom> <system value="email" /> <value value="vragen@stichting-nice.nl" /> </telecom> </contact> <description value="This profile is for sumbitting data to the NICE relating to the patient. This includes the patient's: - Surname - Maiden name - Gender - Date of birth - Wether the patient died in the hospital" /> <purpose value="This profile is used to submit patient related information to the Dutch National Intensive Care Evaluation (NICE). It was derived from the Nictiz Health and Care Information Model (HCIM; Dutch: Zorginformatiebouwsteen or ZIB) Patient, 2017 release version 3.1" /> <copyright value="CC0" /> <fhirVersion value="3.0.2" /> <mapping> <identity value="NICE-Datadictionary-MDS" /> <uri value="https://www.stichting-nice.nl/dd/#528" /> <name value="NICE-Datadictionary-MDS" /> <comment value="The Minimal Data Set (MDS)" /> </mapping> <kind value="resource" /> <abstract value="false" /> <type value="Patient" /> <baseDefinition value="http://fhir.nl/fhir/StructureDefinition/nl-core-patient" /> <derivation value="constraint" /> <differential> <element id="Patient"> <path value="Patient" /> <definition value="Demographics and other administrative information about an individual receiving care or other health-related services." /> </element> <element id="Patient.extension"> <path value="Patient.extension" /> <slicing> <description value="Extensions are always sliced by (at least) a URL." /> <ordered value="false" /> <rules value="open" /> </slicing> <min value="1" /> <mustSupport value="false" /> </element> <element id="Patient.extension:Verified"> <path value="Patient.extension" /> <sliceName value="Verified" /> <short value="Is the instance validated by a medical professional?" /> <definition value="Extension that is used to indicate whether the entire instance has been validated. Every instance shall be validated by a hospital member / datamanager. However, this is not always feasible in case of automated submission of NICE data elements. This extensions shall be used to indicate the validation status of the instance." /> <type> <code value="Extension" /> <profile value="https://fhir.stichting-nice.nl/STU3/StructureDefinition/NICE-Verified-2022Q1" /> </type> </element> <element id="Patient.identifier"> <path value="Patient.identifier" /> <slicing> <discriminator> <type value="pattern" /> <path value="type" /> </discriminator> <discriminator> <type value="value" /> <path value="system" /> </discriminator> <description value="The patient number should be of the type "Internal Patient Identifier". Meaning a number used within a hospital to determine unique patients." /> <rules value="open" /> </slicing> <min value="1" /> <max value="1" /> <mustSupport value="true" /> </element> <element id="Patient.identifier:BSN"> <path value="Patient.identifier" /> <sliceName value="BSN" /> <max value="0" /> </element> <element id="Patient.identifier:patientNumber"> <path value="Patient.identifier" /> <sliceName value="patientNumber" /> <short value="patientNumber" /> <definition value="A unique number for a patient in a specific hospital. This number saved in encrypted format in the NICE database." /> <max value="1" /> <mustSupport value="false" /> <mapping> <identity value="NICE-Datadictionary-MDS" /> <map value="https://www.stichting-nice.nl/dd/#237" /> <comment value="Patient number" /> </mapping> </element> <element id="Patient.identifier:patientNumber.type"> <path value="Patient.identifier.type" /> <min value="1" /> <patternCodeableConcept> <coding> <system value="http://hl7.org/fhir/ValueSet/identifier-type" /> <version value="2.9.0" /> <code value="PI" /> <display value="Patient internal identifier" /> </coding> </patternCodeableConcept> </element> <element id="Patient.name.family"> <path value="Patient.name.family" /> <mustSupport value="true" /> </element> <element id="Patient.name.family.extension:humannameOwnPrefix"> <path value="Patient.name.family.extension" /> <sliceName value="humannameOwnPrefix" /> <definition value="The prefix portion (e.g. voorvoegsel). e.g. 