{
  "resourceType": "Questionnaire",
  "id": "mii-qst-pro-eortc-qlq-c30",
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  "url": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/Questionnaire/mii-qst-pro-eortc-qlq-c30",
  "title": "EORTC QLQ-C30 Quality of Life Questionnaire Version 3.0",
  "description": "EORTC QLQ-C30 Version 3.0 Quality of Life Questionnaire - Complete implementation with all 30 items and 15 scale scores",
  "code": [
    {
      "system": "http://snomed.info/sct",
      "code": "273446001",
      "display": "European Organisation for Research and Treatment of Cancer - Quality of Life questionnaire (assessment scale)"
    },
    {
      "system": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/CodeSystem/mii-cs-pro-questionnaire-catalogue",
      "code": "eortc-qlq-c30",
      "display": "EORTC QLQ-C30 Quality of Life Questionnaire"
    }
  ],
  "extension": [
    {
      "extension": [
        {
          "url": "displayable",
          "valueBoolean": true
        },
        {
          "url": "collectable",
          "valueBoolean": true
        },
        {
          "url": "calculatable",
          "valueBoolean": true
        },
        {
          "url": "extractable",
          "valueBoolean": true
        },
        {
          "url": "domainAligned",
          "valueBoolean": false
        }
      ],
      "url": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/StructureDefinition/mii-ex-pro-questionnaire-capabilities"
    }
  ],
  "contained": [
    {
      "resourceType": "CodeSystem",
      "id": "eortc-qlq-c30-cs",
      "meta": {
        "profile": [
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      },
      "concept": [
        {
          "designation": [
            {
              "language": "de",
              "value": "Überhaupt nicht"
            }
          ],
          "extension": [
            {
              "url": "http://hl7.org/fhir/StructureDefinition/ordinalValue",
              "valueDecimal": 1
            }
          ],
          "code": "not-at-all",
          "display": "Not at all"
        },
        {
          "designation": [
            {
              "language": "de",
              "value": "Wenig"
            }
          ],
          "extension": [
            {
              "url": "http://hl7.org/fhir/StructureDefinition/ordinalValue",
              "valueDecimal": 2
            }
          ],
          "code": "a-little",
          "display": "A little"
        },
        {
          "designation": [
            {
              "language": "de",
              "value": "Mäßig"
            }
          ],
          "extension": [
            {
              "url": "http://hl7.org/fhir/StructureDefinition/ordinalValue",
              "valueDecimal": 3
            }
          ],
          "code": "quite-a-bit",
          "display": "Quite a bit"
        },
        {
          "designation": [
            {
              "language": "de",
              "value": "Sehr"
            }
          ],
          "extension": [
            {
              "url": "http://hl7.org/fhir/StructureDefinition/ordinalValue",
              "valueDecimal": 4
            }
          ],
          "code": "very-much",
          "display": "Very much"
        },
        {
          "designation": [
            {
              "language": "de",
              "value": "1 - Sehr schlecht"
            }
          ],
          "extension": [
            {
              "url": "http://hl7.org/fhir/StructureDefinition/ordinalValue",
              "valueDecimal": 1
            }
          ],
          "code": "1-very-poor",
          "display": "1 - Very poor"
        },
        {
          "designation": [
            {
              "language": "de",
              "value": "2 - Schlecht"
            }
          ],
          "extension": [
            {
              "url": "http://hl7.org/fhir/StructureDefinition/ordinalValue",
              "valueDecimal": 2
            }
          ],
          "code": "2-poor",
          "display": "2 - Poor"
        },
        {
          "designation": [
            {
              "language": "de",
              "value": "3 - Mittelmäßig"
            }
          ],
          "extension": [
            {
              "url": "http://hl7.org/fhir/StructureDefinition/ordinalValue",
              "valueDecimal": 3
            }
          ],
          "code": "3-fair",
          "display": "3 - Fair"
        },
        {
          "designation": [
            {
              "language": "de",
              "value": "4 - Gut"
            }
          ],
          "extension": [
            {
              "url": "http://hl7.org/fhir/StructureDefinition/ordinalValue",
              "valueDecimal": 4
            }
          ],
          "code": "4-good",
          "display": "4 - Good"
        },
        {
          "designation": [
            {
              "language": "de",
              "value": "5 - Sehr gut"
            }
          ],
          "extension": [
            {
              "url": "http://hl7.org/fhir/StructureDefinition/ordinalValue",
              "valueDecimal": 5
            }
          ],
          "code": "5-very-good",
          "display": "5 - Very good"
        },
        {
          "designation": [
            {
              "language": "de",
              "value": "6 - Ausgezeichnet"
            }
          ],
          "extension": [
            {
              "url": "http://hl7.org/fhir/StructureDefinition/ordinalValue",
              "valueDecimal": 6
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          ],
          "code": "6-excellent",
          "display": "6 - Excellent"
