<status value="draft" /> <date value="2024-06-18" /> <publisher value="openEHR" /> <contact> <telecom> <system value="url" /> <value value="http://www.veratech.es" /> </telecom> </contact> <description value="Functional Assessment of Cancer Therapy-General, a 45-Item measure of physical, role, emotional, and social/family functioning, as well additional concern and global quality of life in patients with hepatobiliary cancer." /> <purpose value="To record the results for each component parameter and their total sum for the FACT-Hep measure." /> <fhirVersion value="4.0.0" /> <mapping> <identity value="openEHR" /> <uri value="http://openehr.org" /> <name value="openEHR Mapping" /> </mapping> <mapping> <identity value="openEHR-natural" /> <uri value="http://openehr.org" /> <name value="openEHR natural path" /> </mapping> <kind value="logical" /> <abstract value="false" /> <type value="StructureDefinition" /> <baseDefinition value="http://hl7.org/fhir/StructureDefinition/Element" /> <snapshot> <element id="FACT_Hep"> <path value="FACT_Hep" /> <short value="FACT-Hep" /> <definition value="Functional Assessment of Cancer Therapy-General, a 45-Item measure of physical, role, emotional, and social/family functioning, as well additional concern and global quality of life in patients with hepatobiliary cancer." /> <min value="1" /> <max value="1" /> <base> <path value="FACT_Hep" /> <min value="1" /> <max value="1" /> </base> <type> <code value="BackboneElement" /> </type> <mustSupport value="true" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.protocol"> <path value="FACT_Hep.protocol" /> <short value="Item tree" /> <definition value="@ internal @" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.protocol" /> <min value="0" /> <max value="1" /> </base> <type> <code value="BackboneElement" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.protocol.Extension"> <path value="FACT_Hep.protocol.Extension" /> <short value="Extension" /> <definition value="Additional information required to extend the model with local content or to align with other reference models or formalisms." /> <min value="0" /> <max value="*" /> <base> <path value="FACT_Hep.protocol.Extension" /> <min value="0" /> <max value="*" /> </base> <type> <code value="BackboneElement" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History"> <path value="FACT_Hep.History" /> <short value="History" /> <definition value="@ internal @" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History" /> <min value="0" /> <max value="1" /> </base> <type> <code value="BackboneElement" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days"> <path value="FACT_Hep.History.The_past_7_days" /> <short value="The past 7 days" /> <definition value="The standard \"past 7 days\" recording of FACT scores." /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days" /> <min value="0" /> <max value="1" /> </base> <type> <code value="BackboneElement" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data"> <path value="FACT_Hep.History.The_past_7_days.data" /> <short value="Tree" /> <definition value="@ internal @" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data" /> <min value="0" /> <max value="1" /> </base> <type> <code value="BackboneElement" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Lack_of_energy"> <path 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<definition value="I have nausea" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Nausea" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Nausea.value"> <path value="FACT_Hep.History.The_past_7_days.data.Nausea.value" /> <short value="Nausea" /> <definition value="I have nausea" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Nausea.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Trouble_on_meeting_family_needs_due_to_physical_condition"> <path value="FACT_Hep.History.The_past_7_days.data.Trouble_on_meeting_family_needs_due_to_physical_condition" /> <short value="Trouble on meeting family needs due to physical condition" /> <definition value="Because of my physical condition, I have trouble meeting the needs of my family" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Trouble_on_meeting_family_needs_due_to_physical_condition" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Trouble_on_meeting_family_needs_due_to_physical_condition.value"> <path value="FACT_Hep.History.The_past_7_days.data.Trouble_on_meeting_family_needs_due_to_physical_condition.value" /> <short value="Trouble on meeting family needs due to physical condition" /> <definition value="Because of my physical condition, I have trouble meeting the needs of my family" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Trouble_on_meeting_family_needs_due_to_physical_condition.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Pain"> <path value="FACT_Hep.History.The_past_7_days.data.Pain" /> <short value="Pain" /> <definition value="I have pain" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Pain" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Pain.value"> <path value="FACT_Hep.History.The_past_7_days.data.Pain.value" /> <short value="Pain" /> <definition value="I have pain" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Pain.