NPCR Anmälan FHIR Implementation Guide

About

About

This IG is a technical artifact of a Master's thesis in Health Informatics at Karolinska Institutet.

  • Author: Xue Wu
  • Main supervisor: Sabine Koch (KI)
  • Co-supervisor: Rong Chen (Cambio Healthcare Systems / KI LIME)
  • Collaboration partner: Cambio Healthcare Systems

Documentation Reference Version

The profiles, constraints, and terminology in this IG are based on the following NPCR documentation and external standards.

NPCR Source Documentation (in scope)

Document Version / Date Primary Role
NPCR Variabelbeskrivning Version 2.5 (2025-10-08) Variable-level specifications (code, datatype, Värdedomän, Kommentar, giltighetstid). Primary source for most profiles.
Anmälan PDF (registrar-facing form) Gäller från 260313 (valid from 2026-03-13) The form registrars fill. Ground truth for variable coverage.
NPCR Informationsspecifikation, Diagnostik v1.6 Information model specification covering Anmälan's diagnostic data.
Inklusionskriterier Prostatacancer 2025-01-07 Inclusion criteria defining reportable patients. Informed ICD-10 C61 binding.
Variabelspecifikation MR, Biopsi & Patologi Current (as downloaded) Supplementary spec for MRI findings, biopsy, and pathology variables.
Speglade variabler SVF-INCA till NPCR Current (as downloaded) Register-to-register variable mirroring; referenced in NPCRReferralServiceRequest.
Styrdokument, Nationella Prostatacancerregistret (NPCR) Current (as downloaded) Governance context (not profile-specific).

All NPCR documentation referenced above is publicly available at cancercentrum.se.

External Standards

Standard Version Used For
HL7 FHIR R4 (4.0.1, normative) Target standard for this IG.
UICC TNM Classification of Malignant Tumours 8th edition T/N/M staging reference.
LOINC Continuous release PSA (2857-1); Pathology report (60568-3).
SNOMED CT International Edition Prostate volume observation (249606000).
ICD-10 Swedish use Prostate cancer diagnosis (C61).
UCUM Current Units of measure (ng/mL, ml, mm).