Draft preBallot - This specification is under preBallot review and subject to change. It should not be used for implementation purposes. . . . . For a full list of available versions, see the Directory of published versions

GenderIdentityCode

Link to ValueSet

This link will take you to this ValueSet on Simplifier.

gender-identity-value-vs

Canonical URL

https://fhir.infoway-inforoute.ca/ValueSet/genderidentityvaluecode

Resource content

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ValueSet 'GenderIdentityValueSet'

Published by	Canada Health Infoway
Status	Draft (since 2025-03-31)
Experimental	False

This valueset specifies terms which represent an individual's personal experience of being a woman, man, nonbinary, or how the person prefers to self-describe. People may identify with more than one gender identity or use different gender identities in different settings. This resource is an informative value set; a normative subset containing the expanded values can be found on Canada Health Infoway's Terminology Server.

Contact Information

Website: http://www.infoway-inforoute.c...
Email: standards@infoway-inforoute.ca

This value set includes codes from the following code systems:

The following codes from system: SNOMED_CT

Code	Display
446141000124107	Woman
446151000124109	Man
33791000087105	Nonbinary
51371000087107	Ciswoman
51411000087106	Transwoman
51361000087103	Cisman
51401000087109	Transman
51351000087101	Agender
51381000087109	Fluid gender identity
51391000087106	Transfeminine
51421000087103	Transmasculine
33771000087106	Indigenous gender identity
33801000087109	Two-Spirit
51341000087104	Indigiqueer

The following codes from system: v3.NullFlavor
Code Display
UNC Un-encoded
UNK Unknown
NI No Information
NASK Not asked
ASKU Asked but unknown
The following codes from system: DataAbsentReason
Code Display
asked-declined Asked but declined

Code	Display
UNC	Un-encoded
UNK	Unknown
NI	No Information
NASK	Not asked
ASKU	Asked but unknown

Code	Display
asked-declined	Asked but declined

<ValueSet xmlns="http://hl7.org/fhir">
    <id value="gender-identity-value-vs" />
    <url value="https://fhir.infoway-inforoute.ca/ValueSet/genderidentityvaluecode" />
    <name value="GenderIdentityValueSet" />
    <title value="Gender Identity Value Set" />
    <status value="draft" />
    <experimental value="false" />
    <date value="2025-03-31" />
    <publisher value="Canada Health Infoway" />
    <contact>
        <telecom>
            <system value="url" />
            <value value="http://www.infoway-inforoute.ca" />
        </telecom>
        <telecom>
            <system value="email" />
            <value value="standards@infoway-inforoute.ca" />
        </telecom>
    </contact>
    <description value="This valueset specifies terms which represent an individual&#39;s personal experience of being a woman, man, nonbinary, or how the person prefers to self-describe. People may identify with more than one gender identity or use different gender identities in different settings. This resource is an informative value set; a normative subset containing the expanded values can be found on Canada Health Infoway&#39;s [Terminology Server](https://infocentral.infoway-inforoute.ca/en/tools/standards-tools/terminology-server)." />
    <jurisdiction>
        <coding>
            <system value="urn:iso:std:iso:3166" />
            <code value="CA" />
        </coding>
    </jurisdiction>
    <copyright value="Copyright &#169; 2025+ Canada Health Infoway. All rights reserved. [Terms of Use and License Agreements](https://ic.infoway-inforoute.ca/en/about/tou). [Privacy Policy](https://www.infoway-inforoute.ca/en/legal/privacy-policy)." />
    <compose>
        <include>
            <system value="http://snomed.info/sct" />
            <concept>
                <code value="446141000124107" />
                <display value="Woman" />
            </concept>
            <concept>
                <code value="446151000124109" />
                <display value="Man" />
            </concept>
            <concept>
                <code value="33791000087105" />
                <display value="Nonbinary" />
            </concept>
            <concept>
                <code value="51371000087107" />
                <display value="Ciswoman" />
            </concept>
            <concept>
                <code value="51411000087106" />
                <display value="Transwoman" />
            </concept>
            <concept>
                <code value="51361000087103" />
                <display value="Cisman" />
            </concept>
            <concept>
                <code value="51401000087109" />
                <display value="Transman" />
            </concept>
            <concept>
                <code value="51351000087101" />
                <display value="Agender" />
            </concept>
            <concept>
                <code value="51381000087109" />
                <display value="Fluid gender identity" />
            </concept>
            <concept>
                <code value="51391000087106" />
                <display value="Transfeminine" />
            </concept>
            <concept>
                <code value="51421000087103" />
                <display value="Transmasculine" />
            </concept>
            <concept>
                <code value="33771000087106" />
                <display value="Indigenous gender identity" />
            </concept>
            <concept>
                <code value="33801000087109" />
                <display value="Two-Spirit" />
            </concept>
            <concept>
                <code value="51341000087104" />
                <display value="Indigiqueer" />
            </concept>
        </include>
        <include>
            <system value="http://terminology.hl7.org/CodeSystem/v3-NullFlavor" />
            <concept>
                <code value="UNC" />
                <display value="Un-encoded" />
            </concept>
            <concept>
                <code value="UNK" />
                <display value="Unknown" />
            </concept>
            <concept>
                <code value="NI" />
                <display value="No Information" />
            </concept>
            <concept>
                <code value="NASK" />
                <display value="Not asked" />
            </concept>
            <concept>
                <code value="ASKU" />
                <display value="Asked but unknown" />
            </concept>
        </include>
        <include>
            <system value="http://terminology.hl7.org/CodeSystem/data-absent-reason" />
            <concept>
                <code value="asked-declined" />
                <display value="Asked but declined" />
            </concept>
        </include>
    </compose>
</ValueSet>