        },
        {
          "designation": [
            {
              "language": "de",
              "value": "7 - Vollkommen"
            }
          ],
          "extension": [
            {
              "url": "http://hl7.org/fhir/StructureDefinition/ordinalValue",
              "valueDecimal": 7
            }
          ],
          "code": "7-perfect",
          "display": "7 - Perfect"
        }
      ],
      "version": "2026.2.0",
      "url": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/CodeSystem/mii-cs-pro-eortc-qlq-c30",
      "status": "active",
      "content": "complete",
      "caseSensitive": true
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    {
      "resourceType": "ValueSet",
      "id": "eortc-qlq-c30-4pt",
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              {
                "code": "a-little",
                "display": "A little"
              },
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                "code": "quite-a-bit",
                "display": "Quite a bit"
              },
              {
                "code": "very-much",
                "display": "Very much"
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            ],
            "system": "https://www.medizininformatik-initiative.de/fhir/ext/modul-pro/CodeSystem/mii-cs-pro-eortc-qlq-c30"
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                "code": "4-good"
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              {
                "code": "5-very-good"
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              {
                "code": "6-excellent"
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              {
                "code": "7-perfect"
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      "version": "2026.2.0",
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  ],
  "item": [
    {
      "linkId": "QLQ-C30.Introduction",
      "type": "display",
      "text": "We are interested in some things about you and your health. Please answer all of the questions yourself by circling the number that best applies to you. There are no 'right' or 'wrong' answers. The information that you provide will remain strictly confidential."
    },
    {
      "linkId": "QLQ-C30.Section1",
      "type": "display",
      "text": "During the past week:"
    },
    {
      "linkId": "qlq-c30-q01",
      "type": "choice",
      "prefix": "1",
      "text": "Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q02",
      "type": "choice",
      "prefix": "2",
      "text": "Do you have any trouble taking a long walk?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q03",
      "type": "choice",
      "prefix": "3",
      "text": "Do you have any trouble taking a short walk outside of the house?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q04",
      "type": "choice",
      "prefix": "4",
      "text": "Do you need to stay in bed or a chair during the day?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q05",
      "type": "choice",
      "prefix": "5",
      "text": "Do you need help with eating, dressing, washing yourself or using the toilet?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q06",
      "type": "choice",
      "prefix": "6",
      "text": "Were you limited in doing either your work or other daily activities?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q07",
      "type": "choice",
      "prefix": "7",
      "text": "Were you limited in pursuing your hobbies or other leisure time activities?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q08",
      "type": "choice",
      "prefix": "8",
      "text": "Were you short of breath?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q09",
      "type": "choice",
      "prefix": "9",
      "text": "Have you had pain?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q10",
      "type": "choice",
      "prefix": "10",
      "text": "Did you need to rest?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q11",
      "type": "choice",
      "prefix": "11",
      "text": "Have you had trouble sleeping?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q12",
      "type": "choice",
      "prefix": "12",
      "text": "Have you felt weak?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q13",
      "type": "choice",
      "prefix": "13",
      "text": "Have you lacked appetite?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q14",
      "type": "choice",
      "prefix": "14",
      "text": "Have you felt nauseated?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q15",
      "type": "choice",
      "prefix": "15",
      "text": "Have you vomited?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q16",
      "type": "choice",
      "prefix": "16",
      "text": "Have you been constipated?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q17",
      "type": "choice",
      "prefix": "17",
      "text": "Have you had diarrhea?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q18",
      "type": "choice",
      "prefix": "18",
      "text": "Were you tired?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q19",
      "type": "choice",
      "prefix": "19",
      "text": "Did pain interfere with your daily activities?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q20",
      "type": "choice",
      "prefix": "20",
      "text": "Have you had difficulty in concentrating on things, like reading a newspaper or watching television?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q21",
      "type": "choice",
      "prefix": "21",
      "text": "Did you feel tense?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q22",
