<status value="draft" /> <date value="2022-03-24T10:46:38.3751258+00:00" /> <publisher value="biobank.cy" /> <contact> <name value="Molecular Medicine Research Center (MMRC)" /> <telecom> <system value="email" /> <value value="biobank@ucy.ac.cy" /> <use value="work" /> </telecom> </contact> <description value="The pseudo-anonymized participants joining the biobank.cy data warehouse through particular research projects. Every BIOBANKCYSDDonor corresponds to exactly one BIOBANKCYSDResearchSubject and exactly one BIOBANKCYSDCitizen." /> <fhirVersion value="4.0.1" /> <kind value="resource" /> <abstract value="false" /> <type value="Patient" /> <baseDefinition value="http://hl7.org/fhir/StructureDefinition/Patient" /> <derivation value="constraint" /> <differential> <element id="Patient"> <path value="Patient" /> <short value="Information about an individual" /> <definition value="Demographics and other administrative information about an receiving research or diagnostic services in biobank.cy" /> <mustSupport value="true" /> </element> <element id="Patient.extension"> <path value="Patient.extension" /> <slicing> <discriminator> <type value="value" /> <path value="url" /> </discriminator> <rules value="open" /> </slicing> <min value="0" /> </element> <element id="Patient.extension:growupPlace"> <path value="Patient.extension" /> <sliceName value="growupPlace" /> <min value="0" /> <max value="1" /> <type> <code value="Extension" /> <profile value="http://ig.biobank.cy/fhir/StructureDefinition/biobankcy-ext-growupplace" /> </type> <isModifier value="false" /> </element> <element id="Patient.extension:growupPlace.value[x]"> <path value="Patient.extension.value[x]" /> <min value="1" /> </element> <element id="Patient.extension:sistersNumber"> <path value="Patient.extension" /> <sliceName value="sistersNumber" /> <min value="0" /> <max value="1" /> <type> <code value="Extension" /> <profile value="http://ig.biobank.cy/fhir/StructureDefinition/biobankcy-ext-siblingsnumber" /> </type> <isModifier value="false" /> </element> <element id="Patient.extension:sistersNumber.extension"> <path value="Patient.extension.extension" /> <slicing> <discriminator> <type value="value" /> <path value="url" /> </discriminator> <rules value="open" /> </slicing> <min value="0" /> </element> <element id="Patient.extension:sistersNumber.extension:siblingRelationship"> <path value="Patient.extension.extension" /> <sliceName value="siblingRelationship" /> <min value="0" /> </element> <element id="Patient.extension:sistersNumber.extension:siblingRelationship.value[x]"> <path value="Patient.extension.extension.value[x]" /> <min value="1" /> <type> <code value="CodeableConcept" /> <profile value="http://hl7.org/fhir/uv/ips/StructureDefinition/CodeableConcept-uv-ips" /> </type> <patternCodeableConcept> <coding> <system value="http://terminology.hl7.org/CodeSystem/v3-RoleCode" /> <code value="SIS" /> <display value="sister" /> </coding> </patternCodeableConcept> <binding> <strength value="extensible" /> <valueSet value="http://hl7.org/fhir/ValueSet/sibling-relationship-codes" /> </binding> </element> <element id="Patient.extension:sistersNumber.extension:siblingRelationship.value[x].coding"> <path value="Patient.extension.extension.value[x].coding" /> <min value="1" /> <max value="1" /> </element> <element id="Patient.extension:sistersNumber.extension:siblingRelationship.value[x].coding.system"> <path value="Patient.extension.extension.value[x].coding.system" /> <min value="1" /> </element> <element id="Patient.extension:sistersNumber.extension:siblingRelationship.value[x].coding.code"> <path value="Patient.extension.extension.value[x].coding.code" /> <min value="1" /> </element> <element id="Patient.extension:sistersNumber.extension:siblingRelationship.value[x].coding.display"> <path value="Patient.extension.extension.value[x].coding.display" /> <min value="1" /> </element> <element id="Patient.extension:sistersNumber.extension:siblingsNumber"> <path