'de', 'van', 'el', 'le' etc." /> <mapping> <identity value="NICE-Datadictionary-MDS" /> <map value="https://www.stichting-nice.nl/dd/#173" /> <comment value="Maiden name" /> </mapping> <mapping> <identity value="NICE-Datadictionary-MDS" /> <map value="https://www.stichting-nice.nl/dd/#401" /> <comment value="Surname" /> </mapping> </element> <element id="Patient.name.family.extension:humannameOwnName"> <path value="Patient.name.family.extension" /> <sliceName value="humannameOwnName" /> <definition value="The patient’s OWN name (includes maiden name if married). The name is always entered for both unmarried and married patients. Patient that did take (or took) the spouse's last name should ALSO enter the spouse's last name in extension.humannamePartnerName. Prepositions like de Vries; or le Faber; or El Abdel, El shall be registered in the family.extension:humannameOwnPrefix. The first four letters of the surname are encrypted and saved in the NICE database. Therefore, only the first four letters shall be submitted." /> <mapping> <identity value="NICE-Datadictionary-MDS" /> <map value="https://www.stichting-nice.nl/dd/#401" /> <comment value="Surname" /> </mapping> <mapping> <identity value="NICE-Datadictionary-MDS" /> <map value="https://www.stichting-nice.nl/dd/#173" /> <comment value="Maiden name" /> </mapping> </element> <element id="Patient.name.family.extension:humannamePartnerPrefix"> <path value="Patient.name.family.extension" /> <sliceName value="humannamePartnerPrefix" /> <definition value="The prefix portion (e.g. voorvoegsel). e.g. 'de', 'van', 'el', 'le' etc." /> <mapping> <identity value="NICE-Datadictionary-MDS" /> <map value="https://www.stichting-nice.nl/dd/#401" /> <comment value="Surname" /> </mapping> </element> <element id="Patient.name.family.extension:humannamePartnerName"> <path value="Patient.name.family.extension" /> <sliceName value="humannamePartnerName" /> <definition value="The partner name should be submitted in case the patient is married AND has taken their spouse's last name. Prepositions like de Vries; or le Faber; or El Abdel, shall be registered in the family.extension:humannamePartnerPrefix. The first four letters of the maiden name are encrypted and saved in the NICE database. Therefore, only the first four letters shall be submitted." /> <mapping> <identity value="NICE-Datadictionary-MDS" /> <map value="https://www.stichting-nice.nl/dd/#401" /> <comment value="Surname" /> </mapping> </element> <element id="Patient.gender"> <path value="Patient.gender" /> <mustSupport value="true" /> <mapping> <identity value="NICE-Datadictionary-MDS" /> <map value="https://www.stichting-nice.nl/dd/#129" /> <comment value="Gender" /> </mapping> </element> <element id="Patient.gender.extension:GeslachtCodelijst"> <path value="Patient.gender.extension" /> <sliceName value="GeslachtCodelijst" /> </element> <element id="Patient.gender.extension:GeslachtCodelijst.valueCodeableConcept:valueCodeableConcept"> <path value="Patient.gender.extension.valueCodeableConcept" /> <sliceName value="valueCodeableConcept" /> <definition value="The patient’s gender. 'F' means female, 'M' means male. These definitions are according to the Nictiz ValueSet. In the NICE data dictionary the code 'U' is defined as: unsure or transsexual (from hormone treatment). However, this code should be further broken down to either 'UN' (undifferentiated) or 'UNK' (Unknown)." /> </element> <element id="Patient.birthDate"> <path value="Patient.birthDate" /> <definition value="The date of birth for the individual. If the date of birth is unknown, use 15 for the date of birth. If the month of birth is unknown use 06 for the month of birth. If the year of birth is unknown, estimate this. This field is used to calculate age at the time of IC admission." /> <mustSupport value="true" /> <mapping> <identity value="NICE-Datadictionary-MDS" /> <map value="https://www.stichting-nice.nl/dd/#65" /> <comment value="Date of birth" /> </mapping> </element> <element id="Patient.deceased[x]"> <path value="Patient.deceased[x]" /> <mustSupport value="true" /> <mapping> <identity value="NICE-Datadictionary-MDS" /> <map value="https://www.stichting-nice.nl/dd/#82" /> <comment value="Patient died in hospital" /> </mapping> </element> <element id="Patient.address.country.extension:countryCode"> <path value="Patient.address.country.extension" /> <sliceName value="countryCode" /> </element> <element id="Patient.address.country.extension:countryCode.valueCodeableConcept:valueCodeableConcept.coding"> <path value="Patient.address.country.extension.valueCodeableConcept.coding" /> <slicing> <description value="Either GBA or ISO country code." /> <rules value="open" /> </slicing> </element> <element id="Patient.contact.relationship"> <path value="Patient.contact.relationship" /> <slicing> <description value="Relationship with contact (eg.: Father, Sister, Friend, etc.)" /> <rules value="open" /> </slicing> </element> <element id="Patient.communication.extension:languageProficiency"> <path value="Patient.communication.extension" /> <sliceName value="languageProficiency" /> </element> <element id="Patient.communication.extension:languageProficiency.extension"> <path value="Patient.communication.extension.extension" /> <min value="2" /> </element> </differential> </StructureDefinition>