      "type": "choice",
      "prefix": "22",
      "text": "Did you worry?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q23",
      "type": "choice",
      "prefix": "23",
      "text": "Did you feel irritable?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q24",
      "type": "choice",
      "prefix": "24",
      "text": "Did you feel depressed?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q25",
      "type": "choice",
      "prefix": "25",
      "text": "Have you had difficulty remembering things?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q26",
      "type": "choice",
      "prefix": "26",
      "text": "Has your physical condition or medical treatment interfered with your family life?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q27",
      "type": "choice",
      "prefix": "27",
      "text": "Has your physical condition or medical treatment interfered with your social activities?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "qlq-c30-q28",
      "type": "choice",
      "prefix": "28",
      "text": "Has your physical condition or medical treatment caused you financial difficulties?",
      "answerValueSet": "#eortc-qlq-c30-4pt"
    },
    {
      "linkId": "QLQ-C30.Section2",
      "type": "display",
      "text": "For the following questions please circle the number between 1 and 7 that best applies to you"
    },
    {
      "linkId": "qlq-c30-q29",
      "type": "choice",
      "prefix": "29",
      "text": "How would you rate your overall health during the past week?",
      "answerValueSet": "#eortc-qlq-c30-7pt"
    },
    {
      "linkId": "qlq-c30-q30",
      "type": "choice",
      "prefix": "30",
      "text": "How would you rate your overall quality of life during the past week?",
      "answerValueSet": "#eortc-qlq-c30-7pt"
    },
    {
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                "expression": "(1 - (((%resource.item.where(linkId.matches('^qlq-c30-q0[1-5]$')).answer.value.ordinal().sum()) / 5) - 1) / 3) * 100"
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              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
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          ],
          "linkId": "score-pf",
          "type": "decimal",
          "text": "Physical Functioning Score",
          "readOnly": true
        },
        {
          "extension": [
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              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "(1 - (((%resource.item.where(linkId='qlq-c30-q06' or linkId='qlq-c30-q07').answer.value.ordinal().sum()) / 2) - 1) / 3) * 100"
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          "linkId": "score-rf",
          "type": "decimal",
          "text": "Role Functioning Score",
          "readOnly": true
        },
        {
          "extension": [
            {
              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "(1 - (((%resource.item.where(linkId.matches('^qlq-c30-q2[1-4]$')).answer.value.ordinal().sum()) / 4) - 1) / 3) * 100"
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              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-calculatedExpression"
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              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
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          ],
          "linkId": "score-ef",
          "type": "decimal",
          "text": "Emotional Functioning Score",
          "readOnly": true
        },
        {
          "extension": [
            {
              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "(1 - (((%resource.item.where(linkId='qlq-c30-q20' or linkId='qlq-c30-q25').answer.value.ordinal().sum()) / 2) - 1) / 3) * 100"
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              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
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          "linkId": "score-cf",
          "type": "decimal",
          "text": "Cognitive Functioning Score",
          "readOnly": true
        },
        {
          "extension": [
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              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "(1 - (((%resource.item.where(linkId='qlq-c30-q26' or linkId='qlq-c30-q27').answer.value.ordinal().sum()) / 2) - 1) / 3) * 100"
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              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-calculatedExpression"
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              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
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          ],
          "linkId": "score-sf",
          "type": "decimal",
          "text": "Social Functioning Score",
          "readOnly": true
        },
        {
          "extension": [
            {
              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "(((%resource.item.where(linkId='qlq-c30-q10' or linkId='qlq-c30-q12' or linkId='qlq-c30-q18').answer.value.ordinal().sum()) / 3) - 1) / 3) * 100"
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              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-calculatedExpression"
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              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
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          ],
          "linkId": "score-fa",
          "type": "decimal",
          "text": "Fatigue Score",
          "readOnly": true
        },
        {
          "extension": [
            {