{
    "resourceType": "ValueSet",
    "id": "gender-identity-value-vs",
    "url": "https://fhir.infoway-inforoute.ca/ValueSet/genderidentityvaluecode",
    "name": "GenderIdentityValueSet",
    "title": "Gender Identity Value Set",
    "status": "draft",
    "experimental": false,
    "date": "2025-03-31",
    "publisher": "Canada Health Infoway",
    "contact":  [
        {
            "telecom":  [
                {
                    "system": "url",
                    "value": "http://www.infoway-inforoute.ca"
                },
                {
                    "system": "email",
                    "value": "standards@infoway-inforoute.ca"
                }
            ]
        }
    ],
    "description": "This valueset specifies terms which represent an individual's personal experience of being a woman, man, nonbinary, or how the person prefers to self-describe. People may identify with more than one gender identity or use different gender identities in different settings. This resource is an informative value set; a normative subset containing the expanded values can be found on Canada Health Infoway's [Terminology Server](https://infocentral.infoway-inforoute.ca/en/tools/standards-tools/terminology-server).",
    "jurisdiction":  [
        {
            "coding":  [
                {
                    "system": "urn:iso:std:iso:3166",
                    "code": "CA"
                }
            ]
        }
    ],
    "copyright": "Copyright © 2025+ Canada Health Infoway. All rights reserved. [Terms of Use and License Agreements](https://ic.infoway-inforoute.ca/en/about/tou). [Privacy Policy](https://www.infoway-inforoute.ca/en/legal/privacy-policy).",
    "compose": {
        "include":  [
            {
                "system": "http://snomed.info/sct",
                "concept":  [
                    {
                        "code": "446141000124107",
                        "display": "Woman"
                    },
                    {
                        "code": "446151000124109",
                        "display": "Man"
                    },
                    {
                        "code": "33791000087105",
                        "display": "Nonbinary"
                    },
                    {
                        "code": "51371000087107",
                        "display": "Ciswoman"
                    },
                    {
                        "code": "51411000087106",
                        "display": "Transwoman"
                    },
                    {
                        "code": "51361000087103",
                        "display": "Cisman"
                    },
                    {
                        "code": "51401000087109",
                        "display": "Transman"
                    },
                    {
                        "code": "51351000087101",
                        "display": "Agender"
                    },
                    {
                        "code": "51381000087109",
                        "display": "Fluid gender identity"
                    },
                    {
                        "code": "51391000087106",
                        "display": "Transfeminine"
                    },
                    {
                        "code": "51421000087103",
                        "display": "Transmasculine"
                    },
                    {
                        "code": "33771000087106",
                        "display": "Indigenous gender identity"
                    },
                    {
                        "code": "33801000087109",
                        "display": "Two-Spirit"
                    },
                    {
                        "code": "51341000087104",
                        "display": "Indigiqueer"
                    }
                ]
            },
            {
                "system": "http://terminology.hl7.org/CodeSystem/v3-NullFlavor",
                "concept":  [
                    {
                        "code": "UNC",
                        "display": "Un-encoded"
                    },
                    {
                        "code": "UNK",
                        "display": "Unknown"
                    },
                    {
                        "code": "NI",
                        "display": "No Information"
                    },
                    {
                        "code": "NASK",
                        "display": "Not asked"
                    },
                    {
                        "code": "ASKU",
                        "display": "Asked but unknown"
                    }
                ]
            },
            {
                "system": "http://terminology.hl7.org/CodeSystem/data-absent-reason",
                "concept":  [
                    {
                        "code": "asked-declined",
                        "display": "Asked but declined"
                    }
                ]
            }
        ]
    }
}