value="Patient.extension.extension" /> <sliceName value="siblingsNumber" /> <min value="0" /> </element> <element id="Patient.extension:sistersNumber.extension:siblingsNumber.value[x]"> <path value="Patient.extension.extension.value[x]" /> <min value="1" /> </element> <element id="Patient.extension:brothersNumber"> <path value="Patient.extension" /> <sliceName value="brothersNumber" /> <min value="0" /> <max value="1" /> <type> <code value="Extension" /> <profile value="http://ig.biobank.cy/fhir/StructureDefinition/biobankcy-ext-siblingsnumber" /> </type> <isModifier value="false" /> </element> <element id="Patient.extension:brothersNumber.extension"> <path value="Patient.extension.extension" /> <slicing> <discriminator> <type value="value" /> <path value="url" /> </discriminator> <rules value="open" /> </slicing> <min value="0" /> </element> <element id="Patient.extension:brothersNumber.extension:siblingRelationship"> <path value="Patient.extension.extension" /> <sliceName value="siblingRelationship" /> <min value="0" /> </element> <element id="Patient.extension:brothersNumber.extension:siblingRelationship.value[x]"> <path value="Patient.extension.extension.value[x]" /> <min value="1" /> <type> <code value="CodeableConcept" /> <profile value="http://hl7.org/fhir/uv/ips/StructureDefinition/CodeableConcept-uv-ips" /> </type> <patternCodeableConcept> <coding> <system value="http://terminology.hl7.org/CodeSystem/v3-RoleCode" /> <code value="BRO" /> <display value="brother" /> </coding> </patternCodeableConcept> <binding> <strength value="extensible" /> <valueSet value="http://hl7.org/fhir/ValueSet/sibling-relationship-codes" /> </binding> </element> <element id="Patient.extension:brothersNumber.extension:siblingRelationship.value[x].coding"> <path value="Patient.extension.extension.value[x].coding" /> <min value="1" /> <max value="1" /> </element> <element id="Patient.extension:brothersNumber.extension:siblingRelationship.value[x].coding.system"> <path value="Patient.extension.extension.value[x].coding.system" /> <min value="1" /> </element> <element id="Patient.extension:brothersNumber.extension:siblingRelationship.value[x].coding.code"> <path value="Patient.extension.extension.value[x].coding.code" /> <min value="1" /> </element> <element id="Patient.extension:brothersNumber.extension:siblingRelationship.value[x].coding.display"> <path value="Patient.extension.extension.value[x].coding.display" /> <min value="1" /> </element> <element id="Patient.extension:brothersNumber.extension:siblingsNumber"> <path value="Patient.extension.extension" /> <sliceName value="siblingsNumber" /> <min value="0" /> </element> <element id="Patient.extension:brothersNumber.extension:siblingsNumber.value[x]"> <path value="Patient.extension.extension.value[x]" /> <min value="1" /> </element> <element id="Patient.extension:educationalLevel"> <path value="Patient.extension" /> <sliceName value="educationalLevel" /> <min value="0" /> <max value="1" /> <type> <code value="Extension" /> <profile value="http://ig.biobank.cy/fhir/StructureDefinition/biobankcy-ext-educationlevel" /> </type> <isModifier value="false" /> </element> <element id="Patient.extension:educationalLevel.value[x]"> <path value="Patient.extension.value[x]" /> <type> <code value="CodeableConcept" /> <profile value="http://hl7.org/fhir/uv/ips/StructureDefinition/CodeableConcept-uv-ips" /> </type> <binding> <strength value="required" /> </binding> </element> <element id="Patient.extension:educationalLevel.value[x].coding.system"> <path value="Patient.extension.value[x].coding.system" /> <min value="1" /> </element> <element id="Patient.extension:educationalLevel.value[x].coding.code"> <path value="Patient.extension.value[x].coding.code" /> <min value="1" /> </element> <element id="Patient.extension:educationalLevel.value[x].coding.display"> <path value="Patient.extension.value[x].coding.display" /> <min