Notice
- Important: This guidance is under active development by NHS England and content may be added or updated on a regular basis.
- This Implementation Guide is currently in Draft and SHOULD NOT be used for development or active implementation without express direction from the NHS England Genomics Unit.
QuestionnaireResponse-RoD-PheobeSmithamYPAForm-Example
Example of a filled Young Person Assent Form.
| QuestionnaireResponse |
| id : QuestionnaireResponse-RoD-PheobeSmithamYPAForm-Example |
| questionnaire : https://fhir.nhs.uk/Questionnaire/Questionnaire-RoD-YoungPersonAssentForm-Example |
| status : completed |
| basedOn |
| reference : ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example |
| subject |
| identifier |
| system : https://fhir.nhs.uk/Id/nhs-number |
| value : 9449307539 |
| display : A Patient |
| authored : 2024-01-25 |
| author |
| type : PractitionerRole |
| identifier |
| system : https://fhir.nhs.uk/Id/sds-role-profile-id |
| value : 999999999999 |
| source |
| type : PractitionerRole |
| identifier |
| system : https://fhir.nhs.uk/Id/sds-role-profile-id |
| value : 999999999999 |
| item |
| linkId : patientDetails |
| text : Patient Details |
| item |
| linkId : givenName |
| text : First Name |
| answer |
| value : Phoebe |
| item |
| linkId : familyName |
| text : Last Name |
| answer |
| value : Smitham |
| item |
| linkId : nhs_Number |
| text : NHS number (or postcode if not not known) |
| answer |
| value : 9449307539 |
| item |
| linkId : birthDate |
| text : Date of Birth |
| answer |
| value : 2013-09-27 |
| item |
| linkId : declarationResponse |
| text : Please indicate your choices below by ticking the appropriate box: |
| item |
| linkId : consentQuestion1 |
| text : 1. Have you read information or has someone explained the research to you? |
| answer |
| value : True |
| item |
| linkId : consentQuestion2 |
| text : 2. Have you asked all the questions you want? |
| answer |
| value : True |
| item |
| linkId : consentQuestion3 |
| text : 3. Have you had your questions answered in a way you understand? |
| answer |
| value : True |
| item |
| linkId : consentQuestion4 |
| text : 4. Do you understand it’s OK to say you don’t want to take part – but that your parent(s), or guardian who look after you, will make the final choice? |
| answer |
| value : True |
| item |
| linkId : consentQuestion5 |
| text : 5. Are you happy to take part? |
| answer |
| value : True |
| item |
| linkId : isRemoteConsentTrue |
| text : Assent obtained remotely, no participant signature |
| answer |
| value : True |
{ "resourceType": "QuestionnaireResponse", "id": "QuestionnaireResponse-RoD-PheobeSmithamYPAForm-Example", "questionnaire": "https://fhir.nhs.uk/Questionnaire/Questionnaire-RoD-YoungPersonAssentForm-Example", "status": "completed", "basedOn": [ { "reference": "ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example" } ], "subject": { "identifier": { "system": "https://fhir.nhs.uk/Id/nhs-number", "value": "9449307539" }, "display": "A Patient" }, "authored": "2024-01-25", "author": { "type": "PractitionerRole", "identifier": { "system": "https://fhir.nhs.uk/Id/sds-role-profile-id", "value": "999999999999" } }, "source": { "type": "PractitionerRole", "identifier": { "system": "https://fhir.nhs.uk/Id/sds-role-profile-id", "value": "999999999999" } }, "item": [ { "linkId": "patientDetails", "text": "Patient Details", "item": [ { "linkId": "givenName", "text": "First Name", "answer": [ { "valueString": "Phoebe" } ] }, { "linkId": "familyName", "text": "Last Name", "answer": [ { "valueString": "Smitham" } ] }, { "linkId": "nhs_Number", "text": "NHS number (or postcode if not not known)", "answer": [ { "valueString": "9449307539" } ] }, { "linkId": "birthDate", "text": "Date of Birth", "answer": [ { "valueDate": "2013-09-27" } ] } ] }, { "linkId": "declarationResponse", "text": "Please indicate your choices below by ticking the appropriate box:", "item": [ { "linkId": "consentQuestion1", "text": "1. Have you read information or has someone explained the research to you?", "answer": [ { "valueBoolean": true } ] }, { "linkId": "consentQuestion2", "text": "2. Have you asked all the questions you want?", "answer": [ { "valueBoolean": true } ] }, { "linkId": "consentQuestion3", "text": "3. Have you had your questions answered in a way you understand?", "answer": [ { "valueBoolean": true } ] }, { "linkId": "consentQuestion4", "text": "4. Do you understand it’s OK to say you don’t want to take part – but that your parent(s), or guardian who look after you, will make the final choice?", "answer": [ { "valueBoolean": true } ] }, { "linkId": "consentQuestion5", "text": "5. Are you happy to take part?", "answer": [ { "valueBoolean": true } ] } ] }, { "linkId": "isRemoteConsentTrue", "text": "Assent obtained remotely, no participant signature", "answer": [ { "valueBoolean": true } ] } ] }
<QuestionnaireResponse xmlns="http://hl7.org/fhir"> <id value="QuestionnaireResponse-RoD-PheobeSmithamYPAForm-Example" /> <basedOn> <reference value="ServiceRequest/ServiceRequest-WGSTestOrderForm-TrioTestingProband-Example" /> </basedOn> <questionnaire value="https://fhir.nhs.uk/Questionnaire/Questionnaire-RoD-YoungPersonAssentForm-Example" /> <status value="completed" /> <subject> <identifier> <system value="https://fhir.nhs.uk/Id/nhs-number" /> <value value="9449307539" /> </identifier> <display value="A Patient" /> </subject> <authored value="2024-01-25" /> <author> <type value="PractitionerRole" /> <identifier> <system value="https://fhir.nhs.uk/Id/sds-role-profile-id" /> <value value="999999999999" /> </identifier> </author> <source> <type value="PractitionerRole" /> <identifier> <system value="https://fhir.nhs.uk/Id/sds-role-profile-id" /> <value value="999999999999" /> </identifier> </source> <item> <linkId value="patientDetails" /> <text value="Patient Details" /> <item> <linkId value="givenName" /> <text value="First Name" /> <answer> <valueString value="Phoebe" /> </answer> </item> <item> <linkId value="familyName" /> <text value="Last Name" /> <answer> <valueString value="Smitham" /> </answer> </item> <item> <linkId value="nhs_Number" /> <text value="NHS number (or postcode if not not known)" /> <answer> <valueString value="9449307539" /> </answer> </item> <item> <linkId value="birthDate" /> <text value="Date of Birth" /> <answer> <valueDate value="2013-09-27" /> </answer> </item> </item> <item> <linkId value="declarationResponse" /> <text value="Please indicate your choices below by ticking the appropriate box:" /> <item> <linkId value="consentQuestion1" /> <text value="1. Have you read information or has someone explained the research to you?" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="consentQuestion2" /> <text value="2. Have you asked all the questions you want?" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="consentQuestion3" /> <text value="3. Have you had your questions answered in a way you understand?" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="consentQuestion4" /> <text value="4. Do you understand it’s OK to say you don’t want to take part – but that your parent(s), or guardian who look after you, will make the final choice?" /> <answer> <valueBoolean value="true" /> </answer> </item> <item> <linkId value="consentQuestion5" /> <text value="5. Are you happy to take part?" /> <answer> <valueBoolean value="true" /> </answer> </item> </item> <item> <linkId value="isRemoteConsentTrue" /> <text value="Assent obtained remotely, no participant signature" /> <answer> <valueBoolean value="true" /> </answer> </item> </QuestionnaireResponse>