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Bothered_by_side_effects_of_treatment"> <path value="FACT_Hep.History.The_past_7_days.data.Bothered_by_side_effects_of_treatment" /> <short value="Bothered by side effects of treatment" /> <definition value="I am bothered by side effects of treatment" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Bothered_by_side_effects_of_treatment" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Bothered_by_side_effects_of_treatment.value"> <path value="FACT_Hep.History.The_past_7_days.data.Bothered_by_side_effects_of_treatment.value" /> <short value="Bothered by side effects of treatment" /> <definition value="I am bothered by side effects of treatment" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Bothered_by_side_effects_of_treatment.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Felt_ill"> <path value="FACT_Hep.History.The_past_7_days.data.Felt_ill" /> <short value="Felt ill" /> <definition value="I feel ill" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Felt_ill" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Felt_ill.value"> <path value="FACT_Hep.History.The_past_7_days.data.Felt_ill.value" /> <short value="Felt ill" /> <definition value="I feel ill" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Felt_ill.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Forced_to_spend_time_in_bed"> <path value="FACT_Hep.History.The_past_7_days.data.Forced_to_spend_time_in_bed" /> <short value="Forced to spend time in bed" /> <definition value="I am forced to spend time in bed" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Forced_to_spend_time_in_bed" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Forced_to_spend_time_in_bed.value"> <path value="FACT_Hep.History.The_past_7_days.data.Forced_to_spend_time_in_bed.value" /> <short value="Forced to spend time in bed" /> <definition value="I am forced to spend time in bed" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Forced_to_spend_time_in_bed.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Physical_well_being_subscale_score"> <path value="FACT_Hep.History.The_past_7_days.data.Physical_well_being_subscale_score" /> <short value="Physical well-being subscale score" /> <definition value="The score for the physical well-being subscale." /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Physical_well_being_subscale_score" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Physical_well_being_subscale_score.value"> <path value="FACT_Hep.History.The_past_7_days.data.Physical_well_being_subscale_score.value" /> <short value="Physical well-being subscale score" /> <definition value="The score for the physical well-being subscale." /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Physical_well_being_subscale_score.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="Quantity" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Felt_close_to_friends"> <path value="FACT_Hep.History.The_past_7_days.data.Felt_close_to_friends" /> <short value="Felt close to friends" /> <definition value="I feel close to my friends" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Felt_close_to_friends" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Felt_close_to_friends.value"> <path value="FACT_Hep.History.The_past_7_days.data.Felt_close_to_friends.value" /> <short value="Felt close to friends" /> <definition value="I feel close to my friends" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Felt_close_to_friends.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Got_emotional_support_from_family"> <path value="FACT_Hep.History.The_past_7_days.data.Got_emotional_support_from_family" /> <short value="Got emotional support from family" /> <definition value="I get emotional support from my family" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Got_emotional_support_from_family" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Got_emotional_support_from_family.value"> <path value="FACT_Hep.History.The_past_7_days.data.Got_emotional_support_from_family.value" /> <short value="Got emotional support from family" /> <definition value="I get emotional support from my family" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Got_emotional_support_from_family.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Got_support_from_friends"> <path value="FACT_Hep.History.The_past_7_days.data.Got_support_from_friends" /> <short value="Got support from friends" /> <definition value="I get support from my friends" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Got_support_from_friends" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Got_support_from_friends.value"> <path value="FACT_Hep.History.The_past_7_days.data.Got_support_from_friends.value" /> <short value="Got support from friends" /> <definition value="I get support from my friends" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Got_support_from_friends.