value="1" /> </element> <element id="Patient.extension:motherPlaceOfOrigin"> <path value="Patient.extension" /> <sliceName value="motherPlaceOfOrigin" /> <min value="0" /> <max value="1" /> <type> <code value="Extension" /> <profile value="http://ig.biobank.cy/fhir/StructureDefinition/biobankcy-ext-relativepersonplaceoforigin" /> </type> <isModifier value="false" /> </element> <element id="Patient.extension:motherPlaceOfOrigin.extension"> <path value="Patient.extension.extension" /> <slicing> <discriminator> <type value="value" /> <path value="url" /> </discriminator> <rules value="open" /> </slicing> <min value="0" /> </element> <element id="Patient.extension:motherPlaceOfOrigin.extension:relativeRelationship"> <path value="Patient.extension.extension" /> <sliceName value="relativeRelationship" /> <min value="0" /> </element> <element id="Patient.extension:motherPlaceOfOrigin.extension:relativeRelationship.value[x]"> <path value="Patient.extension.extension.value[x]" /> <min value="1" /> <type> <code value="CodeableConcept" /> <profile value="http://hl7.org/fhir/uv/ips/StructureDefinition/CodeableConcept-uv-ips" /> </type> <patternCodeableConcept> <coding> <system value="http://terminology.hl7.org/CodeSystem/v3-RoleCode" /> <code value="MTH" /> <display value="mother" /> </coding> </patternCodeableConcept> <binding> <strength value="required" /> <valueSet value="http://ig.ehealth4u.eu/fhir/ValueSet/cyehr-vs-ehdsipersonalrelationship" /> </binding> </element> <element id="Patient.extension:motherPlaceOfOrigin.extension:relativeRelationship.value[x].coding"> <path value="Patient.extension.extension.value[x].coding" /> <min value="1" /> <max value="1" /> </element> <element id="Patient.extension:motherPlaceOfOrigin.extension:relativeRelationship.value[x].coding.system"> <path value="Patient.extension.extension.value[x].coding.system" /> <min value="1" /> </element> <element id="Patient.extension:motherPlaceOfOrigin.extension:relativeRelationship.value[x].coding.code"> <path value="Patient.extension.extension.value[x].coding.code" /> <min value="1" /> </element> <element id="Patient.extension:motherPlaceOfOrigin.extension:relativeRelationship.value[x].coding.display"> <path value="Patient.extension.extension.value[x].coding.display" /> <min value="1" /> </element> <element id="Patient.extension:fatherPlaceOfOrigin"> <path value="Patient.extension" /> <sliceName value="fatherPlaceOfOrigin" /> <min value="0" /> <max value="1" /> <type> <code value="Extension" /> <profile value="http://ig.biobank.cy/fhir/StructureDefinition/biobankcy-ext-relativepersonplaceoforigin" /> </type> <isModifier value="false" /> </element> <element id="Patient.extension:fatherPlaceOfOrigin.extension"> <path value="Patient.extension.extension" /> <slicing> <discriminator> <type value="value" /> <path value="url" /> </discriminator> <rules value="open" /> </slicing> <min value="0" /> </element> <element id="Patient.extension:fatherPlaceOfOrigin.extension:relativeRelationship"> <path value="Patient.extension.extension" /> <sliceName value="relativeRelationship" /> <min value="0" /> </element> <element id="Patient.extension:fatherPlaceOfOrigin.extension:relativeRelationship.value[x]"> <path value="Patient.extension.extension.value[x]" /> <min value="1" /> <type> <code value="CodeableConcept" /> <profile value="http://hl7.org/fhir/uv/ips/StructureDefinition/CodeableConcept-uv-ips" /> </type> <patternCodeableConcept> <coding> <system value="http://terminology.hl7.org/CodeSystem/v3-RoleCode" /> <code value="FTH" /> <display value="father" /> </coding> </patternCodeableConcept> </element> <element id="Patient.extension:fatherPlaceOfOrigin.extension:relativeRelationship.value[x].coding"> <path value="Patient.extension.extension.value[x].coding" /> <min value="1" /> <max value="1" /> </element> <element id="Patient.extension:fatherPlaceOfOrigin.extension:relativeRelationship.value[x].coding.system"> <path