HdBe-BarthelADLIndex

CBB	Concept	Status
HdBe-BarthelADLIndex	The Barthel ADL index is a validated scale used to measure and track patients’ activities of daily living (ADL) and indirectly, the extent to which they are dependent on help. The list comprises 10 variables: bowels, bladder, grooming, toilet use, feeding, transfers (from chair to bed and vice versa), mobility, dressing, climbing stairs and bathing, which are all given a score. The total score is the sum of the scores of the 10 variables. Purpose Gaining insight into the dependence on healthcare for carrying out general daily activities by means of a validated score. This is done in order to adjust the care to meet the needs of the patient if necessary.	draft

CBB

Concept

Status

The Barthel ADL index is a validated scale used to measure and track patients’ activities of daily living (ADL) and indirectly, the extent to which they are dependent on help. The list comprises 10 variables: bowels, bladder, grooming, toilet use, feeding, transfers (from chair to bed and vice versa), mobility, dressing, climbing stairs and bathing, which are all given a score. The total score is the sum of the scores of the 10 variables.

Purpose

Gaining insight into the dependence on healthcare for carrying out general daily activities by means of a validated score. This is done in order to adjust the care to meet the needs of the patient if necessary.

draft

BarthelAdlindex		BarthelAdlindex	There are no (further) constraints on this element Element Id BarthelAdlindex Short description BarthelADLIndex Definition Root concept of the BarthelADLIndex information model. This root concept contains all data elements of the BarthelADLIndex information model. Data Type BarthelAdlindex
Bowels	1..1	CodeableConceptBinding	There are no (further) constraints on this element Element Id BarthelAdlindex.Bowels Short description Bowels Definition The bowel function describes the extent of fecal incontinence. The measurement takes the condition as measured in the preceding week. In this scale, the following interpretations are used: Incontinent: incontinent or enema required. Accident: max. 1 accident per week. Continent: continent for the entire week. Data Type CodeableConcept Binding Bowels codes Darm (required)
Bladder	1..1	CodeableConceptBinding	There are no (further) constraints on this element Element Id BarthelAdlindex.Bladder Short description Bladder Definition The bladder function describes the extent of urinary incontinence. The measurement takes the condition as measured in the preceding week. In this scale, the following interpretations are used: Incontinent: incontinent or catheter required. Accident: max. 1 accident per 24 hours. Continent: continent for the entire week or patients who can attend to their own catheter. Data Type CodeableConcept Binding Bladder codes Blaas (required)
Grooming	1..1	CodeableConceptBinding	There are no (further) constraints on this element Element Id BarthelAdlindex.Grooming Short description Grooming Definition Grooming indicates the extent to which a patient is capable of maintaining their hygiene and appearance. This refers to personal hygiene such as brushing teeth, brushing hair, shaving and washing. The measurement takes the condition as measured in the preceding 24-48 hours. In this scale, the following interpretations are used: Dependent: not capable of grooming independently. Independent: capable of brushing teeth, brushing hair, shaving and washing independently. Data Type CodeableConcept Binding Grooming codes UiterlijkeVerzorging (required)
ToiletUse	1..1	CodeableConceptBinding	There are no (further) constraints on this element Element Id BarthelAdlindex.ToiletUse Short description ToiletUse Definition Toilet use indicates the extent to which a patient is capable of using the toilet independently. In this scale, the following interpretations are used: Dependent: dependent. Help: needs some help but can do certain things themselves, like wiping. Independent: capable of using the toilet, sufficiently undressing, cleaning, getting dressed and leaving. Data Type CodeableConcept Binding ToiletUse codes Toiletgebruik (required)
Feeding	1..1	CodeableConceptBinding	There are no (further) constraints on this element Element Id BarthelAdlindex.Feeding Short description Feeding Definition Feeding indicates the extent to which a patient is capable of eating independently. In this scale, the following interpretations are used: Not independent: not capable of eating independently. Help: food is puréed; patient does feed themselves, but needs help cutting food, spreading butter, et cetera. Independent: capable of eating normal food (including hard food). The food can be cooked and served by others, but is not to be puréed. Data Type CodeableConcept Binding Feeding codes Eten (required)
Transfers	1..1	CodeableConceptBinding	There are no (further) constraints on this element Element Id BarthelAdlindex.Transfers Short description Transfers Definition Transfers indicates the extent to which a patient is capable of independently getting from a chair to the bed and vice versa. In this scale, the following interpretations are used: Not independent: not capable of sitting up; the use of a patient hoist is required. Major help: help from a strong, trained individual or 2 regular individuals, but the patient can sit up by themselves. Minor help: a person to supervise or provide some help, either verbally or physically. Independent: does not need help. Data Type CodeableConcept Binding Transfers codes Transfers (required)
Mobility	1..1	CodeableConceptBinding	There are no (further) constraints on this element Element Id BarthelAdlindex.Mobility Short description Mobility Definition Mobility indicates the extent to which a patient is capable of moving independently. In this scale, the following interpretations are used: Dependent: cannot move themselves. Independent with wheelchair: uses a wheelchair, with the ability to go around corners or open doors without help. Assisted walking: help from one person, for example verbally or physically. Independent: can move within the home or department; aids may be used. Data Type CodeableConcept Binding Mobility codes Mobiliteit (required)
Dressing	1..1	CodeableConceptBinding	There are no (further) constraints on this element Element Id BarthelAdlindex.Dressing Short description Dressing Definition Dressing indicates the extent to which a patient is capable of dressing and undressing themselves independently. In this scale, the following interpretations are used: * Dependent: dependent. Help: needs help but can do about half themselves, such as only needing help with buttons and/or zippers. Independent: capable of selecting and putting on clothes. Data Type CodeableConcept Binding Dressing codes AanUitkleden (required)
ManagingStairs	1..1	CodeableConceptBinding	There are no (further) constraints on this element Element Id BarthelAdlindex.ManagingStairs Short description ManagingStairs Definition Managing stairs indicates the extent to which a patient is capable of going up and down stairs independently. In this scale, the following interpretations are used: Dependent: not capable of going up and down stairs. Help: needs help, for example verbally, physically or in the form of an aid. Independent: capable of going up and down stairs independently, and if necessary can carry their own aid. Data Type CodeableConcept Binding ManagingStairs codes TrappenLopen (required)
Bathing	1..1	CodeableConceptBinding	There are no (further) constraints on this element Element Id BarthelAdlindex.Bathing Short description Bathing Definition Bathing indicates the extent to which a patient is capable of independently taking a bath or shower. In this scale, the following interpretations are used: Dependent: not capable of bathing independently. Independent: capable of getting in and out of the bath or shower and bathing without help or supervision. Data Type CodeableConcept Binding Bathing codes BadenDouchen (required)
TotalScore	1..1	Count	There are no (further) constraints on this element Element Id BarthelAdlindex.TotalScore Short description TotalScore Definition The Barthel ADL index is the sum of the scores of the individual variables. The interpretation of this total score is 0-9 for serious dependence, 10-19 for slight dependence and 20 for independence. Twenty is the maximum score. Data Type Count