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Family_has_accepted_illness"> <path value="FACT_Hep.History.The_past_7_days.data.Family_has_accepted_illness" /> <short value="Family has accepted illness" /> <definition value="My family has accepted my illness" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Family_has_accepted_illness" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Family_has_accepted_illness.value"> <path value="FACT_Hep.History.The_past_7_days.data.Family_has_accepted_illness.value" /> <short value="Family has accepted illness" /> <definition value="My family has accepted my illness" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Family_has_accepted_illness.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Satisfied_with_family_communication_about_illness"> <path value="FACT_Hep.History.The_past_7_days.data.Satisfied_with_family_communication_about_illness" /> <short value="Satisfied with family communication about illness" /> <definition value="I am satisfied with family communication about my illness" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Satisfied_with_family_communication_about_illness" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Satisfied_with_family_communication_about_illness.value"> <path value="FACT_Hep.History.The_past_7_days.data.Satisfied_with_family_communication_about_illness.value" /> <short value="Satisfied with family communication about illness" /> <definition value="I am satisfied with family communication about my illness" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Satisfied_with_family_communication_about_illness.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Felt_close_to_partner"> <path value="FACT_Hep.History.The_past_7_days.data.Felt_close_to_partner" /> <short value="Felt close to partner" /> <definition value="I feel close to my partner (or the person who is my main support)" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Felt_close_to_partner" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Felt_close_to_partner.value"> <path value="FACT_Hep.History.The_past_7_days.data.Felt_close_to_partner.value" /> <short value="Felt close to partner" /> <definition value="I feel close to my partner (or the person who is my main support)" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Felt_close_to_partner.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Satisfied_with_sex_life"> <path value="FACT_Hep.History.The_past_7_days.data.Satisfied_with_sex_life" /> <short value="Satisfied with sex life" /> <definition value="I am satisfied 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id="FACT_Hep.History.The_past_7_days.data.Felt_sad"> <path value="FACT_Hep.History.The_past_7_days.data.Felt_sad" /> <short value="Felt sad" /> <definition value="I feel sad" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Felt_sad" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Felt_sad.value"> <path value="FACT_Hep.History.The_past_7_days.data.Felt_sad.value" /> <short value="Felt sad" /> <definition value="I feel sad" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Felt_sad.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Satisfied_with_coping_with_illness"> <path 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<short value="Able to do usual activities" /> <definition value="I am able to do my usual activities" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Able_to_do_usual_activities" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Able_to_do_usual_activities.value"> <path value="FACT_Hep.History.The_past_7_days.data.Able_to_do_usual_activities.value" /> <short value="Able to do usual activities" /> <definition value="I am able to do my usual activities" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Able_to_do_usual_activities.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Bothered_by_jaundice"> <path 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value="I have had a change in the way food tastes" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Changes_on_food_taste" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Changes_on_food_taste.value"> <path value="FACT_Hep.History.The_past_7_days.data.Changes_on_food_taste.value" /> <short value="Changes on food taste" /> <definition value="I have had a change in the way food tastes" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Changes_on_food_taste.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Chills"> <path value="FACT_Hep.History.The_past_7_days.data.Chills" /> <short value="Chills" /> <definition value="I have had chills" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Chills" /> <min value="0" /> <max value="1" /> </base> </element> <element id="FACT_Hep.History.The_past_7_days.data.Chills.value"> <path value="FACT_Hep.History.The_past_7_days.data.Chills.value" /> <short value="Chills" /> <definition value="I have had chills" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Chills.value" /> <min value="0" /> <max value="1" /> </base> <type> <code value="CodeableConcept" /> </type> <mustSupport value="false" /> <isModifier value="false" /> <isSummary value="true" /> </element> <element id="FACT_Hep.History.The_past_7_days.data.Dry_mouth"> <path value="FACT_Hep.History.The_past_7_days.data.Dry_mouth" /> <short value="Dry mouth" /> <definition value="My mouth is dry" /> <min value="0" /> <max value="1" /> <base> <path value="FACT_Hep.History.The_past_7_days.data.Dry_mouth" /> <min value="0" /> <max value="1" 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