value="Patient.extension.extension.value[x].coding.system" /> <min value="1" /> </element> <element id="Patient.extension:fatherPlaceOfOrigin.extension:relativeRelationship.value[x].coding.code"> <path value="Patient.extension.extension.value[x].coding.code" /> <min value="1" /> </element> <element id="Patient.extension:fatherPlaceOfOrigin.extension:relativeRelationship.value[x].coding.display"> <path value="Patient.extension.extension.value[x].coding.display" /> <min value="1" /> </element> <element id="Patient.extension:fatherPlaceOfOrigin.extension:placeOfOrigin"> <path value="Patient.extension.extension" /> <sliceName value="placeOfOrigin" /> <min value="0" /> </element> <element id="Patient.extension:fatherPlaceOfOrigin.extension:placeOfOrigin.value[x]"> <path value="Patient.extension.extension.value[x]" /> <min value="1" /> </element> <element id="Patient.extension:citizenship"> <path value="Patient.extension" /> <sliceName value="citizenship" /> <min value="0" /> <max value="1" /> <type> <code value="Extension" /> <profile value="http://hl7.org/fhir/StructureDefinition/patient-citizenship" /> </type> <isModifier value="false" /> </element> <element id="Patient.extension:citizenship.extension"> <path value="Patient.extension.extension" /> <slicing> <discriminator> <type value="value" /> <path value="url" /> </discriminator> <rules value="open" /> </slicing> <min value="0" /> </element> <element id="Patient.extension:citizenship.extension:code"> <path value="Patient.extension.extension" /> <sliceName value="code" /> <min value="0" /> </element> <element id="Patient.extension:citizenship.extension:code.value[x]"> <path value="Patient.extension.extension.value[x]" /> <type> <code value="CodeableConcept" /> <profile value="http://hl7.org/fhir/uv/ips/StructureDefinition/CodeableConcept-uv-ips" /> </type> <binding> <strength value="required" /> <valueSet value="http://hl7.org/fhir/ValueSet/iso3166-1-2" /> </binding> </element> <element id="Patient.extension:race"> <path value="Patient.extension" /> <sliceName value="race" /> <min value="0" /> <max value="1" /> <type> <code value="Extension" /> <profile value="http://ig.biobank.cy/fhir/StructureDefinition/biobankcy-ext-race" /> </type> <isModifier value="false" /> </element> <element id="Patient.extension:race.value[x]"> <path value="Patient.extension.value[x]" /> <comment value="When the concept "Other Race" is used, the user shall specify exactly what race using the text element." /> <requirements value="Corresponds to the ethnicity_fylh in REDCap." /> <min value="1" /> <type> <code value="CodeableConcept" /> <profile value="http://hl7.org/fhir/uv/ips/StructureDefinition/CodeableConcept-uv-ips" /> </type> <binding> <strength value="required" /> <valueSet value="http://ig.biobank.cy/fhir/StructureDefinition/biobankcy-vs-race" /> </binding> </element> <element id="Patient.identifier"> <path value="Patient.identifier" /> <slicing> <discriminator> <type value="pattern" /> <path value="$this" /> </discriminator> <rules value="open" /> </slicing> <definition value="Identifiers can be provided for every person registered in the biobank. There are three possible identifiers that can be used: (1) the national identity and the issuing country (2) the passport and the issuing country (3) the Alien Resident Card (in Cyprus) Additionally, there are internal identifiers for the biobank.cy which are (1) MPI (Master Patient Index) which identifies the citizens accross all the research projects internally in the biobank.cy" /> <requirements value="People are known by a variety of ids. Some institutions maintain several, and most collect identifiers for exchange with other organizations concerning the person. Examples are national person identifier and local identifier." /> <min value="1" /> <mustSupport value="true" /> </element> <element id="Patient.identifier.value"> <path value="Patient.identifier.value" /> <min value="1" /> </element> <element id="Patient.identifier:biobankUCY"> <path