BarthelAdlindex		0..*
BarthelAdlindex.Bowels	CodeableConcept	1..1
BarthelAdlindex.Bladder	CodeableConcept	1..1
BarthelAdlindex.Grooming	CodeableConcept	1..1
BarthelAdlindex.ToiletUse	CodeableConcept	1..1
BarthelAdlindex.Feeding	CodeableConcept	1..1
BarthelAdlindex.Transfers	CodeableConcept	1..1
BarthelAdlindex.Mobility	CodeableConcept	1..1
BarthelAdlindex.Dressing	CodeableConcept	1..1
BarthelAdlindex.ManagingStairs	CodeableConcept	1..1
BarthelAdlindex.Bathing	CodeableConcept	1..1
BarthelAdlindex.TotalScore	Count	1..1

BarthelADLIndex
Definition	Base definition for all elements in a resource.
Cardinality	0...*
Invariants	ele-1:All FHIR elements must have a @value or children `hasValue() or (children().count() > id.count())`
Mappings	rim:n/a
BarthelADLIndex.id
Definition	Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.
Cardinality	0...1
Type	System.String
Mappings	rim:n/a
BarthelADLIndex.extension
Definition	May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.
Cardinality	0...*
Type	Extension
Alias	extensions, user content
Comments	There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.
Slicing	Unordered, Open, by url(Value)
Invariants	ele-1:All FHIR elements must have a @value or children `hasValue() or (children().count() > id.count())` ext-1:Must have either extensions or value[x], not both `extension.exists() != value.exists()`
Mappings	rim:n/a rim:N/A
BarthelADLIndex.BarthelAdlindex
Definition	Root concept of the BarthelADLIndex information model. This root concept contains all data elements of the BarthelADLIndex information model.
Cardinality	0...*

Example instances

[CBB name]
[Concept name ]	[example value]

// example of NameInformation

## Example instances

| NameInformation      |                   |
|----------------------|-------------------|
| FirstNames | Johanna Petronella Maria   
| Initials | J.P.M. 
| GivenName | Jo 
| NameUsage | Geslachtsnaam partner gevolgd door eigen geslachtsnaam
| LastName.Prefix | van
| LastName.LastName | Putten
| LastNamePartner.PartnerPrefix | van der
| LastNamePartner.PartnerLastName | Giessen
| Titles |

zib [zib name + version](https://zibs.nl/wiki/[zib name + version(release)]) difference

Concept	Category	Description
`[element.path]`	[category of change]	[Description of change]([Reference to ticket/issue/zulip chat using MarkDown link])

Terminology Bindings

Path	Name	Strength	URL
Bowels	Darm	required	https://fhir.healthdata.be/ValueSet/Darm
Bladder	Blaas	required	https://fhir.healthdata.be/ValueSet/Blaas
Grooming	UiterlijkeVerzorging	required	https://fhir.healthdata.be/ValueSet/UiterlijkeVerzorging
ToiletUse	Toiletgebruik	required	https://fhir.healthdata.be/ValueSet/Toiletgebruik
Feeding	Eten	required	https://fhir.healthdata.be/ValueSet/Eten
Transfers	Transfers	required	https://fhir.healthdata.be/ValueSet/Transfers
Mobility	Mobiliteit	required	https://fhir.healthdata.be/ValueSet/Mobiliteit
Dressing	AanUitkleden	required	https://fhir.healthdata.be/ValueSet/AanUitkleden
ManagingStairs	TrappenLopen	required	https://fhir.healthdata.be/ValueSet/TrappenLopen
Bathing	BadenDouchen	required	https://fhir.healthdata.be/ValueSet/BadenDouchen