              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "(((%resource.item.where(linkId='qlq-c30-q14' or linkId='qlq-c30-q15').answer.value.ordinal().sum()) / 2) - 1) / 3) * 100"
              },
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-calculatedExpression"
            },
            {
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
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          ],
          "linkId": "score-nv",
          "type": "decimal",
          "text": "Nausea and Vomiting Score",
          "readOnly": true
        },
        {
          "extension": [
            {
              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "(((%resource.item.where(linkId='qlq-c30-q09' or linkId='qlq-c30-q19').answer.value.ordinal().sum()) / 2) - 1) / 3) * 100"
              },
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-calculatedExpression"
            },
            {
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
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          ],
          "linkId": "score-pa",
          "type": "decimal",
          "text": "Pain Score",
          "readOnly": true
        },
        {
          "extension": [
            {
              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "((%resource.item.where(linkId='qlq-c30-q08').answer.value.ordinal() - 1) / 3) * 100"
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              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-calculatedExpression"
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            {
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
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          ],
          "linkId": "score-dy",
          "type": "decimal",
          "text": "Dyspnoea Score",
          "readOnly": true
        },
        {
          "extension": [
            {
              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "((%resource.item.where(linkId='qlq-c30-q11').answer.value.ordinal() - 1) / 3) * 100"
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              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-calculatedExpression"
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            {
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
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          ],
          "linkId": "score-sl",
          "type": "decimal",
          "text": "Insomnia Score",
          "readOnly": true
        },
        {
          "extension": [
            {
              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "((%resource.item.where(linkId='qlq-c30-q13').answer.value.ordinal() - 1) / 3) * 100"
              },
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-calculatedExpression"
            },
            {
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
            }
          ],
          "linkId": "score-ap",
          "type": "decimal",
          "text": "Appetite Loss Score",
          "readOnly": true
        },
        {
          "extension": [
            {
              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "((%resource.item.where(linkId='qlq-c30-q16').answer.value.ordinal() - 1) / 3) * 100"
              },
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-calculatedExpression"
            },
            {
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
            }
          ],
          "linkId": "score-co",
          "type": "decimal",
          "text": "Constipation Score",
          "readOnly": true
        },
        {
          "extension": [
            {
              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "((%resource.item.where(linkId='qlq-c30-q17').answer.value.ordinal() - 1) / 3) * 100"
              },
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-calculatedExpression"
            },
            {
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
            }
          ],
          "linkId": "score-di",
          "type": "decimal",
          "text": "Diarrhoea Score",
          "readOnly": true
        },
        {
          "extension": [
            {
              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "((%resource.item.where(linkId='qlq-c30-q28').answer.value.ordinal() - 1) / 3) * 100"
              },
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-calculatedExpression"
            },
            {
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
            }
          ],
          "linkId": "score-fi",
          "type": "decimal",
          "text": "Financial Difficulties Score",
          "readOnly": true
        },
        {
          "extension": [
            {
              "valueExpression": {
                "language": "text/fhirpath",
                "expression": "(((%resource.item.where(linkId='qlq-c30-q29' or linkId='qlq-c30-q30').answer.value.ordinal().sum()) / 2) - 1) / 6) * 100"
              },
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-calculatedExpression"
            },
            {
              "url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-observationExtract",
              "valueBoolean": true
            }
          ],
          "linkId": "score-ql",
          "type": "decimal",
          "text": "Global Health Status / Quality of Life Score",
          "readOnly": true
        }
      ],
      "linkId": "QLQ-C30.Scores",
      "type": "group",
      "text": "Calculated Scores (0-100 scale)"
    }
  ],
  "version": "2026.2.0",
  "status": "active",
  "experimental": true,
  "language": "en",
  "publisher": "Medizininformatik Initiative (MII)",
  "copyright": "© Copyright 1995 EORTC Quality of Life Group. All rights reserved. Version 3.0"
}