value="Patient.identifier" /> <sliceName value="biobankUCY" /> <min value="1" /> <max value="1" /> <patternIdentifier> <type> <coding> <system value="http://terminology.hl7.org/CodeSystem/v2-0203" /> <code value="DR" /> </coding> </type> </patternIdentifier> </element> <element id="Patient.identifier:biobankUCY.use"> <path value="Patient.identifier.use" /> <min value="1" /> </element> <element id="Patient.identifier:biobankUCY.type"> <path value="Patient.identifier.type" /> <min value="1" /> </element> <element id="Patient.identifier:biobankUCY.system"> <path value="Patient.identifier.system" /> <max value="0" /> </element> <element id="Patient.identifier:biobankUCY.value"> <path value="Patient.identifier.value" /> <min value="1" /> </element> <element id="Patient.identifier:biobankUCY.period"> <path value="Patient.identifier.period" /> <max value="0" /> </element> <element id="Patient.active"> <path value="Patient.active" /> <max value="0" /> </element> <element id="Patient.name"> <path value="Patient.name" /> <max value="0" /> <constraint> <key value="ips-pat-1" /> <severity value="error" /> <human value="Patient.name.given or Patient.name.family or both SHALL be present" /> <expression value="family.exists() or given.exists()" /> <xpath value="f:given or f:family" /> <source value="http://hl7.org/fhir/uv/ips/StructureDefinition/Patient-uv-ips" /> </constraint> </element> <element id="Patient.telecom"> <path value="Patient.telecom" /> <max value="0" /> </element> <element id="Patient.gender"> <path value="Patient.gender" /> <comment value="Create conceptMap for http://ig.biobank.cy/fhir/ValueSet/biobankcy-vs-ehdsiadministrativegender" /> <mustSupport value="true" /> </element> <element id="Patient.birthDate"> <path value="Patient.birthDate" /> <mustSupport value="true" /> </element> <element id="Patient.deceased[x]"> <path value="Patient.deceased[x]" /> <type> <code value="dateTime" /> </type> <mustSupport value="true" /> </element> <element id="Patient.address"> <path value="Patient.address" /> <short value="One or more addresses for the person." /> <definition value="One or more addresses for the person." /> <comment value="Follow the structure of the prototype of the national EHR address datatype." /> <max value="0" /> <type> <code value="Address" /> <profile value="http://ig.ehealth4u.eu/fhir/StructureDefinition/cyehr-sd-address" /> </type> <constraint> <key value="pat-cnt-2or3-char" /> <severity value="warning" /> <human value="The content of the country element (if present) SHALL be selected EITHER from ValueSet ISO Country Alpha-2 http://hl7.org/fhir/ValueSet/iso3166-1-2 OR MAY be selected from ISO Country Alpha-3 Value Set http://hl7.org/fhir/ValueSet/iso3166-1-3, IF the country is not specified in value Set ISO Country Alpha-2 http://hl7.org/fhir/ValueSet/iso3166-1-2." /> <expression value="country.empty() or (country.memberOf('http://hl7.org/fhir/ValueSet/iso3166-1-2') or country.memberOf('http://hl7.org/fhir/ValueSet/iso3166-1-3'))" /> <source value="http://hl7.org/fhir/uv/ips/StructureDefinition/Patient-uv-ips" /> </constraint> </element> <element id="Patient.maritalStatus"> <path value="Patient.maritalStatus" /> <max value="0" /> <type> <code value="CodeableConcept" /> <profile value="http://hl7.org/fhir/uv/ips/StructureDefinition/CodeableConcept-uv-ips" /> </type> </element> <element id="Patient.multipleBirth[x]"> <path value="Patient.multipleBirth[x]" /> <comment value="Not to be used for biobank.cy" /> </element> <element id="Patient.photo"> <path value="Patient.photo" /> <max value="0" /> </element> <element id="Patient.contact"> <path value="Patient.contact" /> <max value="0" /> </element> <element id="Patient.contact.relationship"> <path value="Patient.contact.relationship" /> <binding> <extension url="http://hl7.org/fhir/StructureDefinition/elementdefinition-bindingName"> <valueString value="ContactRelationship" /> </extension> <strength value="required" /> <description value="The nature of the relationship between a patient and a contact person for that patient as defined by eHDSI in MVC" /> <valueSet value="http://ig.ehealth4u.eu/fhir/ValueSet/cyehr-vs-ehdsiroleclass" /> </binding> </element> <element id="Patient.contact.name.use"> <path value="Patient.contact.name.use" /> <mustSupport value="true" /> </element> <element id="Patient.contact.name.family"> <path value="Patient.contact.name.family" /> <mustSupport value="true" /> </element> <element id="Patient.contact.name.given"> <path value="Patient.contact.name.given" /> <mustSupport value="true" /> </element> <element id="Patient.contact.telecom.system"> <path value="Patient.contact.telecom.system" /> <mustSupport value="true" /> </element> <element id="Patient.contact.telecom.value"> <path value="Patient.contact.telecom.value" /> <min value="1" /> <mustSupport value="true" /> </element> <element id="Patient.contact.telecom.use"> <path value="Patient.contact.telecom.use" /> <mustSupport value="true" /> </element> <element id="Patient.contact.address"> <path value="Patient.contact.address" /> <type> <code value="Address" /> <profile value="http://hl7.org/fhir/StructureDefinition/Address" /> <profile value="http://ig.ehealth4u.eu/fhir/StructureDefinition/cyehr-sd-address" /> </type> </element> <element id="Patient.contact.gender"> <path value="Patient.contact.gender" /> <short value="Female | Male | Undifferentiated" /> </element> <element id="Patient.contact.organization.reference"> <path value="Patient.contact.organization.reference" /> <min value="1" /> </element> <element id="Patient.communication"> <path value="Patient.communication" /> <max value="0" /> </element> <element id="Patient.communication.language"> <path value="Patient.communication.language" /> <type> <code value="CodeableConcept" /> <profile value="http://hl7.org/fhir/uv/ips/StructureDefinition/CodeableConcept-uv-ips" /> </type> <binding> <extension url="http://hl7.org/fhir/StructureDefinition/elementdefinition-maxValueSet"> <valueCanonical value="http://hl7.org/fhir/ValueSet/all-languages" /> </extension> <extension url="http://hl7.org/fhir/StructureDefinition/elementdefinition-bindingName"> <valueString value="Language" /> </extension> <extension url="http://hl7.org/fhir/StructureDefinition/elementdefinition-isCommonBinding"> <valueBoolean value="true" /> </extension> <strength value="required" /> <valueSet value="http://ig.biobank.cy/fhir/ValueSet/biobankcy-vs-ehdsilanguage" /> </binding> </element> <element id="Patient.communication.language.coding"> <path value="Patient.communication.language.coding" /> <min value="1" /> </element> <element id="Patient.generalPractitioner"> <path value="Patient.generalPractitioner" /> <max value="0" /> </element> <element id="Patient.managingOrganization"> <path value="Patient.managingOrganization" /> <comment value="All the Patients of the biobank.cy shall hve the biobank.cy instance as managingOrganization." /> </element> <element id="Patient.managingOrganization.reference"> <path value="Patient.managingOrganization.reference" /> <comment value="Reference to biobank.cy organization." /> <min value="1" /> </element> <element id="Patient.link.other"> <path value="Patient.link.other" /> <type> <extension url="http://hl7.org/fhir/StructureDefinition/structuredefinition-hierarchy"> <valueBoolean value="false" /> </extension> <code value="Reference" /> <targetProfile value="http://hl7.org/fhir/StructureDefinition/Patient" /> <targetProfile value="http://hl7.org/fhir/StructureDefinition/RelatedPerson" /> <targetProfile value="http://ig.biobank.cy/fhir/StructureDefinition/biobankcy-sd-citizen" /> </type> </element> <element id="Patient.link.other.reference"> <path value="Patient.link.other.reference" /> <min value="1" /> </element> <element id="Patient.link.type"> <path value="Patient.link.type" /> <fixedCode value="refer" /> </element> </differential> </StructureDefinition>